Keratoconus

[scottmorley]

Hi guys,
i was diagnosed with Keratoconus in my right eye about 5 years ago now, and i feel it's starting to get worse, i worry for my job, as i'm a Bus driver and obviously without my vision, i'm not going to have a job for long. i don't exactly have anything i could fall back on either, don't have a trade or experience in anything else unfortunately..
i can see fine in the day time, but of a night i get extreme glare from any artificial light source, car headlights, lamp posts etc.. everything just goes blurry.

I'm off to the hospital on the 20th to see about a minor operation called Corneal cross-linking which is supposed to stop the condition worsening. I've also heard of special contacts which are meant to aid your vision but at a heavy cost.

The reason for this post really.. is to find out if any of you guys have the condition and if so, how you're dealing with it?

 

[kaptainmarc]

My brother has this condition, He had the hard plastic contact for a while but found it very uncomfortable so now just cracks on with life with his one good eye.

 

[xxalxx]

I have had this for 20 odd years, I get by with glasses, but also have contacts to help as well.

Have you tried scleral lenses?

 

[scottmorley]

Luckily your case of keretoconus can't be to bad if glasses correct it, for me they don't work and out of my right eye I literally can't see anything, it's very distorted. I have heard of those lenses but they seem pretty hard to get the real macoy over here, you can get part scleral lenses but I doubt there as good, I'll be asking about them in my next appointment to see if the NHS do them or if not, where to find them.

 

[xxalxx]

Ask them about the RGP ones that you wear when you go to bed!