Multiple sclerosis (MS)
- Thread starter Von Smallhausen
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Man of Honour
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Sounds similar to mine, pins and needles are intermittent, the ache is very annoying especially when I need to sleep.
Deleted member 651465
Deleted member 651465
I will always remember, in my first job after uni, there was a guy that was at the same level as myself and we were both going for a promotion. Anyway, a few months later he quit work to look after his wife who had MS. At the time I remember being relieved that I'd get the nod but it felt wrong accepting it through default.
Anyway, before he left he told us about his day to day life. All I will say is that it's a horrible way to live. I think her condition was considered one of the "aggressive" types. Bad times
Anyway, before he left he told us about his day to day life. All I will say is that it's a horrible way to live. I think her condition was considered one of the "aggressive" types. Bad times
Soldato
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Is there any further progress on the actual cause of MS?
Not the process of damage which seems to be reasonably detailed, but the actual cause.
I recall some years ago, reading a postulation, that some post viral effect, possibly from CMV or EBV, glandular fever, might be setup in certain people to cause a later autoimmune reaction leading to myelin destruction.
Is this the believed cause?
Not the process of damage which seems to be reasonably detailed, but the actual cause.
I recall some years ago, reading a postulation, that some post viral effect, possibly from CMV or EBV, glandular fever, might be setup in certain people to cause a later autoimmune reaction leading to myelin destruction.
Is this the believed cause?
Rilot, if you don't mind me asking, what kind of pain do you get in your legs? Is it localised or all over in both legs?
Not that I'm going to assume I know better than my doctors, but for the past two years I've been getting severe leg pains, can get worse during the night but it's constant. Some days it's a dull ache and others it's so bad that I have to miss work. Doctors haven't found out the cause, and I've got an appointment with a neurosurgeon next month (neurologist couldn't see anything). I'm usually tired or exhausted everyday, and it's been put down to lack of sleep.
My uncle had MS. Didn't have any children and I was very close to him so I saw him deteriorate until his death 10 years ago. I helped out as much as I could but my aunt did struggle to look after him, and my dad ended up leaving his job to be his carer.
My father passed away on the back of complications from having MS just over 4 years go.
He was 60 years of age. He was diagnosed with it when he was 25 (a year after I was born).
Up until my teenage years (so my dad would have been late 30s) for me his MS didn't get in the way of him being a dad and a husband to my mother.
He suffered with pins and needles in his feet initially and then this developed up his legs (left leg first). He used to walk around with a peg leg initially. After some time he needed a walking stick, then crutches, then a walking frame and then finally he was wheelchair bound before he became bedbound.
During his final 10 years, my dad had lost the ability to eat (fed by a tube into his chest), lost the ability to speak, lost control of his bladder and bowels. I even question if he was blind during the last 2 years of his life (he obviously was not able to tell us).
Its an awful disease. The issue that caused my father to die was sepsis of the lungs. Basically he was not able to control he saliva from going into lungs instead of his stomach. This would from time to time cause an infection etc and he needed a heavy course of anti biotics with his lungs drained to clear it.
He was unable to recover from the last one.
From a personal perspective, me and my brother have been impacted massively by it. We are both very successful in what we do, but when you know from an early age that your father is going to die early, it changes your perception on things.
It is hard to feel empathy with people who complain of illness or sickness (in varying forms), I also feel angry that my children have been robbed of a grandfather. He would have been a GREAT grandad (when I was young he was an awesome dad). I am also hugely intolerant (my brother is the same), whether this is the result of our father, I have no idea.
I did my bit for M.S charities and still do, but once my dad passed away this has weaned off some what. Its almost like a part of my life I dont want to remember.
He was 60 years of age. He was diagnosed with it when he was 25 (a year after I was born).
Up until my teenage years (so my dad would have been late 30s) for me his MS didn't get in the way of him being a dad and a husband to my mother.
He suffered with pins and needles in his feet initially and then this developed up his legs (left leg first). He used to walk around with a peg leg initially. After some time he needed a walking stick, then crutches, then a walking frame and then finally he was wheelchair bound before he became bedbound.
During his final 10 years, my dad had lost the ability to eat (fed by a tube into his chest), lost the ability to speak, lost control of his bladder and bowels. I even question if he was blind during the last 2 years of his life (he obviously was not able to tell us).
Its an awful disease. The issue that caused my father to die was sepsis of the lungs. Basically he was not able to control he saliva from going into lungs instead of his stomach. This would from time to time cause an infection etc and he needed a heavy course of anti biotics with his lungs drained to clear it.
He was unable to recover from the last one.
From a personal perspective, me and my brother have been impacted massively by it. We are both very successful in what we do, but when you know from an early age that your father is going to die early, it changes your perception on things.
It is hard to feel empathy with people who complain of illness or sickness (in varying forms), I also feel angry that my children have been robbed of a grandfather. He would have been a GREAT grandad (when I was young he was an awesome dad). I am also hugely intolerant (my brother is the same), whether this is the result of our father, I have no idea.
I did my bit for M.S charities and still do, but once my dad passed away this has weaned off some what. Its almost like a part of my life I dont want to remember.
