Well this is a bit ******

dod

dod

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I hope this isn’t considered a medical thread, but an experience. Maybe this can help me cope as well as anyone else. Maybe even encourage someone to take advantage of the system

I’m male, 61, pretty good health, keen cyclist. According to my garmin stats my VO2 max is in the top 1% for my age and gender with a fitness age of “an excellent 20 year old” , if you can believe that sort of programmes. In September I got through my bowel screening kit , happened to need a poo so went and did it there and then . Sent it off and didn’t think any more about it.

Few days later I get the letter back through and instead of no problem it says they want to see me for some tests.

Those tests basically consisted of a colonoscopy plus various bloods. Still wasn’t too concerned, loads of reasons for a positive result and I’m fit and healthy.

Night before the colonoscopy wasn’t great. A preparation called plenvu empties your bowel, vigorously. If you’ve ever heard billy Connolly’s sketch where he’s drinking foreign tap water that gives you an idea.

Colonoscopy done and you get an instant result. They found a polyp that was described as looking angry. No wonder really, just been exposed, poked and biopsied.

10 days later results are in, I’ve got an appointment with a consultant and as soon as I walk into the room I know it’s not good. You don’t need three people to give good news. He confirms it’s cancerous.

The rest of that day was a blur, met many different people and had a CT scan to see if there was anything else hiding. Abnormalities were found in liver and spleen so a MRI scan was arranged to check them out. Fortunately they were classified as small benign cysts. I don’t know how they do it but they do.

They now know what they’re doing so surgery it is, they don’t need chemo to control things prior to an op . I’m fairly lean so they decide I’m a good candidate for keyhole. And that’s what happened on Tuesday. Again prepped the night before and first on the table on the Tuesday morning. Anaesthetic via a cannula in the back of the hand but also some form of opiate injection into the spine between L3/4. The surgeon looks like a child although she says she’s on roughly her 100th procedure. Make that 101 now.

Everything goes well apart from hitting a vein which shouldn’t have been where she was putting in one of the tools and meant the op took about 7 hours instead of 5.

She took away about 40cm of bowel from the left as well as all the lymph glands and blood supply to that area. She then rejoined the two ends of the bowel so I don’t have a stoma. She’s confident she’s got everything but is going to recommend chemo, she thinks one of the lymph glands looks suspicious and expects pathology to confirm that.

Right now I feel like I’ve been kicked repeatedly by a horse. I’m getting a pretty decent mix of painkillers but I’m able to get out of bed and doing circuits of the ward. They said try to do one, every few hours. I’m way past that.

The physical side of this is manageable, I’m struggling with the mental. 8 weeks ago I was in rude health, now I’m a patient, and not a particularly good one.

Yesterday, the first day after the op was great. I guess my system was still full of meds. Today hasn’t been so good. I’ve been awake since 3am with abdominal cramps and currently relaxing due to a shot of liquid morphine. That stuff should be in boots :D

I am however grateful that I did that test early and this got caught fairly early. Bowel cancer is treatable and although I’m not out of the woods yet I’ve got about the best possible outcome I could have had at this stage. And all because of taking part in the screening. I suppose that’s the point of this. I’m not doing a poor me thread. If this encourages one person to take that test because they normally ignore it it will be worth it. If I hadn’t the surgeon says I’d have had three years.

The NHS has been awesome. I can’t fault the treatment I’ve had. I’ve also got BUPA but when I ran this past them they couldn’t get me through the system any quicker.
 
Did they just send you a kit or did you request it?
I should probably get checked again (last time was 10 years ago) as my father died through bowel cancer.

In England you should automatically start receiving them every 2 years from 54, though that is being gradually extended to start from 50

It's from 50 already in Scotland & Wales and 60 in NI.

I'm 54 and got one come through the post automatically though I have had polyp issues and a colonoscopy before, so whether that put me on a list I don't know, as a friend of mine is older and has never received one yet.

I 100% recommend people do these tests as soon as they can, as caught early it's very treatable and survivable. My partners sister just got diagnosed and it was already at stage 3 and had broken through, and she was on the 2 yr tests already. Thankfully she's had the op, all removed and they haven't even put her on remidial chemo.
 
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Sorry to hear you're going through this. My wife is as well and it isn't a fun experience. Everyone's journey is different so I'll not voice her journey here. I hope that whilst a lymph gland may look suspicious that the results come back as negative for you. It'll be down to a Multi Disciplinary Team to decide on your treatment going forward. So whilst chemo may be on your mind it's all unknown until the results are all in.

