Treacher Collins syndrome

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17 Nov 2003
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Southampton, UK
I was reading this article on BBC News http://www.bbc.co.uk/news/health-11780938

I really do admire this guy's strength of character. He's had the determination to push himself to do things that must have been terrifying at the time. Being constantly self conscious must be mentally exhausting. He's done rather well in the girlfriend department too.

I can't say I'd have the courage to be in the same place as he is. Do you think you would?
 
Read this earlier. Would take some willpower to face the challenges head on.

My first reaction was also that he has done well with the missus!
 
Just read it as well, very inspirational considering I'm self conscious about the way I look. I will watch it tonight, hopefully it'll give me a boost! :p
 
A man with some great inner strength who needs to be applauded for the conquering of his disorder. Very thought provoking and inspiring.

I wonder how many of us would be able to overcome many of the hurdles he has faced. I doubt whether I would and maybe I’ll think twice when I look in the mirror and complain about how I look.
 
I saw this advertised in the middle of family guy and was instantly taken away, ill be watching it tonight BBC3 at nine if anyone else is interested.
 
My Hat comes off to Him, very touching and I'm glad he has managed to get somewhere in his life and not allowed the condition to take over leading a normal life.
 
What I don't get is that he has the option of reconstructive surgery, yet he doesn't take it because that's how "god made him"? What is that all about? If I could do something to genuinely improve a serious physical defect of mine I would.

It's the equivalent of saying that because you are born without a hand (or get one blown up in war) you shouldn't have a prosthetic one because it's "god's will".
 
What I don't get is that he has the option of reconstructive surgery, yet he doesn't take it because that's how "god made him"? What is that all about? If I could do something to genuinely improve a serious physical defect of mine I would.

It's the equivalent of saying that because you are born without a hand (or get one blown up in war) you shouldn't have a prosthetic one because it's "god's will".

I suppose after going for going so long looking like he does, he's got used to being comfortable with what he looks like. When you get to that point of acceptance, why go through the pain and dangers of surgery?
 
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