Had a massive stroke jan 2020

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As per title,in the still quite early of2020(jan 15th I suffered a massive stroke on the right side of my brain;cue 5 weeks in hospital after a crainiotomy to allow the brain to swell without internally decapitatingthe brain from the brain stem, followed by 12 weeks in a rehabilitation care home. while there I had another operation to cover the resulting hole in my head with a titanium plate, this operation is called a crainioplasty
MY long term memory was not affected which is amazing in the regards the happy memories,which kept me going through some of this,but is also a little cruel because I can remember being perfectly normal,and not living out of a wheelchair as a result of the hemiplegia caused by the stroke
My left side just doesn't work any more!
I can't walk.
I cannot run.
Ican't type like I used to, nor can I move around in computer games
I cant drive, and, recently I began having fits/seizures effectively banning me from the road anyway, be it in a power chair or motor vehicle
 
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Hello good people of the forum, I'm sorry for replying late, I had some side effects from the anti seizure medication not long after posting, the vertigo and motion sickness had been building up to the point that all I could do was throw up, for two weeks straight!
then it took a while to recover from all that retching, then the dosage was dropped, and, touch wood..
..apart from feeling a bit gippy some mornings,the queasy sensations have stopped. Actually everything was going quite well until yesterday, in which I had my third seizure, it was a bad one!at least I wasn't sat on the toilet this time but yeah it was the worse yet!I bite my tongue in the same place every time, this time I bit my tongue real bad, its very raw:(I feel like a skipped record today. eww
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Can you drink bourbon whiskey and watch videos of live rock music on YouTube?

Hey Man, you know what?actually the closest I get to feeling exhilarated nowadays is listening to music. I listen to rock,metal and blues every day on internet radio(classicdeep cuts[www365.com] the only thing I don't like about music nowadays is it reminds me that I cant play my ukulele any more, I used to be pretty good,give me the chords and the words and I could play and sing just about anything
Historically I'm more a single malt man but I've got something better than bourbon or a single malt!which is liquid morphine, its called "oramorph" basically morphine suspended in ethanol so when you knock back what is essentially half a shot,you get the kick of a vodka but with the comfortably numb opiate feeling later on, it is a shame they don't do one suspended in whiskey but its damn good regardless,I'm certainly not going to drink both at the same time

Jeesus mate that's rough. I'm so very sorry to hear it :(
cheers man.the original story got worse!(how could it?)
well,a mere few weeks after getting back home (before the seizures started), my long term , long distance partner left me,
TBF she had been trying to leave for a while , I made some bad mistakes early into the relationship that will be around forever, and this time apart, alongside lock down gave her far too much time to think about what she really wanted,(which wasn't me); I'm still grieving really, it comes in waves, you know?
but anyway I wish her all the best, I couldn't want for a better mother to our child and she is a pretty fabulous all round really.the world is lucky to have her, so friends it is! :S
Sorry to hear this - my mother suffered a massive stroke sometime back a little over 2 years ago. It's a slow recovery process as you probably know, but things can improve. Wish you all the best.

Thank you.yes its slow but I'll get there,The physio has to do less and less as I'm taking more of my own weight and finding my balance again
I'm stubborn enough to see things through
you can still play Monkey Island with your right hand though can't you?!

Maybe its time for another run yes!,that or eye of the beholder, its not like I'm doing that much with my right hand, masturbation is surprisingly messy with only one hand, lol, puts me right off, though I do have some good eye candy in a couple of my carers , plus the physio apprentice is especially tasty, I've come to the conclusion that she really must be wearing those lower cut tops on purpose,and I've made a good friend out of one of the carers too, shes great, like a cross between a butler and a really good friend,I'm lucky

Tough break op, I couldn't even imagine it, you are stronger than everyone here already, keep going,Touching on the gaming aspect (being a computer forum) there are ways people can game, be it with one hand or even no hands (saw someone gaming with their feet the other day), if that's something you wanted to entertain I'm sure people will be willing to help with what works best.

