Possibly my toughest 24 hours ever

Soldato
Joined
17 Nov 2004
Posts
10,099
Location
The Republic
Well I must say that the last 24 hours have been probably the most challenging for some time if not ever Apologies in advance if this is long winded, gruesome or bloody. On the one hand I have been helping Mrs L prepare for a Senior Managers job at her place. Her interview was today. So I have had to be really up beat and encouraging for her. On the other hand I have been dealing with my step dad being in Hospital for a major op all day yesterday.

A few months ago my step-dad was diagnosed with cancer around his throat and jaw area. A few weeks back he was in for the supposed operation but they stopped it at the pre op stage as it was worse than what they had planned for. So they have had to re-evaluate how it was done etc. Ultimately they planned to remove it from his throat and jaw, whilst taking away muscles around his neck and shoulder area. He would then need to have a bone graft on his jaw taken from his hip to replace the bone taken from his jaw

So the operation was yesterday.. The poor guy was in theatre from 08.15 till 23.00 last night then in recovery for a few hours. Yesterday was quite an ordeal waiting for the phone to ring. Today was the first visit which is something I was completely un-prepared for. It was just me and my Mum who went up there. I didn't know what to expect at all. Was he going to be bandaged up or all swollen up. I just wasn't prepared for it. Luckily I held it together for the sake of the pair of them because he is in a real mess. The nurse told us that the reason for the length of the operation was that they had to cut from the middle of his bottom lip down to his chin and across his jaw line to literally peel the skin back to get at. He then had micro surgery once the tuma was removed to put his jaw line back together.

As I say the hardest part was walking in for the first time to see him lay in the bed the way he was, hooked upto all the machines and breathing apparatus. He has a pipe in his throat to help him breath. He looked so helpless and frustrated as he couldn't talk. Looks like he wont be able to talk for a good few weeks and when he's out he will have to have speech therapy because of how his face has changed, it has changed how he makes sounds and words.

On the positive side he should be moving off high dependency onto his normal ward tomorrow. Its still going to be a massive struggle for both him and the family around him but thank god, Buddha, Allah or whoever else that it looks as though he did the right thing and went to the Docs and hope they caught it early enough.

On a positive note I can say that the staff in the High Dependency Unit at Manchester Royal Infirmary have been nothing short of outstanding. They must receive hundreds literally thousands of calls each and every day asking the same question on how Mr X or Mrs Y is doing and they answer with professionalism and compassion. They took their time to explain what has happened and what they will be doing next. Not only that they have been A1 in getting support for my Mum sorted on doing the small things that are easy to forget like phoning the council tax up. Seeing if she is entitled to any extra financial support as she is retired and he is self employed. I think we are all acutely aware of some of the shortcomings of the NHS but these people are a credit to the Hospital, The NHS and their profession

I know the next couple of months are going to be tough as there will be a lot of pressure on me & Mrs L to support my Mum as both my older Brother and Sister have been nothing short of useless and I am absolutely disgusted with them. But it will all be worth it to see him back home on the road to recovery.

Once again apologies for the long post. I just needed to get some of it off my chest
 
Loki said:
A compassionate snip

I've been thorugh it all as well, my dad had asbestos , he had his lung removed and jesus it was hard , like you say seeing some helpless etc.

All I can say is be ******* strong cause road ahead ain't gonna be easy and I hope it all ends a hell of a lot better then my only experience did with the BIG C did :(

If you need any help i'm on MSN ;)

Hope all is going well now.

And just to repeat my experience with the NHS overall was A1 also so give them poor nurses and docs a break when it really matters I think they do fantastic job
 
divaboy said:
I've been thorugh it all as well, my dad had asbestos , he had his lung removed and jesus it was hard , like you say seeing some helpless etc.

All I can say is be ******* strong cause road ahead ain't gonna be easy and I hope it all ends a hell of a lot better then my only experience did with the BIG C did :(

If you need any help i'm on MSN ;)

Hope all is going well now.

