RIP Rob Burrow

A work friend has MND. I saw the progression from pre-diagnosis (speech a bit slurred, thought she'd had a mini stroke) to her leaving work a year or so later.

It is worse than I ever imagined- it takes away everything.
 
An amazing guy.

His mental determination was amazing. A lot of people would struggle mentally to live a life after becoming physically incapacitated.

RIP
 
adam cool dude said:
What is the difference between him and Steven Hawkins?

Hawkins had a horrible life for the most part but he lived to 76?
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I think Stephen Hawking is an almost unique case and no one really knows why... there are slower progressing forms of the disease, and apparently the younger you are when you first get it the more likely you are to have a slower progressing form. A lot of the actual causes of the disease are pretty much unknown though, so hard to work out why it affects people differently.

So maybe Stephen had some genetic trait that slowed it down, maybe just to do with some peculiarity of what happened in his case, or maybe the disease he had wasn't actually the same disease at all and just had similar symptoms to motor neurone disease...

Guess it's another example of how much more research needs to be done.
 
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adam cool dude said:
What is the difference between him and Steven Hawkins?

Hawkins had a horrible life for the most part but he lived to 76?
Click to expand...
MND is also called the 1000 day illness where most people die about 1000 days (c3.25 years) after diagnosis.

Most MND sufferers die from respiratory failure as motor neurons in lungs are affected the most.
 
I don't follow Rugby League, so can't say I was aware of Rob Burrow as a player but how he dealt with facing his mortality, especially considering what the disease takes from you, was inspirational.

It's also amazing to see how incredible his friends and family were, extremely strong characters.
 
RIP Rob, rest easy.

He was a sensational player whom I had the privilege to see play on many occasions, mostly tearing my own team, Hull KR, to pieces. Sensational speed and agility and incredibly brave - not afraid to stick his head in where it hurts. The way the Rugby League community has rallied around him these last 4-5 years has been exceptional and makes me proud to be a fan of this great sport.
 
physichull said:
RIP Rob, rest easy.

He was a sensational player whom I had the privilege to see play on many occasions, mostly tearing my own team, Hull KR, to pieces. Sensational speed and agility and incredibly brave - not afraid to stick his head in where it hurts. The way the Rugby League community has rallied around him these last 4-5 years has been exceptional and makes me proud to be a fan of this great sport.
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It does feel different with rugby league, not fake support or a PR opportunity but real heart felt support.
 
potatolord said:
A work friend has MND. I saw the progression from pre-diagnosis (speech a bit slurred, thought she'd had a mini stroke) to her leaving work a year or so later.

It is worse than I ever imagined- it takes away everything.
Click to expand...

One of my school friends lost her partner to it about a year ago, absolutely heart breaking seeing her trying to come to terms with it.
 
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