Treacher Collins syndrome

I don't understand why people are so quick to attack the parents. I'm not familiar with this disease but perhaps it results in the person needing specialist care (at least whilst they are young) and the parents perhaps felt that they weren't able to offer this so by allowing someone else to take him on, who could offer this care, it would result in the guy having a better upbringing.
If such is true, you could praise the parents.
 
I don't understand why people are so quick to attack the parents. I'm not familiar with this disease but perhaps it results in the person needing specialist care (at least whilst they are young) and the parents perhaps felt that they weren't able to offer this so by allowing someone else to take him on, who could offer this care, it would result in the guy having a better upbringing.
If such is true, you could praise the parents.


Yeah but 36hours isn't much time to know what his care would be like.
 
I don't understand why people are so quick to attack the parents. I'm not familiar with this disease but perhaps it results in the person needing specialist care (at least whilst they are young) and the parents perhaps felt that they weren't able to offer this so by allowing someone else to take him on, who could offer this care, it would result in the guy having a better upbringing.
If such is true, you could praise the parents.

I see your point, but I'm not sure I could give up my child like that.
 
Fair play for working at a bar, good way to boost his confidence as people are bound to talk to him about it, instead of talking behind his back etc

When you have a condition or problem, it's far nicer to explain to someone than having them do the guesswork. I know this first hand
 
I suppose after going for going so long looking like he does, he's got used to being comfortable with what he looks like. When you get to that point of acceptance, why go through the pain and dangers of surgery?

I appreciate that as a potential asnwer, but that's not how the guy phrased it. He mentioned that he has thought about having recon surgery many times but he decided against it because he thinks it's some sort of god's will. That's what buffles me.

But, obviously, congratulations to him for his strength and courage.
 
Top man. If I had half the spirit and conviction he has (as well as his GF!), I would be a proud man.

I can't see how anyone can judge the parents given nobody has any idea of the circumstances at the time. Rejecting him a second time is however hard to excuse.
 
I don't understand why people are so quick to attack the parents. I'm not familiar with this disease but perhaps it results in the person needing specialist care (at least whilst they are young) and the parents perhaps felt that they weren't able to offer this so by allowing someone else to take him on, who could offer this care, it would result in the guy having a better upbringing.
If such is true, you could praise the parents.

People don't look at things that way, sometimes the child is better off with parents who are willing and able to help and it looks like he's come out the other side happy and living life to the standard most would be happy with.
 
She's hot, high five to that man.

And shes obviously also really nice and not the usual stunning blond who is all into looks and nothing else.

"oooh no i just want a nice honest caring man"*


*must have lots of money, look like bradd pitt and have oiled 6pack or dont even come near me
 
It's interesting that he says he rather have people ask questions about his looks instead of trying to ignore it.

A friend of mine has a really ravaged face from being attacked by a dog when he was 8 and he always said that the rumours about how it happened and talking behind his back was the worst thing about it. He always wanted people to ask him instead.
 
Especially as they rejected him a second time.

That is what makes the story very sad, despite the strength he has shown to be where he is now. It's difficult to understand the mindset of the parents when they gave him away, but to reject him again later in life after they've had more children, is very sad.
 
upmost respect. must have been extremely traumatic for him the way his parents would have made him feel and his missus is not bad either! will be tuning in
 
I know the lad through a friend of a friend sort of thing and was telling the lads in TFU about him a while back.

Can't help but feel sorry for the guy in that clip though. Definitely has a lot of questions he wants answering.

/edit "know" is probably the wrong word. Met him would be more suitable :P
 
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i feel bad for him because of his parents. why would they not want to see him? if anything it's their fault he's the way he is. he puts on a brave front but this will just eat and eat away at him. i think it would've been nice if had met them, if anything for clarification that he doesn't need them in his life
 
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