The NHS Summarry care record

Mynight said:
They know enough about my browsing habits some things have to be kept private. I don't believe everything should be monitized.
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The NHS knows when you're watching porn?

Why does everyone think targetted ads are bad? Would you rather a thousand ads about stuff you're not interested in, or three that you are?

Besides surely it breeched doctor patient confidentiality
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So now you're saying that the thing you're worried about can't happen. Which is probably right. So what's the issue again?
 
I'd rather none but I understand some sites rely on them to stay open so I suffer it on that basis.


Haha I worded that badly I meant google and the like know my browsing habits.

On the basis GP uploads records to database said records are apparantly available to various private companies. Said companies sell on data. Breech by proxy no?

If that is indeed unfounded guessing then I submit I'm wrong. However companies we "trust" have been caught out selling data before.
 
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Mynight said:
I'd rather none but I understand some sites rely on them to stay open so I suffer it on that basis.


Haha I worded that badly I meant google and the like know my browsing habits.
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And your bank/credit card company knows what you buy, where you shop, where that's located. Where you live, you income, all your contact details....

Companies know this stuff. The NHS knows this stuff. It's no great secret.
 
Ol!ver said:
Not really sure where to start with that. And I usually don't struggle pointing out such stuff!
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I work for the IT department, for the NHS in Stoke/Staffordshire, and the amount of times I've been asked nonchalantly by a random patient about how secure patient data is on laptops/computers is actually somewhat baffling.

Trying to convince people that the information is secure and isn't even on the laptop hard drive is sometimes a service I have to provide, haha. I don't blame people for not initially understanding, but they still don't believe me when I explain it to them.

And whilst selling on your data is a legitimate concern, not one that I'm particularly bothered about however, I don't see why the security of the information is still a problem for people who're deciding to opt out? Perhaps the NHS is at fault for not aptly divulging how safe the data is, but I assumed it was somewhat implied.
 
jahujames said:
I work for the IT department, for the NHS in Stoke/Staffordshire, and the amount of times I've been asked nonchalantly by a random patient about how secure patient data is on laptops/computers is actually somewhat baffling.

Trying to convince people that the information is secure and isn't even on the laptop hard drive is sometimes a service I have to provide, haha. I don't blame people for not initially understanding, but they still don't believe me when I explain it to them.

And whilst selling on your data is a legitimate concern, not one that I'm particularly bothered about however, I don't see why the security of the information is still a problem for people who're deciding to opt out? Perhaps the NHS is at fault for not aptly divulging how safe the data is, but I assumed it was somewhat implied--as it is with any amount of personal data, thanks to the Data Protection Act.
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I'm not telling you where I work, but I know exactly where all this data is being kept as well as how it's accessed.

As you say, it's certainly not on anyone's Dell notebook :D
 
Ol!ver said:
And your bank/credit card company knows what you buy, where you shop, where that's located. Where you live, you income, all your contact details....

Companies know this stuff. The NHS knows this stuff. It's no great secret.
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Indeed everything is tracked doesnt mean I have to like it. If I'm allowed to opt out and it prevents somthing from being used to advertise to me then I will.

I have a choice with the nhs and I can use proxy for the Internet. As for banks I'm pretty stuffed. Short of cash can't do much about it.
 
Ol!ver said:
I'm not telling you where I work, but I know exactly where all this data is being kept as well as how it's accessed.

As you say, it's certainly not on anyone's Dell notebook :D
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Dell laptops, man... it's all I see, day in day out. That being said, I have a new found respect for Dell products! :D
 
The amount of incidents that get recorded because notes are not available, is staggering.

It's a security risk, sure, but it will save time and if managed properly, could be a massive money and time saving.
 
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As someone with a chronic illness (Kidney failure, currently 2yrs post transplant) I find the idea of medical facilities anywhere being able to get hold of my vast records extremely appealing.
At this very second there is only one hospital in the UK that knows my full history, my past medications and ones that caused more problems than they solved.
The idea that I could be taken into any other hospital and there be a delay whilst the other hospital is called, that records need to be faxed or sent scares me something rotten.

Centrally accessible records is the only sensible way forward.
 
