Neuroma and bad NHS service

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This is not intended to be a medical thread, I'm at a loss with this problem and the NHS aren't helping and I'm not sure how to make any progress with it.

About 2.5 years ago I started feeling a pain in the ball of one foot, like being electrocuted or stepping on a plug. Went to GP who suspected a neuroma and prescribed naproxen.

This had no effect and is where the problems began. I was referred to a foot specialist at the local hospital who I saw 4 times in about 6 months and during that process had 4 injections (2 of which were steroids). This didn't help and I was sent to orthopedic surgery.

Orthopedic surgeon wanted to start from scratch with the treatments rather than rely on work previously done so had to go through the process of having orthotics (which I already had), then several more steroid injections. The wait time for a follow up appointment is 5 months so this dragged out a long time. During this process I was sent for 6 weeks of intensive physio. The physiotherapists said that it wouldn't help and they didn't know why I'd been referred, the orthotic specialist said I needed surgery and didn't understand why I'd been referred.

Anyway fast forward to September and my latest appointment with the orthopedic surgeon is canceled 20 minutes before as he was too busy. They rescheduled for late January. I kicked up a stink with the PALS service and they eventually brought it forward a month.

Early December I go for the appointment and the surgeon tells me he wants another injection (so 8 in 2 years and NHS recommend 3 per year in the same location), they tell me they'll book a follow up appointment in April.

As predicted the injection doesn't do anything and I've discovered that they've lost my follow up in their system and I can't now be seen until July. All the while I have days where I struggle to walk because of the pain when my foot hits the floor.

Any ideas what the best avenue is to complain about this? Anyone had any success?
 

JRS

JRS

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My dad had a similar deal - Morton's neuroma in both feet, couldn't get it taken seriously by people at Burton hospital, he got himself referred to a different NHS hospital (Derby) who did take it seriously and operated on him.
 
Associate
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Who are you?

Quality assurance bloke for Creda/Hotpoint... if you've dodgy appliance or medical complaint he's your man.

On a more serious note OP, you shluld seek a second opinion or go through PALS as suggested. My GF went round in circles for 2 years trying to get diagnosis/treatment for a chronic pain condition with loads of specialists referring her for the same treatments and tests plua losing paperwork meaning things were missed or repeated. In the end we asked for a 2nd opinion and to be referred to a different hospital and she got the help she needed. So frustrating - hope you get it sorted!

/Salsa
 
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Soldato
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I can see you going round in circles OP....such is the state of the NHS

as mentioned, see if you can get into another hospital, hopefully one not run by idiots.....or go private

to be honest, I'm seriously considering something like BUPA insurance. Speaking of which, does anyone have it?
 

JRS

JRS

Soldato
Joined
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Location
Burton-on-Trent
to be honest, I'm seriously considering something like BUPA insurance. Speaking of which, does anyone have it?

Old friend of mine had back trouble, needed two vertebrae fusing. Had Bupa though his work. Went for pre-op tests, part of which involved being tested for MRSA, all clear. Had the op with Bupa at a private hospital. Came out with MRSA. Bupa and private hospital wanted nothing to do with treatment for the MRSA that they gave him. The NHS saved his life.
 
Soldato
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I sympathise with you OP. My parents have had good experience with the NHS in the past, but I know that other people's experience can fall woefully short of that.

This is where I can appreciate the US healthcare system. If you're fortunate to have the funds for self-paid treatment or good insurance coverage, like my family and I do, you can get seen quickly, and with a nationwide PPO plan like ours, self-refer to almost anyone. We have many choices.

Many friends in the UK laugh when we tell them that we have a $3500 annual deductible and insurance won't pay for anything until we hit that amount, but given the variable, but generally greatly declining state of the NHS, I'd rather that because we can see specialists in days or weeks, and not have to wait months or even years.
 
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Associate
OP
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10 Oct 2011
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936
Thanks everyone, think I'll try PALS then ask for a referral somewhere else.

Whilst I could probably scrape together the cash for a private treatment I pay an awful lot of tax each month and it's the principle of it, I shouldnt have to pay more to get taken seriously.
 
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