And just to repeat my experience with the NHS overall was A1 also so give them poor nurses and docs a break when it really matters I think they do fantastic job

Cheers fella. And quoted for truth with the Docs and Nurses
 
Loki said:
Cheers fella. And quoted for truth with the Docs and Nurses

No probs and it is a genuine offer , i'm sure you have plenty of "real life" friends to talk it over with , but you know ..........

Like I said really hope they caught the **** early enough ............
 
You really don't realise how lucky you are until you hear about these things. I genuinely hope he gets back to himself soon.
 
I feel for you buddy, my mum was diagnosed with Multiple Myeloma (cancer of the bone marrow) some five years ago, what she has been through since then with long bouts of chemo, physio and lots of pain is quite astounding tbh, but she has kept a positive outlook and a smile all the way through.

We recently celebrated her 59th birthday in the hospice she is in, recovering from a bout a pneumonia, her strength of character is absolutley amazing.

As has been said, to watch someone you love lye there in pain, helpless is very, very hard to deal with.
All the nurses and doctors deserve knighthoods as far as i'm concerned.

Be strong, have a good cry it helps, as Loki said it won't be easy but be positive.

Good luck to you and yours.
 
That is quite an ordeal and from the sounds of it you handled very well. It's not a nice thing seeing a loved one in pain or in a state of helplessness. Kudos to you for being strong for your mum, I'm sure that meant the world to her even if she didn't tell you. It's also not something she'll ever forget, you being there for her. Were the doctors able to tell you how successful the whole thing was? Or is there a time period from which they assess things afterwards? The NHS generally get abuse from all angles, and it's always good to hear of them doing the job that most people never see them do or hear about. Best wishes to your step dad for a fast recovery and recuperation free of trouble and any complications. He's one brave guy that's for sure. And my thoughts are with you and your family during this stressful and hard time. Your mum will be proud. :)
 
The poor guy was in theatre from 08.15 till 23.00 last night

Wow! 14:45 of surgery, i'm glad he's come out of it as well as he could do with something like this mate, people slate the medical service here way too much, but major props for them being such a faithful, reassuring and well working bunch of people that you have dealt with.

Thought, prayers & best wishes to you & yours through this time, but i'm glad he made it out of the surgery well, its a long road of recovery ahead, but i wish him and you all, all the best with it :)
 
Linoge said:
Any updates Loki?

Yesterday was a weird day really. My Step dad is pretty laid back. Well laid back to the point of being horizontal. Nothing stresses him out ever. In the event of WWIII he would for another minute after the four minute warning to get his stuff together but he's harmless with it. So when my Mum was up there yesterday he was getting really agitated when two of the nurses came over to him.

He written down on his pad "they don't know what they're doing" and "im scared of them two" So it looks as though they may have been a bit rough with him. Plus he must have been drugged upto the eye balls with all the morphine and stuff so it is very possible he hallucentated it.

Today was different again. Sat up in a chair now. Still unable to speak and his mood was a lot better again. They have started feeding him. Its some kind of compound. Looks liquified baby food that he will have to take direct into his stomach for the next 2 monts or so whilst his jaw and throat heal.

So it's all little steps in the right direction. He should be going onto a normal ward Tues/Weds next week, which again should help improve his spirits

JohnnyG said:
Hope all's well mate :)

Cheers dude
 
Sounds like the exact operation my gran had about a year and a half ago, although they were taking a graft from her arm to go into her jaw which they messed up so now she also has limited use of her right hand.
The time after the op was very difficult for her and my family and for me it was difficult to see her go from the quite outgoing active person she was to being unable to get out and about and get her point across due to her altered speech, but her speech and attitude since the op has improved greatly and the physio has really helped with her speech. So although it all looks a bit grim at the min it will improve and im sure with the help he will receve, he'l be back to his old self in no time.
 
Loki said:
.

Plus he must have been drugged upto the eye balls with all the morphine and stuff so it is very possible he hallucentated it.




Cheers dude


Morphine is awful stuff, broke my heart when my dad told my mum to F off when he was all messed up. Then he came and begged me to help him and take him to hospital. :( He never had any more of the stuff, he said his last small amount of time on this planet , he shouldn't be off his rocker.

So just be prepared , hope it doesn't come to it. Seems like things are moving the right direction :)
 
Back
Top Bottom