Fibromyalgia

[AHarvey]

NOT Fibromyalgia, Arthritis

**NOT looking for medical advice**

**UPDATE: Doctor believes it is Psoriatic Arthritis **

Hi all,

Just wondering if people have any experience of dealing with fibromyalgia, either first or second hand?

For 14 years i've had pains in my knee's and terrible headaches that can last several days. Sometimes I have problems concentrating and feel foggy, I lose words too like people's names. Been to the doctors with each one individually and they've been no help.

The last 3 years I've had all over body pain the same as the knee pain, lasts 6-7 months then eases off. Had another flair up 3 weeks ago and had to have time off work with it. Doctor has actually referred me but thinks it's Fibromyalgia.

How do you find dealing with it day to day?

 

[AHarvey]

Have you ever suffered from depression? Out of interest.

Never diagnosed with it, had low periods in the past where my wife thought I was. I'm an odd person though, I can be totally compassionate at times, and others, I just don't care and remove all emotion from decisions and events.

 

[AHarvey]

Said he is referring it to a rheumatologist. No idea on time frame though

 

[AHarvey]

Why don't you wait until you've seen the specialist before you decide this is what you have. I could think of plenty of other diagnosis, that are maybe even more likely, that this could be. Always better to wait eh and find out what you are battling before preparing yourself for any particular battle!

Because I'm aware it's not curable and I've just been research diet/exercises that can help, just in case. I'd rather make the changes now to see if it helps than wait weeks for an appointment, or longer to then have to change diet etc I'm not saying i've definitely got it, but there's never any harm doing some research just in case

The symptoms are very very similar to Lyme disease.. You don't recall being bitten by any ticks do you? Doctors seem very quick to diagnose CFS/Fibromyalgia instead of investigating the possibility of Lyme. A lot don't even seem to be aware of Lyme!

tbh I first started with this pain so long ago I can't remember but I don't ever recall having to have a tick removed.

Yep i've got it. Well M.E but i have muscle and joint pains all over my body constantly, i feel like i've only had about 3 hours sleep after a goods night sleep, my head feels like it's in a daze like i'm daydreaming and my memory has gotten terrible. The people who don't believe it's real including doctors can **** off for all i care. I'd give anything to be healthy as it just restricts everything in my life and it's only getting worse by the year.

Yep, I have clear moment when I can focus and get so much done, then days like today where I managed to cook a pizza from the supermarket with the foam underneath..brain just isn't there.

 

[AHarvey]

Just to update this, I saw a specialist on Friday regarding the matter after my regular GP said he was stumped.

Although the symptoms fit Fibro with my father suffering with Psoriasis and despite me not have the skin condition (that we are aware of) he thinks it is Psoriatic Arthritis.

The pain is up and down, last week i was running up and down stairs, crawling under desks to fix PCs etc and only had very minor pain. This week i've had to have 2.5 days off work because I can't drive for more than 10 mins and the pain really has a negative effect on my personality and ability to focus.

It's costing me money and having just been back in touch with my GP my prescription still hasn't arrived from the specialist and even when it does, it takes 2 working days to process. Looks like more pain and discomfort for me, and it's my daughters 4th birthday on Saturday