Conditions which by their nature have known paths of predictable worsening that will inflict suffering on the person concerned and their family by default.
Or in these kids would you rather central line after central line be inserted, repeated cardiac and respiratory arrests, frequent seizures, extreme pain only controllable my massive sedation, multiple infections, repeated surgery, massive financial outlay, siblings and parents having to watch that lot for week on month and year towards an inevitable outcome. And suggest that is the moral and ethical choice to make ... really? A lot of the kids are like adults with MS etc and just want an end to it all once they can verbalise their feelings. And we should facilitate a humane strategy before it gets unbearable for people irrespective of their age. This is not about life it's about quality of life.