Well overdue, and now a perfect time for an update for you all 
Today was the last trip upto leicester for treatment, and his medication at home ends next tuesday(4th march)
We can't belive it been just over three years since Jay was first diagnosed with leukaemia (A.L.L.), and now it's (fingers crossed)over!. His community nurse paid her last official visit last tuesday(19th feb) she and her stand in's(she goes on holiday a lot!) have been superb, and his official one has become a part of the family - we're all going to miss her and her us, although she will pop in from time to time, there were tears all around when jay gave her a pressie and card!
Everone at leicester have been amazing, can't say more really.
We think Jay's had quite a good run with it, not many scares, their level of care is at such a level it has all got nipped in the bud before its got too nasty, which has worked for us!
Seems so strange now, no daily medication, no trips to leicester for treatment, although he will be up there once a month for a checkup for the first year, make sure everythings OK, and then gradually less regular. We have a meeting with Jays consultant 12th march as an end of treatment meeting / what's next, Jay's had an MRD today(checks bonemarrow) which will be talked about then, and also Jay will have a few scans etc to check organ damage / health.
It all feels new, also as I start a new job monday(3rd march), so it really does feel like a new beginning.
I/we shall never forget the support of this forum, I remember not being able to sleep that first night and writing the 'life has just kicked us hard" thread with tears streaming like it was yestaday - and being so moved by the heart felt replies, they really really moved me and I am endebted to you all, and as always a special thanks to mightnimrod & freefaller for organising the collection here.
AND ALSO IAINB who arranged some truely unique stuff with the Street Eliminator crews @ santa pod (see you there soon ; ) ) - the T-shirt Ray gave him he still wears! although it goes look a tad tight on him these days! - MANY THANKS!!
Just a HUGE thanks to you all - I hope none of you get into the position when you know how much I mean it!
Whilst you would never know to look at him, it will also be interesting to see the change in Jay coming up without daily meditaion - must have some effect comming, I'm ~quite~ sure it'll be a good one!, I'll let you know.
I must thank the NHS, they have provided excellent staff and facilities, and only hear about the rare bad stuff that happens - all the millions of successes every year get missed and that's a pity because without them countless of us would be without loved ones and I think that needs to be noted.
HUGE HUGE Thanks to you all, you have really been with us in our hour of need.
love to you all
x
links to previous threads..
The collection thread
and
An archive jay's story thread
Today was the last trip upto leicester for treatment, and his medication at home ends next tuesday(4th march)
We can't belive it been just over three years since Jay was first diagnosed with leukaemia (A.L.L.), and now it's (fingers crossed)over!. His community nurse paid her last official visit last tuesday(19th feb) she and her stand in's(she goes on holiday a lot!) have been superb, and his official one has become a part of the family - we're all going to miss her and her us, although she will pop in from time to time, there were tears all around when jay gave her a pressie and card!
Everone at leicester have been amazing, can't say more really.
We think Jay's had quite a good run with it, not many scares, their level of care is at such a level it has all got nipped in the bud before its got too nasty, which has worked for us!
Seems so strange now, no daily medication, no trips to leicester for treatment, although he will be up there once a month for a checkup for the first year, make sure everythings OK, and then gradually less regular. We have a meeting with Jays consultant 12th march as an end of treatment meeting / what's next, Jay's had an MRD today(checks bonemarrow) which will be talked about then, and also Jay will have a few scans etc to check organ damage / health.
It all feels new, also as I start a new job monday(3rd march), so it really does feel like a new beginning.
I/we shall never forget the support of this forum, I remember not being able to sleep that first night and writing the 'life has just kicked us hard" thread with tears streaming like it was yestaday - and being so moved by the heart felt replies, they really really moved me and I am endebted to you all, and as always a special thanks to mightnimrod & freefaller for organising the collection here.
AND ALSO IAINB who arranged some truely unique stuff with the Street Eliminator crews @ santa pod (see you there soon ; ) ) - the T-shirt Ray gave him he still wears! although it goes look a tad tight on him these days! - MANY THANKS!!
Just a HUGE thanks to you all - I hope none of you get into the position when you know how much I mean it!
Whilst you would never know to look at him, it will also be interesting to see the change in Jay coming up without daily meditaion - must have some effect comming, I'm ~quite~ sure it'll be a good one!, I'll let you know.
I must thank the NHS, they have provided excellent staff and facilities, and only hear about the rare bad stuff that happens - all the millions of successes every year get missed and that's a pity because without them countless of us would be without loved ones and I think that needs to be noted.
HUGE HUGE Thanks to you all, you have really been with us in our hour of need.
love to you all
x
links to previous threads..
The collection thread
and
An archive jay's story thread
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