Why bump a 5 year old thread? You come across as having a huge chip on your shoulder.
As people said in beginning of this thread, one of those who wont give info to your GP, yet if you encountered a major health crisis you would expect them to know everything about you. Its not a barbers, its a GP.
I bumped it because I answered my own question. A question hardly anyone in the thread understood, through lack of comprehension, and provided me answers to another question I did not ask. You've again done that in your reply, thank you
(so you know I'll be fine in a major health care crisis, I've checked that my GP has this, they do - however, as SGF mentioned earlier these notes are not always made available immediately if at hospital during a major health care crisis - this may have changed in 5 years)
A GP practice created form requesting additional information about my lifestyle was
NOT required to register at a GP. It was an arbitrary barrier put in place that may help with targeting me with additional care/help/information, but still one I should have had the choice not to provide.
A GP practice is not the NHS. They have limited resources for data security, that was one of the main reasons I didn't want to give it over, they didn't fill me with confidence it would be handled properly; there's a big difference to data being stored on a (hopefully) more secure NHS database as opposed to an Excel spreadsheet on Sally the receptionist's laptop.
When you give information over, always question (if not directly, internally at least) why it's needed, where it's stored, who has access to it and what it will be used for.
Your GP is like your solicitor. They have to keep everything confidential and it's in your own interest to be honest, open and truthful to them.
Indeed, especially the confidential part. However, they also should be open and honest with their patients about what, where, why, how they use the data. That's the right of the person providing the data, and if it isn't required, or satisfy those questions? Allow the person to proceed without providing it as I found out at my new practice, likely because GDPR is now enforceable whereas it wasn't when I made the OP.
Can I suggest your first use of the GPs facilities is an appointment with a phycologist. I believe you are showing early signs of moronicconspiracynut.
And another one...
I give information about me willingly, where and when it's required, and I am confident enough it won't be misused. No wonder phishing is so rampant if people do not ask these questions.
I've shared this information with my dentist because they actually stated why it's needed, how it will be used and give me confidence it will be handled correctly.
I'll put a note here at the end of this post to once again outline what this thread was about:
Questioning data security being a barrier to healthcare.
What this thread was not about, but everyone made it about:
Health records.
At the time (2017) I was denied registration at a GP unless I provided extra data about myself without knowing the below (in bold) was being enforced:
Data Protection Act 2018
The Data Protection Act
The
Data Protection Act 2018 controls how your personal information is used by organisations, businesses or the government.
The Data Protection Act 2018 is the UK’s implementation of the General Data Protection Regulation (GDPR).
Everyone responsible for using personal data has to follow strict rules called ‘data protection principles’. They must make sure the information is:
- used fairly, lawfully and transparently
- used for specified, explicit purposes
- used in a way that is adequate, relevant and limited to only what is necessary
- accurate and, where necessary, kept up to date
- kept for no longer than is necessary
- handled in a way that ensures appropriate security, including protection against unlawful or unauthorised processing, access, loss, destruction or damage
There is stronger legal protection for more sensitive information, such as:
- race
- ethnic background
- political opinions
- religious beliefs
- trade union membership
- genetics
- biometrics (where used for identification)
- health
- sex life or orientation
There are separate safeguards for personal data relating to criminal convictions and offences.
Your rights
Under the Data Protection Act 2018, you have the right to find out what information the government and other organisations store about you. These include the right to:
- be informed about how your data is being used
- access personal data
- have incorrect data updated
- have data erased
- stop or restrict the processing of your data
- data portability (allowing you to get and reuse your data for different services)
- object to how your data is processed in certain circumstances
You also have rights when an organisation is using your personal data for:
- automated decision-making processes (without human involvement)
- profiling, for example to predict your behaviour or interests
