Child born with Harlequin ichthyosis

cheesyboy · 24 Jan 2017 at 11:37

robj20 said:
I will say it to anyone's face, it's my opinion I couldn't care less that a lot of other people disagree with me.
It's something i feel strongly about I wouldn't want anything like this for my children.

You strongly feel that if you had a severely disabled and life-limited baby that you'd want it thrown in the incinerator?

DrToffnar · 24 Jan 2017 at 11:40

cheesyboy said:
You strongly feel that if you had a severely disabled and life-limited baby that you'd want it thrown in the incinerator?

Not what they're saying at all.

nick.lidgett · 24 Jan 2017 at 11:41

robj20 said:
I will say it to anyone's face, it's my opinion I couldn't care less that a lot of other people disagree with me.
It's something i feel strongly about I wouldn't want anything like this for my children.

Congratulations on stating the obvious, I mean who would? Who would want anyone to suffer from this condition?

Maverick2332 · 24 Jan 2017 at 11:42

DrToffnar said:
Not what they're saying at all.

Read the OP.

robj20 said:
The incinerator would be my choice.

DrToffnar · 24 Jan 2017 at 11:50

Maverick2332 said:
Read the OP.

Ahhh my apologies, didn't realise it was the same dude. That is indeed totally inappropriate language to be using.

What's the procedure in regards to Antenatal care and termination here? I suppose it's not like screening for downs syndrome where there are specific tests required and even they can't be 100% accurate.

I don't know where to stand on this one :/ Poor little thing.

robj20 · 24 Jan 2017 at 11:51

nick.lidgett said:
Congratulations on stating the obvious, I mean who would? Who would want anyone to suffer from this condition?

The way some people go on how it makes no difference, they would. Or would they, I think people are very hypocritical about these short of things. Very accepting when it's someone else but if it was them, things might be very different.

cheesyboy said:
You strongly feel that if you had a severely disabled and life-limited baby that you'd want it thrown in the incinerator?

Not necessarily but it wouldn't be coming home with me.

DrToffnar · 24 Jan 2017 at 11:53

robj20 said:
The way some people go on how it makes no difference, they would. Or would they, I think people are very hypocritical about these short of things. Very accepting when it's someone else but if it was them, things might be very different.

Yeah that's true, it's easy to judge from a distance.

opethdisciple · 24 Jan 2017 at 11:56

To be honest that's probably one of the genuinely scariest things I've seen for a long time! :eek:

Poor little thing. But what is its prognosis for quality of life moving forward?

robj20 · 24 Jan 2017 at 11:59

DrToffnar said:
Yeah that's true, it's easy to judge from a distance.

This is what I'm on about, I'm fine with other people wanting to bring them up. But if a parent doesn't want to it shouldn't be forced on them. As is the case with the article the mum is refusing to feed it.
I couldn't and don't want to. At the end of the day we're animals, any other animal on this planet would just walk away. Some things are worse than others, but this seems a bit extreme.

Rids · 24 Jan 2017 at 12:00

Poor kid.

I have never heard of this before, I hope there is no suffering and they can grow to be healthy and achieve a good standard of life.

nick.lidgett · 24 Jan 2017 at 12:06

robj20 said:
Not necessarily but it wouldn't be coming home with me.

There is something very wrong in your tiny, under developed brain.

Maybe your parents feel that way about you.

If somebody needs to go in an incinerator its you.

DrToffnar · 24 Jan 2017 at 12:07

Now, now ladies.

hurfdurf · 24 Jan 2017 at 12:11

Maccy said:
Agreed. Also suggesting 'the incinerator' is rather distasteful.

I think non viable fetus and therefore a crematorium is the correct language.

ThePainBarrier · 24 Jan 2017 at 12:12

I actually had my sandwich in one hand when I clicked that link.
Wondered why they were showing pictures of a kebab then realised what it was...

SuperBOB · 24 Jan 2017 at 12:15

Poor little dude :-(

nick.lidgett · 24 Jan 2017 at 12:16

hurfdurf said:
I think non viable fetus and therefore a crematorium is the correct language.

But the poor kid isnt a feotus, its a baby.

Now we can all argue over when a baby develops consciousness and becomes self aware until the cows come home but the fact is the baby has been born and suggesting to throw it in an incinerator is vile.

Freefaller · 24 Jan 2017 at 12:16

This thread is going nowhere and to be honest has some rather distasteful comments in it.

Grow up people.