Fibromyalgia

AHarvey

AHarvey

AHarvey

Soldato
Joined
6 Mar 2008
Posts
10,085
Location
Stoke area
NOT Fibromyalgia, Arthritis :(

**NOT looking for medical advice**

**UPDATE: Doctor believes it is Psoriatic Arthritis **

Hi all,

Just wondering if people have any experience of dealing with fibromyalgia, either first or second hand?

For 14 years i've had pains in my knee's and terrible headaches that can last several days. Sometimes I have problems concentrating and feel foggy, I lose words too like people's names. Been to the doctors with each one individually and they've been no help.

The last 3 years I've had all over body pain the same as the knee pain, lasts 6-7 months then eases off. Had another flair up 3 weeks ago and had to have time off work with it. Doctor has actually referred me but thinks it's Fibromyalgia.

How do you find dealing with it day to day?
 
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Hikari Kisugi said:
Have you ever suffered from depression? Out of interest.
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Never diagnosed with it, had low periods in the past where my wife thought I was. I'm an odd person though, I can be totally compassionate at times, and others, I just don't care and remove all emotion from decisions and events.

:)
 
Yep, my mum had it. I know very little about it other than the medication she was on gave her horrific cramps at night but she had a lot of other things wrong with her that also contributed.
 
Why don't you wait until you've seen the specialist before you decide this is what you have. I could think of plenty of other diagnosis, that are maybe even more likely, that this could be. Always better to wait eh and find out what you are battling before preparing yourself for any particular battle!
 
My wife has fibromyalgia. Right pain in the you know where. A social friend who is a doc doesn't believe it exists and people should be sent to a psychiatrist (avove comment about depression links to this). Prepare for aggro about explaining what it is, after a long list of other checks to remove them as possibilities. Find a good specialist and stick to them like glue and do as they say!
 
The symptoms are very very similar to Lyme disease.. You don't recall being bitten by any ticks do you? Doctors seem very quick to diagnose CFS/Fibromyalgia instead of investigating the possibility of Lyme. A lot don't even seem to be aware of Lyme!
 
Yep i've got it. Well M.E but i have muscle and joint pains all over my body constantly, i feel like i've only had about 3 hours sleep after a goods night sleep, my head feels like it's in a daze like i'm daydreaming and my memory has gotten terrible. The people who don't believe it's real including doctors can **** off for all i care. I'd give anything to be healthy as it just restricts everything in my life and it's only getting worse by the year.
 
Xordium said:
Why don't you wait until you've seen the specialist before you decide this is what you have. I could think of plenty of other diagnosis, that are maybe even more likely, that this could be. Always better to wait eh and find out what you are battling before preparing yourself for any particular battle!
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Because I'm aware it's not curable and I've just been research diet/exercises that can help, just in case. I'd rather make the changes now to see if it helps than wait weeks for an appointment, or longer to then have to change diet etc :) I'm not saying i've definitely got it, but there's never any harm doing some research just in case :)

Street said:
The symptoms are very very similar to Lyme disease.. You don't recall being bitten by any ticks do you? Doctors seem very quick to diagnose CFS/Fibromyalgia instead of investigating the possibility of Lyme. A lot don't even seem to be aware of Lyme!
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tbh I first started with this pain so long ago I can't remember but I don't ever recall having to have a tick removed.

Fiocca said:
Yep i've got it. Well M.E but i have muscle and joint pains all over my body constantly, i feel like i've only had about 3 hours sleep after a goods night sleep, my head feels like it's in a daze like i'm daydreaming and my memory has gotten terrible. The people who don't believe it's real including doctors can **** off for all i care. I'd give anything to be healthy as it just restricts everything in my life and it's only getting worse by the year.
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Yep, I have clear moment when I can focus and get so much done, then days like today where I managed to cook a pizza from the supermarket with the foam underneath..brain just isn't there.
 
Most frustrating thing is nobody knows what causes it and how to cure it. The pacing ect just doesn't work for me and i've tried several different tablets which do nothing. I'm only 31 but i feel like an unhealthy 70 year old, wouldn't surprise me if i'm dead by 50 as i can't exercise or anything.
 
My children's grandmother on their mothers side has it and both my outgoing tenants have it, mother and daughter.

It does seem to be one of those illnesses that people either believe in or it's one of those modern illnesses typically contracted by the lower classes and the work shy.

I've known the grandmother to walk all day round a family park and the following week not be able to move. It is strange how it comes and goes without any rhyme or reasons. I think this is where it has developed its notoriety as it's hard to believe the changes in sufferers.

Whether it's physical or in the mind I've no idea but it's not much fun from what I've seen with those who suffer from it.

stopper said:
You can thank Dupont for making the number 1 treatment, for this condition, illegal.
LMDDGTFY
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It may help as part of a palliative care program for long term illness but it's not the magic bullet some believe it is. There is also no mass conspiracy by drug companies.
 
EddScott said:
I've known the grandmother to walk all day round a family park and the following week not be able to move. It is strange how it comes and goes without any rhyme or reasons. I think this is where it has developed its notoriety as it's hard to believe the changes in sufferers.

Whether it's physical or in the mind I've no idea but it's not much fun from what I've seen with those who suffer from it.
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Well i can do things but for example, if you and i both held a bag of sugar in one hand arm stretched for as long as possible i would be in pain within seconds but i can do it. It would feel like the pain you will have after holding it as long as you can. Afterwards though my arm would ache but recover and seem okayish but the next day i would feel it. It's almost a delayed reaction.

I did half an hour of weeding in the garden a few months back and although it hurt like hell at the time the pain eased off after. The next day my legs felt like they were really stiff/i had pulled muscles and i could hardly walk for the week, just for half an hour of work! Also i moved house last week, for 3 days i was carrying heavy loads/furniture backwards and forwards and just ploughed on through as it needed to be done. The whole of this week though i have been in constant pain all over my body and i still haven't recovered.

It is def not in my head, although i do think it is a neurological disorder of some kind.
 
I have had the diagnosis for a couple of years and symptoms for about 5 years. After the diagnosis I developed serious depression because I realised the fact I wasn't going to get better. I wasn't prepared for the diagnosis and had never heard of it before so it was a bit of a shock.

It a total nightmare and as I have to work full time, I can't take any medication as it makes me ultra sleepy.
 
Well i suffer from mild depression and i think it is caused by the fact that i always feel ill. Only way i can describe my mood to people without it is when you have a really bad cold and you're quite apathetic to things in general, thats the sort of mood i'm in most days because of it.

I work full time also and it's hard to go everyday. Also my wife is 5 months pregnant and before she got pregnant i was against having a child, not because i didn't want one but because i'm scared of how i'm going to cope as i struggle day to day and i won't be able to run around a park playing ect but then i have to think that there are other people who are in wheelchairs ect that manage with kids so i should be okay.

Just a frustrating illness all round.
 
Cut out wheat and all gluten pasta etc and i mean everything for 4 weeks at least - no bread, breadcrumbs pasta sausages pizza ....anything with grains. Cut out all junk food and especially sugar and soft drinks.

Take protein bars, protein shakes twice a day and seriously up your fruit and veg intake for braekfast dinner and snacks.

Look up the correlation between protein and fibro.
 
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