Bambino G is a respectable hospital and has offered to try to treat Alfie.
I'm not sure you understand his state. He has no brain activity. Not sleeping, not in a coma.
There is a body and no one is home. No one will ever be home in future.
It doesn't matter that his issue has no specific name (due to rarity) because the brain damage is so massive there is no recovery.
In simple terms, the vast majority of white matter in Alfie’s brain has been wiped out.
Doctors say Alfie has suffered significant brain damage because of a progressive, degenerative condition that has left his brain mostly as water and spinal fluid.
... “destructive” changes have destroyed the pathways which regulate the vital “control structure” in the brain - responsible for processing any information, from touch to sound to taste to smell.
Experts say it has also affected the area responsible for being awake and responsive.
The most recent scan referred to in court showed that only around 30% of the white matter, “or perhaps less”, remained in Alfie’s brain.
An epilepsy expert said [more recent] EEGs showed there was now “nothing happening” in terms of Alfie’s brainwaves between seizures.
She said this showed the cortex of his brain was not functioning other than to produce seizures.
The cortex is behind many of our key bodily functions, including thinking and awareness.
Doctors who gave evidence during the court case said Alfie’s brain had continued to deteriorate and his underlying neurological, degenerative disease had progressed.
They said they did not believe there was any chance of recovery.
Alfie’s dad Tom has questioned whether nerve cells in his brain could recover if the destructive process slows down.
But experts told the court case brain tissue cannot regenerate and once nerve cells are destroyed, they are gone.
Alder Hey witness Dr A said in his opinion the areas of Alfie’s brain showing some function will stop functioning and will not improve.
And this is what encourages thinking that there's someone there, reactions:
Alfie’s family see videos of him appearing to respond to touch as vital evidence that his life support must not be removed.
Experts called by Alder Hey say these are “reflex” movements in response to stimulation.
One, who can be referred to only as Dr A, said these involuntary responses were generated by brain stem tissue and can happen any time as an “auto-pilot response”.
Source:
https://www.liverpoolecho.co.uk/new...0.1300256286.1524581959-2117500552.1524581958
Any treatment anyone anywhere can offer is to keep his body alive
for the benefit of the parents at least until they accept the situation or the brain damage finally kills the body.
That is extremely bad medicine as it is not
for the benefit of the patient and doctors here want nothing to do with that.
The court agrees there is
nothing to gain for the patient with any treatment and will not allow this to by bypassed.