Project - Charity Build- Narcolepsy UK

Hostile-17 · 1 Jun 2012 at 14:29

Looking forward to this build. Great idea and great cause also!

subd!!

kerrgreg · 3 Jun 2012 at 10:58

Wow really impressive work here! Both from you guys and the community!

Defiantly deserves a bump!

glent · 3 Jun 2012 at 20:29

Hostile-17 said:
Looking forward to this build. Great idea and great cause also!

subd!!

Thanks its really coming together now.

kerrgreg said:
Wow really impressive work here! Both from you guys and the community!

Defiantly deserves a bump!

Thanks, it really is

oh yeah new boxes...

We've had some huge news in the last few days, we hope with a week or two we can announce the full specs for the second build.

The donation page is up and we welcome anything you can.

http://uk.virginmoneygiving.com/ConnorsBuild

T&C's

Eligible locations.

1. Due the cost of shipping and risk of lost package. The competition is open to UK only.

How to enter.

1.A donation must me made to Connors page in order to entered. Please follow to link

http://uk.virginmoneygiving.com/ConnorsBuild

2.There is no minimum or suggested donation amount. What ever you can donate is most welcome.

3.Multiple donations form a single email address will not improve chances of winning.

4.You must use an active and valid email address to process the donation. Also we will use this for contacting the winner.(s)

5.There is an option to leave a comment when donating. This must be used if the following is applicable

a. You wish to donate but not to be included in the draw. Please state this in the comment box.

b. Secondary contact method. Please state your user-name and forum

6. Any problems with your donation or the website please contact them directly.

http://uk.virginmoneygiving.com/giving/help-guides/

Draw date and announcement

1.The current draw date is set 31 August 2012. However due to the nature of Connors conditions this could be delayed.

2. The winner (s) will be contacted via email/forum PM before a public accoutrement is made.

3.The winner (s) will have 14 days to reply to the email to claim their prize and arrange shipment.

4.If no reply is received after 14 days . Another winner(s) will be drawn and so on.

Shipment

The prize will be shipped at our cost via our preferred method. Unless.

a. Collection can be arranged. (pick up)

b. The winner has a specific shipping method and covers any additional costs.

2. Any cost incurred due to failed delivery attempts etc must be paid by the winner(s)

Warranty

Due to the nature of this project. We can not offer any warranty.

Operation system.(Microsoft windows)

1 At this time we do not have the funds to purchase an operation system . The winner will be responsible to install the operation system and drivers.

T345 · 3 Jun 2012 at 20:38

I will be sure to donate

CaptainRAVE · 3 Jun 2012 at 20:47

Good luck, will be watching this closely. My dad has narcolepsy. Will donate now.

T345 · 4 Jun 2012 at 14:11

How do I cut a window in an Antec One?

skylineboy · 5 Jun 2012 at 15:09

donated! Good luck with this boys!

glent · 6 Jun 2012 at 16:42

T345 said:
I will be sure to donate

Thanks!

CaptainRAVE said:
Good luck, will be watching this closely. My dad has narcolepsy. Will donate now.

Thanks and good luck!

skylineboy said:
donated! Good luck with this boys!

Best of luck!

HUGE Thank you to our latest sponsors..

&

much more coming..

T345 · 6 Jun 2012 at 16:46

OMG!!!
What is that golden board!

CaptainRAVE · 6 Jun 2012 at 17:05

Finally got around to donating, wish it could have been more. Good luck with your target, it is for a very good cause

glent · 6 Jun 2012 at 17:29

T345 said:
OMG!!!
What is that golden board!

Indeed! it is this

We plan to unbox it tonight and take some shots of it including the accessories etc. Pending if Connor is feeling better

CaptainRAVE said:
Finally got around to donating, wish it could have been more. Good luck with your target, it is for a very good cause

Thank every donation counts

good luck!

