Crohns / ulcerative colitis sufferers

ColdAsIce · 17 Feb 2016 at 12:17

Potentially good news if this trial is a success

Possible Vaccine

So many of us usually have similar issues as children with Dairy products so this news doesn't really surprise me.

Fingers crossed things go well with the trial in London.

DB_SamX · 17 Feb 2016 at 12:22

Excellent news but as a long term sufferer, feels to good to be true, despite the fact it's still very early days.

dowie · 17 Feb 2016 at 12:24

yeah I've read about this before, anti-MAP treatment is already available in the form of antibiotics though is only temporary a vaccine such as this one could be an actual cure... (assuming they are correct in their hypothesis that MAP is the cause)

Sliver · 17 Feb 2016 at 12:25

Snooker player Ali Carter has Crohn’s disease, so I'm sure he'll be pleased about this. He had a bad turn with it last year, was quite ill.

Thekwango · 17 Feb 2016 at 12:40

DB_SamX said:
Excellent news but as a long term sufferer, feels to good to be true, despite the fact it's still very early days.

same boat as yourself, UC sufferer for about 15 years or so now. will wait a bit before getting too excited.

Muban · 17 Feb 2016 at 17:36

Interesting to see how this goes. My sister has suffered with ulcerative colitis for the best part of 30 years.

Maccapacca · 17 Feb 2016 at 17:57

Lying here in crippling colon cramps and pain do they need a volunteer?

dowie · 17 Feb 2016 at 17:58

Was wondering about that - where do you sign up to volunteer for this?

Dis86 · 17 Feb 2016 at 18:06

Anything that helps any of you boys is good in my book. I know all too well the pain you're going through!

FrenchTart · 17 Feb 2016 at 18:39

My ex had really severe ulcerative colitis (still does actually). If this actually worked it would change her life.

mattyg · 17 Feb 2016 at 19:04

I have everything crossed for this.

I signed a petition a while back. Got an email yesterday

" Dear *************,
You recently signed the petition "Recognise Both Crohns Disease & Ulcerative Colitis As A Disability":
https://petition.parliament.uk/petitions/105855
On Wednesday 24 February, Anne Main MP is leading a debate on the treatment of Crohn's and colitis sufferers in England.
What are your thoughts on the treatment of people living with Crohn's and Colitis? Share your experiences with Anne Main MP and inform the House of Commons debate.

Join the conversation this week on the Crohn's and Colitis UK Facebook page from Wednesday 17 February here: https://www.facebook.com/crohnsandcolitisuk/

The House of Commons debate will take place at 4.30pm in Westminster Hall. You can watch it live on Parliament TV here: http://parliamentlive.tv/Guide

The online discussion was organised by Parliament's Outreach Service which works to involve the public in the work of Parliament.
Find out more about how you can get involved in the work of the UK Parliament: http://www.parliament.uk/get-involved/
You can follow Parliament's Outreach Service on Twitter: @UKParlOutreach
Thanks,
The Petitions team
UK Government and Parliament
You’re receiving this email because you signed this petition. Unsubscribe "

Craig1981 · 17 Feb 2016 at 19:51

Well this would be great if it works. I have Chrohn's, though I've been in remission since 2006. Still, its always been on my mind that one day it could raise its ugly head again.

Maccapacca · 17 Feb 2016 at 19:51

Just remember there's not a great deal of profit in a cure.

Disgusting to see that they are having to fundraise for the remainder. £470k is a drop in the ocean for big pharma.

Selekt0r · 17 Feb 2016 at 20:12

Big fingers crossed from me. Both my mrs and son have crohns so a proper cure would be fantastic news.

Destination · 17 Feb 2016 at 20:20

The theory behind this is very interesting, I read it earlier today, hopefully his research will work out, and an 'infective' and 'genetic' crosslink found, so those who are susceptible can be vaccinated.

I wouldn't be surprised if a similar modality could be the join route cause of MS. Not the mycobacterium, but a viral infection leading to body response and in turn the inflammation.

I do like novel research. What first gives the person the idea, and when they are in a position to actually follow it up. Superb!

VoG · 17 Feb 2016 at 20:20

Another UC sufferer here & I so want this to work out, still early days obviously but it would be a life changer if it pans out.

Thekwango · 17 Feb 2016 at 20:30

maccapacca said:
Just remember there's not a great deal of profit in a cure.

Disgusting to see that they are having to fundraise for the remainder. £470k is a drop in the ocean for big pharma.

Yup, there's no money to be made from a perfectly healthy populace unfortunately. Shows how Crohns and UC are viewed when they are having to raise the 470K themselves.

If only they knew how dibiltating it can be when it flares up.

GW1970 · 17 Feb 2016 at 20:36

Another crohns suffer here so any development is a step forward

robgmun · 17 Feb 2016 at 20:39

UC suffer here, i had it really bad from when i was 19 to 31, then it got a lot better, i'm not 100% and have some difficult days sometimes but it's a lot better than it used to be. So looking forward to a cure, if i can last another 10 years then hopefully a jab will make sure i have a much better older life

Sankari · 17 Feb 2016 at 21:03

Ulcerative colitis here. 16 long years. Thrilled to see some new developments in this field.

Crohns / ulcerative colitis sufferers

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