I'm not a rugby fan in any way - however I have watched this guy and viewed with interest his story.
We share something in common - kidney failure. I too had nephratic syndrome (kidneys leak protein) which led to kidney failure and eventually to a kidney transplant.
So I know exactly what this guy was been through.
He has died incredibly young - in theory you can live to the same age on dialysis as anyone else can, but there are always the potential for complications.
He actually helped bring kidney disease into the public eye a little - to be blunt kidneys are not a fashionable disease and so don't get publicity.
Of course I will take this opportunity again to remind people that if you haven't already done so, please go and register on the organ donation website.
I also have Nephrotic Syndrome, although perhaps not the same type, as not all will lead to permanent damage with dialysis and transplant.
It was sad to hear the news on Jonah though, as you say, it did help make it more known about.