Dear God No Part 2

Thanks again everyone. I seem to be leaning more towards fighting insofar as I've been running through the logistics of being away for 6 weeks - that, for some reason, feels like positive action! Timing, though, is not great. I would likely be away from the beginning of April. Number 2 son is in his GCSE year and the thought of me being away for his main revision period and the first bit of exams muddies the waters a bit.
 
Good luck and thanks for sharing your story.

I have a question, feel free to ignore... but do you have any symptoms (either something that shows in your mouth/throat area, or 'feeling' ie pain e tc) that bought upon your diagnosis?
 
I wish you all the strength & power you need friend. You are very brave, many people would just wilt and wither at hearing things like this but from the style of your post you are not letting it get you down.

Wish you the best, as others have said...fight on & fight hard.
 
mlbtheshow said:
Good luck and thanks for sharing your story.

I have a question, feel free to ignore... but do you have any symptoms (either something that shows in your mouth/throat area, or 'feeling' ie pain e tc) that bought upon your diagnosis?
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I should have mentioned more about this but I was incredibly fortunate. It was the urology consultant who picked up on a couple of things. I spoke to him after my diagnosis and he explained that he saw in me indicators that had been present with his brother who, sadly, died from a similar cancer. Amazingly, all he noticed was that I had lost a fair bit weight since he had seen me last, I had a persistent cough, bad breath and when I stuck my tongue out it deviated to the left (not that I noticed, though). These together prompted him to act. Nothing was obvious looking into my mouth in a mirror and, other than a bit of a sore throat and perhaps slight difficulty in swallowing things, there were no obvious pains.
 
DanielMMS said:
Thanks again everyone. I seem to be leaning more towards fighting insofar as I've been running through the logistics of being away for 6 weeks - that, for some reason, feels like positive action! Timing, though, is not great. I would likely be away from the beginning of April. Number 2 son is in his GCSE year and the thought of me being away for his main revision period and the first bit of exams muddies the waters a bit.
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I don't have children so perhaps can't comment, but my thoughts on the subject would be that firstly if he's revising for his exams having you around whilst not being well might be an even worse distraction, and secondly it's far more important that you get fit and well so you can spend your life with him!

I've not really got anything to offer, but if you ever want to chat feel free to trust me. My extensive knowledge of the members market perhaps ;)?
 
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DanielMMS said:
I should have mentioned more about this but I was incredibly fortunate. It was the urology consultant who picked up on a couple of things. I spoke to him after my diagnosis and he explained that he saw in me indicators that had been present with his brother who, sadly, died from a similar cancer. Amazingly, all he noticed was that I had lost a fair bit weight since he had seen me last, I had a persistent cough, bad breath and when I stuck my tongue out it deviated to the left (not that I noticed, though). These together prompted him to act. Nothing was obvious looking into my mouth in a mirror and, other than a bit of a sore throat and perhaps slight difficulty in swallowing things, there were no obvious pains.
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I'm sure this will have a happy outcome, stay positive DanielMMS and don't let the *******s grind you down!
 
I have nothing but utter admiration for the bravery you are displaying.

I would hope if I were to suffer similar news I'd be able to have it within me to tackle it with half of the nerve and courage that you have.

Fair ****ing play to you, hope you beat the crap out of this.
 
RaMDOM said:
I really feel for you; that is some curve ball! I wish you all the best at beating this thing. My prayers are with you.

On a more clinical note; there was an article in yesterdays Metro about a guy who beat 70 odd tumours which were a rare form of Non-Hodgkins Lymphoma using a new drug. Ahh my google-fu skills do not escape me; called Brentuximab Vedotin. Found article here:
http://www.dailymail.co.uk/health/article-2567455/Cancer-patients-lethal-70-tumours-disappear-just-two-WEEKS-thanks-pioneering-treatment.html

Might be worth asking your consultant about. They most likely would have thought of it, but never hurts to ask.
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Hes got a kerotising form of squamal cell carcinoma so that drug simply won't work on it. To the OP, if it was me in your position, I'd take the chemo as soon as possible as poorly differentiated tumours are renown for being invasive.
 
I have no idea if this information will be relevant to your type of cancer, but I believe informing oneself is a powerful weapon fighting this disease.

My father was diagnosed with 2 tumours in the bowel during an operation, they removed them and then found more in his stomach, which they could not operate on. Post surgery he was told there was nothing they could do and that he was going to die. We refused to believe the diagnosis and the research began, we put him on juiced apples/ginger/turmeric, 3 times per day, he slept with an infra red blanket on his stomach.

A further appointment with the Professor who went on to deal with his case resulted in chemo, around 8 sessions at Hospital, and the pills at home. He finished chemo around Jan 2013 and has completely regained his strength, back to his old self, physically working everyday on our farm. He is currently in remission, he gets the apple/ginger/turmeric everyday also soursop tea and soursop juice. The ginger also helped him during chemo treatment, he never lost his appetite and it settled the stomach.

I make no magic remedy claims, only that it worked for us, if you require any more information please ask away. Best of luck in your fight.
 
I wish you all the best and that you find that slim chance of survival hold onto it and run as far as you can.

I unfortunately lost my dad to cancer 8 months ago after battling Lung cancer for 2 years and he faught the illness right to the end with such grace and dignity and even though it wasn't a positive outcome I am sure he would have taken the same path again had he have too.

My thoughts are not only with you but your family aswell. Good luck x
 
I don't really know what to say Daniel.

Firstly, I really am so sorry to hear that you are where you find yourself. I know it may not count for much, but I am.

Secondly, the prognosis bit is incredibly hard reading and I can't begin to emphasise with your situation. It makes me feel numb just trying to imagine what you're going through.

All I can really say Daniel, is I really genuinely hope you get through this and we can laugh about it in the future.

It's not over until it's over mate. Fight it with everything you've got.
 
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