Getting blood test results

[DB_SamX]

My get blood tests done every 2 months due to the long term meds I am on for my Crohn's Disease.

Tests are done through my local hospital directly, and not through my GP. That's because the hospital consulting/specialist IBD team prescribe my immunosuppressants, so they monitor the blood results directly.

Up until 6 months ago, the IBD team would happily send me a pdf of my test results by email if I asked, and I started transferring them into Excel to monitor the trends out of interest e.g. check my vit D levels over the year, and to see if if gut inflammation levels correlate with anything going on in overall life/health. Today, I asked for my last two test results and they refused, citing that it would "go against the information governance". This was from a new nurse in that team.

Anyone know what that is about, and if true? I am happy to challenge them because I received them in the past and surely it's my own data and I am entitled to them?

Anyone else get their detailed blood results, and how do you go about it?

 

[Lysander]

The new nurse is correct. You need to go to, or contact, Information Governance in the hospital.

 

[eviled]

If your GP uses the same hospital lab then you might be able to negotiate an agreement where your GP orders your blood results and you can see them via the NHS app

this is very dependant on your GP accepting responsibility for reviewing you bloods and having results viewing via app enabled

 

[dirtychinchilla]

I'd love to track that stuff. They don't monitor me monthly for my crohn's fortunately. But I'd love to see it all.

 

[Energize]

Pretty ridiculous tbh, under the data protection act you are entitled to all data the hospital holds on you. Test results should be a pretty routine matter and not require going to the information governance team.

When I have been treated at private hospitals I've been able to access my test results online!

 

[robfosters]

My get blood tests done every 2 months due to the long term meds I am on for my Crohn's Disease.

Tests are done through my local hospital directly, and not through my GP. That's because the hospital consulting/specialist IBD team prescribe my immunosuppressants, so they monitor the blood results directly.

Up until 6 months ago, the IBD team would happily send me a pdf of my test results by email if I asked, and I started transferring them into Excel to monitor the trends out of interest e.g. check my vit D levels over the year, and to see if if gut inflammation levels correlate with anything going on in overall life/health. Today, I asked for my last two test results and they refused, citing that it would "go against the information governance". This was from a new nurse in that team.

Anyone know what that is about, and if true? I am happy to challenge them because I received them in the past and surely it's my own data and I am entitled to them?

Anyone else get their detailed blood results, and how do you go about it?

I have regular blood tests as well for my condition. Due to new laws, they cannot send the results to normal email addresses any more, they have to be sent between secure emails only. I now have to have my results sent to my mum who, because of her line of work, has a secure email within the criminal justice system.

That’s the only emails they can now send them to.