Mine started with frequent movements. I was always a 3 times a day person. Regular as clockwork. My system seems to take 13 hours from entry to exit.
This started to get more and more frequent. But very small movements. But i could go to the toilet and turn around on the way back down stairs to go back up again. This could happen 3-4 times on the go before maybe an hour or so break.
Then these movements started to happen at night (waking me up) which is a big signal somethings not right.
I went to the Dr's who said its probably piles (He saw I was looking worried as I had research UC and he said its very unlikely to be that) So then I'm trying every pile treatment under the sun. Cue another 6 months of getting worse and worse. Finally saw another GP. Whilst in the waiting room I went to the toilet twice (The actual toilet) This GP was much more receptive. And sent me for a Sigmoid.
When the nurse says oh dear you must be really suffering when looking at the screen you know theyve seen something.
3 days later and I'm feeling 99% like normal Thank you magic Pred. However, I seem to have dropped off someones radar as i was on pred for nearly 6 months at full whack. So that was a hard comedown. I think i had 3 rebound flares trying to come off that.
That got me about 18 months in remission. Since then I can get about the same 18 months'ish between flares. But they try to treat with anything other than Pred so I can go 12 months of treatment that doens't seem to do anything, Whilst knowing that Pred will have me back to normal within a week.....
So from the start I'd been on Asacol and that worked until the IBD nurse suggested lowering the dose to the maintainance level.... That caused a flare up within 2 weeks. So then back up to full dose and AZA got added... Then Allopurinol as the AZA wasn't doing what it should.. Now i'm on 75mg Aza and allopurinol to shunt it into working properly but that still isn't doing what we want.
Which is were we are now. Urgency, lots of very close calls. Some accidents. And a ****** haemorrhoid now which is probably not helping with the urgency
In two days I'm having my first Infusion. I've just cancelled my holiday as I have an Infusion thurs (week 0) then in two weeks (week 2) then in 6 weeks (week 6) which happens to fall on my 50th which was meant to be in a Villa in Italy after a road trip...
So might try and squeeze it in between week 2 and 6. But getting better, Getting back into the marital bed and getting back to my normal self is more important.