Keep going buddy
Aye Aye captain, Will do! I'll keep on rolling..These pesky seizures keep putting me back a peg, but its just one more thing to get over. I will get there!
I've been in contact with a a gaming renablement charity who are looking after me okay, some of it boils down to what games you're playing, a rich [in EVE] friend has invited me to play and its pretty easy to play one handed, the hardest thing is getting my headset on really!

^^ Yes my bad! @robfosters

I wasn't sure if to keep that bit in my post so I ninja-edited it out, then I realised it was a reference to Monkey Island :)

Yeah, I really wouldn't have minded because I totally agree with Rob,
I’ve had a bad stroke too. That wouldn’t bother me at all. I’ve learnt to find humour in all sorts of adverse situations.

In fact, humour actually helps more than sorrow and pity
wise words indeed


Good luck and I hope you recover soon as.
If you need any help please just ask.

Nice one Tim, I'll remember you should anything crop up, have a great week


Rough deal :(

Any pre-cursors which you look at in hindsight and think, I should have (not) done that? Heavy smoker, drinker etc?
I maybe shouldn't have decided to hit the top spot in PUBG(6000SP lone survivor) and I drank way too much cherry coke!I'd given up smoking a few months before the stroke, only having a spliff every now and then and I was always a pretty light drinker
Close, but I'm actually 43,42 at the time of stroke
That's rough Threepwood. Can't imagine having the strength to deal with that myself. All the best mate :(
Thanks buddy,I sincerely hope you never have to
Dang, that is a real curve ball of a situation OP.

It’s tough to know what to say, other than I’m deeply sorry to hear of your situation and I hope it becomes as manageable as possible.

Hey, I appreciate that Nitefly,thanks! things can only get better
Yeah tough break OP - hope you manage to get sorted out to establish some sort of normality again and fingers crossed you're in the percentage that get some functionality back. I know that personally, I'd not be mentally resilient enough to deal with that situation.

Gaming is a tough one but could be overcome - maybe look at different genres, otherwise some mice have hat switches on them which could be mapped to WSAD and might help you with moving around.
Hello, you'd be surprised what you can just about tolerate if you absolutely have to,I've tried mapping to mousebuttons with the razer mouse that has tons of buttons, I've also got four foot buttons but they are a bit temperamental and its not easy to aim with a mousethat you 're also using to move with, but I guess its good enough for some games,I play a lot of chess,as I always have done, which keeps me floating well(currently top one percent on chess dot com,rapid games,) that, and as mentioned, I am moving over to EVE pretty much

Right then,I'm going to have to wrap this up,sorry if its not been the easiest thing to read,I'm still a bit shook up today

What I'd really like to do,especially on a computer forum is implore people to stay well hydrated, you never know when you might need just a little blood to get to your brain saving billions of neuronsetc,
That and take regular breaks where you get your heart pumping a little,
Please
Sorry if I've missed anyone,I really appreciate all well wishes
So, take care everyone, and bye for now,cheers!:D
 
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off the toilet in work when my entire left side just collapsed.
funny you should mention this, I had just had a hot bath and needed to get out for a number two, so I had half a poo and then I came to, lying next to the toilet, actually I was kinda curled around the toilet, Like I'd had a heavy night out , and had been puking before the toilet became my best friend
I couldn't get up either! the most I could do was push myself back a bit with my right arm, and that's when I really knew something was really wrong because my left arm just wouldn't join in, all, it would do was tow along as I inched backwards from the toilet..
.. at the time I thought someone was playing a trick on me and my left arm had been replaced with a joke arm!
I'm very glad to hear that you are recovering well with full mobility, that's amazing, Mine was an ischemic clot stroke btw, idk if that is worse than a bleed.. I guess at least with a bleed there is some blood around tohelp keep those brain cells alive
All the best man, thank you for the reply I appreciate hearing a similar story, it helps me feel a little less alone
 
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Posh **** mate!

Much cleaner :p

Would eye tracking kit be any good for helping with gaming seems to be a new thing that's becoming mainstream.
hmm, I'm honestly not sure I'd be able to get a condom on with the one hand, I'd have to ask the butler!
as for eye tracking, I'll look into it(pun) anything that could recreate wasd, would be great but I'm not sure that is the kind of thing eye tracking does? more for choosing a link that you're looking at no?
 
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