An update.
I need to have an MRI scan next tuesday, so another 4 boring days in hospital. Due to my congenital heart defect, my heart structure is complex, and they need to see what's going on first.
They will do what they can to settle things down. However, they also informed me that after I left hospital they would contact the Freeman Heart and Lung transplant centre in Newcastle as they are now sure I will eventually need a heart transplant, due to constant arrhythmias and weakening heart function. although heart function has been pretty stable for the last 5 years or so.
I feel a bit devastated. But on the other hand they have said that as I am one of the oldest with my condition and it is a bit unproven, I could end up not neding it for ten years or so, depending on how the heart maintains its function. I can only hope for the best and take care of myself.
A heart transplant would be an amazing experience though. I have never known what it's like to have an ordinary heart. Always been stuck with one that doesn't work properly. I hope that if I have a transplant, it will enrich my life for many years and I can finally live and enjoy myself properly.