Dimple said:
I'm quite shocked because even here in backwards Stoke On Trent we have a system called CIS/Dashboard which shows all of the above information and then from there I can access online records such as ICM Results, Medisec, IPM, Medical Oncology, Cyberren, iCris, Syngo PACS, EDMS (Electronic Records Document System) and many more so these systems are already in place. Also be aware that not anybody can access the above systems unless they have been given permissions and for example out of 33 people in the department I'm the only person with access to all those systems.

I deal with Medical Records every day and all online records would be a million times better than the hand held patients records that accompany the patient and get easily lost. There is also the timeline problems that I encounter, for instance a current patient I'm working on has 4 sets of hospital notes that reach a height of 14". Because of how hospital staff are rushed it is very common for the latest patients journey to end up in all four volumes - a chart here, an A&E card there, a Nursing Book elsewhere and so on.

Some may ask why patients hand held records go missing - human error mostly.
Staff members track the wrong volume so for example volume 2 could have been tracked as volume 1 for months even though it says volume 1. After 3 years I've actually become quite expert at using our Filefast system to track down where errors were made but it's very time consuming. This story ended up in our local newspaper - http://www.stokesentinel.co.uk/Pati...g-University/story-19986169-detail/story.html

So tin foil hatters, it is my vast experience that putting all your records online would be of 100% benefit to you and I already know how locked down the access is to it.

I'm not even going to mention the difficulties of reading hand held records.
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Stoke doesn't sound like a bad place at all! In in the North of England and on my on-calls and in A&E all I have access to are old hospital discharge letters (which have been done by a house officer and mostly lack detail lol) old images/scans (via PACS) and old blood results. Which without the clinical context of co-morbidities/clinic letters, aren't all that helpful.

I'm all for going electronic with everything. I'm no IT person, but I can imagine it being a bit slow and jerky with everyone accessing a central database, and it will crash at some point i'm sure! But nothing is perfect! And everything in life has pros and cons. You base all your decisions based on risk.
 
prashantnew said:
Stoke doesn't sound like a bad place at all! In in the North of England and on my on-calls and in A&E all I have access to are old hospital discharge letters (which have been done by a house officer and mostly lack detail lol) old images/scans (via PACS) and old blood results. Which without the clinical context of co-morbidities/clinic letters, aren't all that helpful.
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I'm gobsmacked but lets go through the problems you face:

Old hospital discharge letters: We have old & up to date discharge letters on our IPM (old) and Medisec (new) systems. Also on those systems are A&E to GP Letters, Patient clinical letters and more.

Old images/scans on PACS: I can have PACS on and see Xrays going into the system in real time from several different sources but of course not all the reports will be going in immediately. Our PACS system started around March 2008 and all images before then were hard copies which are now destroyed unless it's children or mammograms. These are kept offsite and have to be requested.

Old blood results: As soon as the path lab does a test the results immediately go onto ICM and when I harvest a patients results they can go back 20 years or so. I always laugh when a GP says come back in 3 weeks because if they had access to ICM they would see the results the following or even same day.

Co-morbitities: As soon as I type a patients Unit number into Dashboard/CIS I immediately see a page of Co-morbidities and alerts, another click will show me A&E attendances (sometimes with the scanned cards), inpatient/outpatient journeys with a link to the clinical letters and loads of other data.

I thought we weren't all that up to date but you're in the dark ages :D
 
Just to point out, Doctors don't really care about your security, they take notes home about your operation and then chuck them (unshredded) in with the household waste.
 
stoofa said:
As someone with a chronic illness (Kidney failure, currently 2yrs post transplant) I find the idea of medical facilities anywhere being able to get hold of my vast records extremely appealing.
At this very second there is only one hospital in the UK that knows my full history, my past medications and ones that caused more problems than they solved.
The idea that I could be taken into any other hospital and there be a delay whilst the other hospital is called, that records need to be faxed or sent scares me something rotten.

Centrally accessible records is the only sensible way forward.
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I work in patient services for GP surgeries across three counties. I cannot agree more with this statement. The number of occasions where records take over a year to get from one place to another is astonishing. Also, records are often lost altogether.

This system is badly needed.
 
Dimple said:
Sauce?
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Seen it.

/

The DVLA and Insurers can already (forcibly) request your medical records and as you can't say no to these organisations then they are pretty much open to anyone.

I'd like to know what security these people have when it comes to handling the data that the NHS provide. Security with one weak link is no security.
 
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