Is that the first FIT test you've ever done for bowel screening? I think they should lower the age of people that receive those kits. They only send out one test too and it's been proven that doing two tests within 13 days of each other gives a much more accurate result. Luckily the FIT tests are cheap to buy, from the likes of Superdrug. My only gripe with the FIT tests is they are most likely to pick up cancer once it is established, it's not a pro-active test. So anyone that may have symptoms, bowel habit change, aches and pains etc and a negative FIT test it is still advisable to see your doctor. Gold standard test is a colonoscopy, they just don't have the funding or resources to do this for everyone now. It's a shame, they used to and a colonoscopy is a pro-active test as it can detect polyps before they go rogue.

Speedy recovery Dod, try to stay positive, this may be much easier said than done. There is a lot of support out there so seek it out if you need it.
 
Sorry to hear you're going through this. My wife is as well and it isn't a fun experience. Everyone's journey is different so I'll not voice her journey here. I hope that whilst a lymph gland may look suspicious that the results come back as negative for you. It'll be down to a Multi Disciplinary Team to decide on your treatment going forward. So whilst chemo may be on your mind it's all unknown until the results are all in.

Is that the first FIT test you've ever done for bowel screening?
Not my first test, I’ve actually done them from 50. You’re right, there is a MDT that will make the decision but the surgeon is saying prepare for that eventuality. I’ll know formally on the 6th December
 
Sorry to hear that, but I hope the operation was a success.

To give you a little reassurance regarding the being kicked by a horse bit - it'll pass. I had about 30 cm of my small bowel removed in September. I was in good shape after about a week, although it took about three weeks to feel normal and a bit longer for the wound to heal over.

You'll be fine :)
 
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Well done for actually doing it, I can imagine a lot of people don't bother doing the tests. All the best.

People bury their heads. They don't want bad news. It's silly, though, ignoring cancer is like sitting on rail tracks and ignoring the oncoming train.

It doesn't matter how much turmoil and pain OP suffered, it was insignificant to what would happen six months later had he not had the op.
 
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People bury their heads. They don't want bad news. It's silly, though, ignoring cancer is like sitting on rail tracks and ignoring the oncoming train.

It doesn't matter how much turmoil and pain OP suffered, it was insignificant to what would happen six months later had he not had the op.
Correct. This way I’ve got a realistic chance of a fairly normal life, albeit dominated by tests for the next couple of years.

Without the scan I’d be dead in three years.
 
Really sorry to hear you're going through that.

I had my first testing kit sent this year. It was a bit icky doing it and sending it off. But definitely worth doing. If the result is clear then it gives you peace of mind and if the result is not clear then at least it can be treated quickly.
 
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Sorry to hear that, it’s a horrible disease.

Think about getting yourself (or family/friend) signed up to colontown when you feel able. It’s by far the best online resource available. There are people on there with personal experience of every possible aspect/presentation of the disease imaginable as well as the treatments used to fight it.

It sounds like you’re in a good place but there is massive value in having the knowledge to ask questions/challenge your team as well as understand the information they give you.
 
This is something i always meant to research but never got around to it. I never knew whether i had to book an app for test, or it was automatic, so this really was news:

If you're aged 54 to 74 and registered with a GP, you'll automatically get a bowel cancer screening home test kit (FIT kit) through the post every 2 years
 
It seems they’ll send you one if you’re younger if you request it.
Personally if I can avoid another colonoscopy I rather would (unless necessary) it ain’t pleasant.
 
In England you should automatically start receiving them every 2 years from 54, though that is being gradually extended to start from 50

It's from 50 already in Scotland & Wales and 60 in NI.

I'm 54 and got one come through the post automatically though I have had polyp issues and a colonoscopy before, so whether that put me on a list I don't know, as a friend of mine is older and has never received one yet.

I 100% recommend people do these tests as soon as they can, as caught early it's very treatable and survivable. My partners sister just got diagnosed and it was already at stage 3 and had broken through, and she was on the 2 yr tests already. Thankfully she's had the op, all removed and they haven't even put her on remidial chemo.
I had my first one sent earlier this year? Came back negative thankfully
 
I am constantly paranoid about having this exact issue, experts seem to be saying that preservatives and that kind of thing in processed foods increase the chances of having it by a significant amount.

I hope you recover and it never returns.
 
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