T345 · 6 Jun 2012 at 18:07

Nice!
I will donate when I have more than £1 in paypal

~bones~ · 6 Jun 2012 at 22:34

That board looks amazing!!... and im sure it will stay nice and cool with the amount of fans you have

.... will donate on pay day, good luck with hitting the target

glent · 7 Jun 2012 at 11:20

T345 said:
Nice!
I will donate when I have more than £1 in paypal

Thanks

~bones~ said:
That board looks amazing!!... and im sure it will stay nice and cool with the amount of fans you have .... will donate on pay day, good luck with hitting the target

The board is epic..it just is... hope we smash that target!

Thanks to our new sponsors!

16GB DDR 3 Crucial ballistix!

&

Corsair Hydro H80 and Force GT 120GB SDD!

Connors really not doing to well today so no work photos yet, The final pieces for build two should be here soon, We'll get to work asap.

Huge thanks for all the support guys, pardon the cliché but this means so much to him!

T345 · 7 Jun 2012 at 11:33

WOOOP!!! Can't wait till I see the finished product

Greavesy · 7 Jun 2012 at 14:25

Will definately be donating

Where was your son when we were trying to think of fundraising ideas at school xD

Stoner81 · 7 Jun 2012 at 14:45

Holy major thread update Batman! That is some seriously good kit you guys have got there! A bit shout out of propz to Corsair and Crucial... hell everybody involved this is beyond epic!

Will see what I can sort of for a donation though it might not be much I'm afraid

Stoner81.

CaptainRAVE · 7 Jun 2012 at 16:36

You guys have done a great job getting sponsors on board. Connor looks happy

It really is crazy that we have very little to treat narcolepsy. My dad had the old Dexedrine treatment - one of the few drugs that shows any kind of benefit, but sadly it destroyed his life and him as a person with all of the side effects

. We always hear of these amazing treatments being worked on, but we never see them - mainly because a number of the treatments discovered could never be allowed to enter the public domain.

Anyways, keep us updated

MatsyLR · 7 Jun 2012 at 16:37

Damm....connor looks so happy!

glent · 7 Jun 2012 at 18:20

T345 said:
WOOOP!!! Can't wait till I see the finished product

Hehe neither can I.

Greavesy said:
Will definately be donating
Where was your son when we were trying to think of fundraising ideas at school xD

Thanks for that and best of luck

heh smart kid no doubt.

Stoner81 said:
Holy major thread update Batman! That is some seriously good kit you guys have got there! A bit shout out of propz to Corsair and Crucial... hell everybody involved this is beyond epic!

Will see what I can sort of for a donation though it might not be much I'm afraid

Stoner81.

Agreed, the kit sent so far is epic! Don't worry about donation amount friend, it all adds up

CaptainRAVE said:
You guys have done a great job getting sponsors on board. Connor looks happy

It really is crazy that we have very little to treat narcolepsy. My dad had the old Dexedrine treatment - one of the few drugs that shows any kind of benefit, but sadly it destroyed his life and him as a person with all of the side effects . We always hear of these amazing treatments being worked on, but we never see them - mainly because a number of the treatments discovered could never be allowed to enter the public domain.

Anyways, keep us updated

Sorry to hear that friend, It is a shame their is so little research or effective medications yet. Side effects of the many combinations Connor has tried have been to much for him. He was fairly stable a few week ago after his meds were changed.
Lately Cataplexy has been a big problem , he tended to have a few episodes a week, Yesterday he about 30 episodes -very difficult for him as where walking through our main town. I had to catch him and help him up from the ground again,again.

Moments like that get him down. We'll be seeing his GP soon and hopefully another chang to meds will get him back on track.

You can visibly tell how tired he is lately from our latest photos, I asked if he was comfortable with the photos, He said "Dad , isn't the whole point to show what I have?" That's a damn mature thing to say

MatsyLR said:
Damm....connor looks so happy!

Sure is!

We've done an interview with our local media today, I'll link to it when it's published.

Finally, We're trying to generate a bit of buzz via Twitter, I'll be honest it baffles me!
If you Twitters uses feel like helping out a little please share a tweet with the following hashtag and link.

#NarcolepsyUK http://bit.ly/Lv4DsL

Props to OCUK for the RT recently!