Child born with Harlequin ichthyosis

cheesyboy · 24 Jan 2017 at 09:35

CAPS_LOCK said:
'happens due to an acute case of malnutrition'. - The mother has to take responsibility she should have eaten properly.

The Mirror's high reporting standards mixing up Acquired Ichthyosis, a relatively minor skin disorder affecting adults, with Harlequin Ichthyosis - the condition the baby in the story is suffering.

Minstadave · 24 Jan 2017 at 09:43

cheesyboy said:
The Mirror's high reporting standards mixing up Acquired Ichthyosis, a relatively minor skin disorder affecting adults, with Harlequin Ichthyosis - the condition the baby in the story is suffering.

Absolutely terrible journalism.

Rilot · 24 Jan 2017 at 09:46

robj20 said:
It was the title of the newspaper article. Go hug a tree.

robj20 said:
Thanks for asking me.

I don't need to ask you. I am a moderator of this forum and will change inflammatory or inappropriate or inaccurate thread titles as I see fit.

You need to calm down a bit.

Cleisthenes · 24 Jan 2017 at 09:49

This is pretty horrendous, that poor child.

Terrible reporting and click bait are pretty shameful for something as sad as this.

Maccy · 24 Jan 2017 at 09:51

Rossi~ said:
That doesn't mean we should stoop to the cretinous level of The Mirror.

Agreed. Also suggesting 'the incinerator' is rather distasteful.

MikeTheNative · 24 Jan 2017 at 09:57

Minstadave said:
Absolutely terrible journalism.

From the Mirror? I don't believe it.

Spuj · 24 Jan 2017 at 09:58

Poor Poor child, truly horrific. Those pictures are difficult to look at

Dis86 · 24 Jan 2017 at 10:11

Awful condition but I believe it can be lived with. Poor kid. Hopefully she'll receive the care she needs.
As minsta has said, it's genetic not environmental.

Rilot, spot on.

Tefal · 24 Jan 2017 at 10:14

I find it disturbing the mirror even turned "deformity" into a hyper link linking to dozens of "freakshow" stories they run.

But it says the kid has a less rhan 1 in 10 million chance of survival and it will never have a reall life

Surely this is a case where a dignified end is best. High dose of sedative etc

Sankari · 24 Jan 2017 at 10:19

robj20 said:
It was the title of the newspaper article. Go hug a tree.

It was a Daily Mail title. In cases like this, you change it as a matter of principle.

Minstadave · 24 Jan 2017 at 10:20

Tefal said:
Surely this is a case where a dignified end is best. High dose of sedative etc

Yeah that's still murder in the UK.

andicole0 · 24 Jan 2017 at 10:27

There's a 23 yo US women with this condition who has had two 'normal' children. The baby should be given a chance.
Andi.

SlugForAButt · 24 Jan 2017 at 10:27

As a Father and Grandfather that really has upset me. That is simply a baby laying there crying and wanting love while a room full of people point cameras and generally scare the poor mite. Doesn't anyone care that this is a poor innocent baby that has as much right to life and to be loved as you and me? Or are we still at the stage where we drown disabled and disfigured children at birth as the OP suggested?

The OP is just being a keyboard warrior, he wouldn't say crass things like that to random people in RL, it would get physical pretty quickly. Believe me.

b0redj0rd · 24 Jan 2017 at 10:32

That is horrific. Poor thing

EddScott · 24 Jan 2017 at 10:32

andicole0 said:
The baby should be given a chance.

This.

Not many things make me cry.

Steedie · 24 Jan 2017 at 11:10

Poor thing

I really hope they find a loving home for her, as clearly where the baby is now, she's not going to get that

Quite upsetting

Efour · 24 Jan 2017 at 11:16

Tough break, poor little sod.
If it were in the UK I'd give it a chance at living a while but it's India so bad news for the poor bugger.

Actually as cruel as it sounds I doubt they would have got that far in pregnancy in the UK I'm sure the babies problems would been identified early.

Terrible shame.

dowie · 24 Jan 2017 at 11:17

So a crowd of people turn up at the hospital to go and have a look as though this is a freak show and the medical staff discharge the poor kid to parents who don't exactly seem like they're going to give it great care.

Pretty ****ed up tbh...

nick.lidgett · 24 Jan 2017 at 11:28

Stories like this dont usually phase me but we are expecting our first child in August and this has really bothered me and the way its been reported is absolute filth.

robj20 · 24 Jan 2017 at 11:31

SlugForAButt said:
As a Father and Grandfather that really has upset me. That is simply a baby laying there crying and wanting love while a room full of people point cameras and generally scare the poor mite. Doesn't anyone care that this is a poor innocent baby that has as much right to life and to be loved as you and me? Or are we still at the stage where we drown disabled and disfigured children at birth as the OP suggested?

The OP is just being a keyboard warrior, he wouldn't say crass things like that to random people in RL, it would get physical pretty quickly. Believe me.

I will say it to anyone's face, it's my opinion I couldn't care less that a lot of other people disagree with me.
It's something i feel strongly about I wouldn't want anything like this for my children.