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Update on my health

Discussion in 'General Discussion' started by robfosters, Jan 9, 2019.

  1. robfosters


    Joined: Dec 1, 2010

    Posts: 28,422

    Location: Welling, London

    As many of you know, I’ve been battling a congenital heart condition my entire life. Well, things have moved on dramatically, so I thought I’d give you an update.

    Last March, I went into a slow form of atrial tachycardia. An echo showed that due to weakening heart function, I had developed a clot in my right atrium, roughly the size of a pea. I was placed on heparin to reduce it. but had to stop taking it after severe nose bleeds. This meant they couldn’t put me back into sinus rhythm as the shock given to my heart could blow the clot out, causing massive stroke or embolism. Over time my condition has deteriorated, and I returned to the hospital yesterday. The clot has grown to the size of a grape and is starting to interfere slightly with blood flow through the heart which is making me feel worse. They are out of options though and cannot get rid of the clot without risking a stroke or embolism, both of which would probably kill me in my current state. The only way out is a transplant, which they have talked about for years, but I’ve never been ill enough to go on the list.

    The Freeman hospital in Newcastle are aware of me and have asked for full liver works to be done as my liver is damaged from the years of poor circulation, and they need to make sure it is working well enough to withstand the strain on it after transplant. I will be having CT scans and other investigations soon, both at my regular hospital in London and the Freeman (not looking forward to the journeys coming up!). Hopefully, all will be OK and I will be placed on the list. If not, then my last hope is gone and I go on to palliative care to make me as comfortable as possible for the time I have left.

    Also, my ICD, which protects against cardiac arrest is nearly out of battery, so I need another operation to replace that.

    It’s a very scary time and I am honestly ******** myself, but I just have to smile and get on with things the best I can. I’m still feeling OK in myself when resting but am struggling to walk more than 20 yards now without breathlessness and a racing heart. The ticker has just done as much as it can, there’s no more left.

    I’ll update this thread when there are further developments. It’s good for me to talk to people on here as I don’t get out much in my current state as you can imagine, so opportunities for talk are limited. Thanks for listening :)
  2. dirtybeatfreak


    Joined: Jun 25, 2006

    Posts: 3,867

    Location: Eastbourne

    Haven't really got any advice (I know you weren't asking for it), but wish you well mate.
  3. rhysduck


    Joined: Oct 25, 2009

    Posts: 5,822

    Location: Nelson, South Wales

    Got my fingers crossed for you Rob - sure all will be well.
  4. Ayahuasca


    Joined: Apr 23, 2014

    Posts: 18,633

    Location: County Durham

    Wish you the very best, I'm not far from the Freeman and their cardiac unit is incredible. Having suffered from heart issues myself, albeit much less serious, it is definitely normal to be bricking it, even benign arrhythmias are uncomfortable and anxiety producing.
  5. rebel rebel

    Wise Guy

    Joined: Mar 30, 2010

    Posts: 2,178

    Location: Exile

    I hope things work out for you mate. Try to remain positive.
  6. h4rm0ny


    Joined: Jun 25, 2011

    Posts: 5,473

    Location: Yorkshire and proud of it!

    I had no idea about any of that. I'm sorry to hear it and I wish you the best. And I look forward to many more posts from you. You're one of the more intelligent posters here, imo - by which of course I mean you think the same as me a lot of the time. :)

    Take care of yourself, mate.
  7. inogen


    Joined: Jul 19, 2009

    Posts: 3,024

    Good luck Rob. Take it as it comes. :)
  8. jsmoke


    Joined: Jun 17, 2012

    Posts: 6,990

    All the best bruv.
  9. Rroff

    Man of Honour

    Joined: Oct 13, 2006

    Posts: 61,558

    Man that is rough. Hoping for the best.
  10. Lartyconshayo

    Wise Guy

    Joined: Dec 5, 2010

    Posts: 2,330

    Location: deep space nine

    Hope it works out for you Rob
  11. Rids


    Joined: Sep 30, 2008

    Posts: 5,538

    Christ that sounds tough, I wish you all the best.
  12. Diddums


    Joined: Oct 24, 2012

    Posts: 17,622

    Location: London

    You're a titan Rob, I have no doubt you're gonna grab this bull by the horns and show it who's boss. Doesn't make it any easier though. Good luck mate, keep us posted <3
  13. Worthy


    Joined: Oct 18, 2002

    Posts: 5,890

    Location: Manchester

    Really sorry to hear about this, I didn't know you suffered from health issues. Forgive my ignorance on the subject, but isn't there an operation available to remove the clot if they know where it is?

    Wishing you all the best.
  14. Thekwango


    Joined: Feb 5, 2009

    Posts: 10,420

    Location: Northern Ireland

    good luck op. hope things improve.
  15. robfosters


    Joined: Dec 1, 2010

    Posts: 28,422

    Location: Welling, London

    Not in my case no. There are operations, but they are just too dangerous to perform on me in my current state, and even if they got rid of the clot, another one would likely form before too long.
  16. Yas786


    Joined: Oct 18, 2002

    Posts: 46,137

    Location: All over the world...

    As a fellow arsenal fan rob I’m sorry to hear of your health issues. Although I do remember in the past you posting about it.

    Anyhow buddy I hope things will get better for you soon with whatever procedure they end up doing.

    I need a fellow gooner to quieten down the other football fans so don’t be going anywhere fella:p.
  17. Hades


    Joined: Oct 19, 2002

    Posts: 21,928

    Location: Surrey and London

    So sorry to hear things are so bad. All I can say is I genuinely wish you the best of luck. Keep us posted and I hope it goes well.
  18. [FnG]magnolia


    Joined: Aug 29, 2007

    Posts: 25,592

    Location: Auckland

    Last edited: Jan 9, 2019
  19. Slam62


    Joined: Jan 3, 2006

    Posts: 7,192

    Location: Monaco

    Good luck mate
  20. cainer

    Man of Honour

    Joined: Jan 9, 2010

    Posts: 12,483

    thats rough rob :/ i knew you had some issues as you'd posted before about it, good luck buddy