Such a tragic case poor little man.
Just out of interest, and this isn't specific to little Charlie's case, when they basically decide to turn off the life support, is it just a case of switching off the ventilator and any other support? Doesn't that mean he effectively suffocates, which doesn't seem a nice way to go. Or do they basically put him under some kind of anesthetic so there's no suffering? I feel very ignorant asking that but it's only with cases like this that I've ever thought about such horrible situations
https://www.nice.org.uk/guidance/ng61