Lost my 8 week old - Brain Tumor
- Thread starter G18241
- Start date
Soldato
That is truly heartbreaking 
Your strength at being able to share your story with us is inspiring.
Your strength at being able to share your story with us is inspiring.
Soldato
Really sorry for your loss. I can somewhat relate to this, hope you both are staying strong. Brilliant thing that you're raising for the hospice I have donated.
Soldato
Tears in my eyes reading your story! I'm so sorry for your loss. I really hope you can raise a good amount for the hospice.
I can only imagine how you must be feeling, and it breaks my heart to read your story.
Rest in Peace Ivy.
Rest in Peace Ivy.
Man of Honour
Heartbreaking
I'm so sorry.
I'm so sorry.
Soldato
That is terrible. I am very sorry for your loss.
Soldato
How awful so sorry for your loss
so sorry for your loss 
So very sorry to read this terrible news. It brought tears to my eyes, and I couldn't help but relate it to my own two (18 months and 12 weeks). I'm very glad you at least had a chance to say a peaceful goodbye, which will hopefully bring you comfort in the future. Congrats on the fundraising, I've given what I can. RIP Ivy x
Soldato
Absolutely heart wrenching. I cannot express how sorry I am for you and your wife
I hope you find peace and comfort somehow somewhere.
I hope you find peace and comfort somehow somewhere.
Caporegime
That's pretty awful. Sorry to hear that. Not much I can say that hasn't been said.
Soldato
I'm so so sorry for your loss.
You lot are fantastic 
just hit £4000!
Had someone from the local newspaper contact me through fcebook asking for an interview regarding how much we have raised.
Im going to once again bump the target up a little as i dont want people to see we have hit the target and not donate, no amount of money we raise for this place will ever be enough to thank them for what they gave us on those precious last hours.
Again, thank you all so much, i will ensure the forum is mentioned for any thanks we receive
just hit £4000!Had someone from the local newspaper contact me through fcebook asking for an interview regarding how much we have raised.
Im going to once again bump the target up a little as i dont want people to see we have hit the target and not donate, no amount of money we raise for this place will ever be enough to thank them for what they gave us on those precious last hours.
Again, thank you all so much, i will ensure the forum is mentioned for any thanks we receive
Associate
I don't know what to say Awful news...I am so sorry to read of your loss.
It made for a heartbreaking read
Donated via the link.
Awful news...I am so sorry to read of your loss.It made for a heartbreaking read
Donated via the link.
Soldato
OP, perhaps the saddest story i've read on these forums. My deepest condolences.
My son was born 12 weeks early, he spent the first three months in a NICU. So i know sort of worry you went thru. Though he made it thru, so never got to experience the pain. My 2nd, at two, i was told they found a tumor on his brain, after he was complaining about headaches. i broke down expecting the start of the end. But again somehow dodging a bullet again, the brain specialist that we had to make a 400 round trip for said, he's lucky and its not growing, and he can just live with it, and best not try and mess with it. He's been fine ever since.
I just hope i die before my kids do, i'm not so sure i'd be able to handle it after nearly experiencing it. I hope you're both strong enough to get thru this and keep her memory alive.
RIP Ivy
My son was born 12 weeks early, he spent the first three months in a NICU. So i know sort of worry you went thru. Though he made it thru, so never got to experience the pain. My 2nd, at two, i was told they found a tumor on his brain, after he was complaining about headaches. i broke down expecting the start of the end. But again somehow dodging a bullet again, the brain specialist that we had to make a 400 round trip for said, he's lucky and its not growing, and he can just live with it, and best not try and mess with it. He's been fine ever since.
I just hope i die before my kids do, i'm not so sure i'd be able to handle it after nearly experiencing it. I hope you're both strong enough to get thru this and keep her memory alive.
RIP Ivy
Soldato
Last Sunday me and my wife lost our gorgeous 8 week old daughter, Ivy, to a brain tumor.
She had been for her 6 week scan a few weeks ago and the doctor noted that her head was above the average size, and asked for us to go back the week after to re-check it. So 2 Tuesday's ago we took her back and her head circumference had grown 3cm so we were told to go to the children's hospital. We feared it may have just been a build up of water which would have been able to be rectified with a drain inserted into the back of her head. We went for a CT scan with her and the results came back that she had a brain tumor, which pretty much covered half of her brain.
She went in for the operation the morning after and only just made it through, having to have CPR for a few minutes afterwards.
It got to Friday and the conversation was had to cease her life support as IF she even got through the recovery, her quality of life would be minimal, and the tumor WOULD eventually get her. She had started having seizures and was sedated and pumped full of different drugs to try and stabilize these. Her breathing support was removed Friday evening, but she continued breathing on her own, though still heavily sedated and being given the anti-seizure drugs.
We were moved to Bluebell Wood Children's Hospice Friday night once her breathing support was removed to be able to spend whatever time we had left with her in a more comfortable atmosphere, without all the tubes and machines. She literally had 1 tube which was providing her with the needed drugs to keep her comfortable, in a portable unit which meant we could give her cuddles and actually move around with her, which we had not been able to do for days. Sunday morning we were given a pram so we could take her outside, and jumped at the chance to try and do something "normal"
After a lovely walk around the grounds we went back to our room and laid back in bed, at which point our little princess decided it was time to finally go to sleep.
We cannot thank the hospice enough for what they gave us in those last few days, they gave us the opportunity to actually hold our daughter and the staff there were so helpful, and continue to be so.
We have set up a just-giving page to raise money for the hospice, as it is only 10% government funded. It is awful that a place like this NEEDS to exist, but we are so glad it does, as we managed to say goodbye to our little girl and a calm and peaceful environment.
We have had a fantastic response by friends and family sharing this around social media, but after speaking to the mods, they have allowed me to also post it up on here to try and reach as many people as we can.
Ivy's funeral is this Friday and we are trying to raise as much as we can for the hospice before then. Ivy is currently still at bluebell wood, where we have an adjoining room which we can go and stay at anytime we want, which again, is invaluable.
https://www.justgiving.com/fundraising/Gary-Morris18241
http://www.bluebellwood.org/
Thank you in advance for anyone kind enough to donate and / or share this story and just giving page, and thank you to the mods for allowing this
I can't put into words how dreadful that has been to you and your other half. I can only grab my two twin babies and give them an extra hug tonight. If you were here in front of me now I'd hug you too mate. This has left me feeling so sad for you. RIP your wee chick.....