My get blood tests done every 2 months due to the long term meds I am on for my Crohn's Disease.
Tests are done through my local hospital directly, and not through my GP. That's because the hospital consulting/specialist IBD team prescribe my immunosuppressants, so they monitor the blood results directly.
Up until 6 months ago, the IBD team would happily send me a pdf of my test results by email if I asked, and I started transferring them into Excel to monitor the trends out of interest e.g. check my vit D levels over the year, and to see if if gut inflammation levels correlate with anything going on in overall life/health. Today, I asked for my last two test results and they refused, citing that it would "go against the information governance". This was from a new nurse in that team.
Anyone know what that is about, and if true? I am happy to challenge them because I received them in the past and surely it's my own data and I am entitled to them?
Anyone else get their detailed blood results, and how do you go about it?
Tests are done through my local hospital directly, and not through my GP. That's because the hospital consulting/specialist IBD team prescribe my immunosuppressants, so they monitor the blood results directly.
Up until 6 months ago, the IBD team would happily send me a pdf of my test results by email if I asked, and I started transferring them into Excel to monitor the trends out of interest e.g. check my vit D levels over the year, and to see if if gut inflammation levels correlate with anything going on in overall life/health. Today, I asked for my last two test results and they refused, citing that it would "go against the information governance". This was from a new nurse in that team.
Anyone know what that is about, and if true? I am happy to challenge them because I received them in the past and surely it's my own data and I am entitled to them?
Anyone else get their detailed blood results, and how do you go about it?