This sort of thing makes my blood boil

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Link to what I'm referring to.
The 19-month-old boy has genetic condition spinal muscular atrophy - which leads to almost total paralysis.

Medics said his quality of life was so poor he should be allowed to die. His family said his life was worth living.

The High Court in London heard how the child, who cannot breathe unaided and is almost totally paralysed, also cannot chew or swallow.
Sorry but the child is an unnecessary burdon on resources. In my eyes, it's like feeding a dying a horse.

If I post any more, I'll likely end up swearing through pure anger.
 
You find this surprising?

When there's people lobbying for embryos to live saying that it is life, you think that it is at all surprising that a family wants to keep their child? Whatever condition they are in?

I think you need a reality check.
 
If he has no quality of life and no prospect of getting better then I think he should be allowed to die. The parents are probably reluctant to let go but they need to think of the childs suffering/lack of quality of life.
 
you can see it from both sides, though...cant you?

natural paternal instinct is to love that child more than anything in the world. of course they're going to want him to live. however, they may not have the emotional capacity to deal with that decision right now, and may be acting selfishly. i agree, if i were capable of coherent thought, and in that child's position, it's highly likely that i would rather not exist...but try thinking like that as the parent of that child.
 
I see what you're saying and agree with you but if it was your child would you say to yourself, "I don't want it to be a burden on society so I think I'll just let it die". If you have any sort of compassion you probably wouldn't. I know I couldn't and wouldn't unless I knew for sure that the child was in extreme pain 24/7.

That probably makes me a hippocrite but I'm only human.
 
Makes you think, dont it.

Cant help but feel the parents are being cruel though... i certainly cant see keeping the child just alive as a life?.. will they ever be able to cuddle him?

Scuzi said:
That probably makes me a hippocrite but I'm only human.
Ha.. no..seriously what are you?.. human or hippo? :confused:
 
gord said:
Makes you think, dont it.

Cant help but feel the parents are being cruel though... i certainly cant see keeping the child just alive as a life?.. will they ever be able to cuddle him?
The problem comes when you are unable to emotionally detach and make the best decision. Its really quite easy to see it from both sides. The medics are able to view it from a clinical POV meaning they can see what in their view is best for the child.

I can imagine nothing more emotionally involving than discussing allowing your child to die.
 
Gilly said:
you think that it is at all surprising that a family wants to keep their child? Whatever condition they are in?

I think you need a reality check.
I think submitting it to what I feel is an desirable life is something that shouldn't be permitted.

I accept that it would be hard for the family to let the child die. But at the end of the day, what will be worth letting the child live it's current lifestyle?
 
I have a cousin that was born completely brain damaged. She has no apparent perception of who she is, who anyone is, she can't walk, talk, feed herself, go to the loo or anything. She just sits like a sack of potatoes on the floor grinning, and crawling around on the floor drooling and doing nothing. She is now 20 and she has the body of a 11 year old. She hasn't matured at all. It's dreadful and sad, and I feel awful everytime I see her.

My uncle said to me, if ever you find your child is going to be like this, *mimic a neck wringing action*, "say yes to the doctor".... They've had to live with this burden and it's more painful than it would have been to have let her pass away.

I have to say it's an awful position to be in, but I agree that there is little point in salvaging a life that will not be fulfilled or saved. It's tough decision, but I agree that the plug should be pulled in this case.
 
Freefaller said:
My uncle said to me, if ever you find your child is going to be like this, *mimic a neck wringing action*, "say yes to the doctor".... They've had to live with this burden and it's more painful than it would have been to have let her pass away.

Thats what Ive been trying to say, but couldnt find a way to say it
 
so basically they want the child to pass away because its quality life is bad, and also theres no point in keeping the baby alive?

the end of the day i see where were all coming from but it is a life, and it is someones child, but the parents should understand its the best thing for there child.
 
Neon said:
so basically they want the child to pass away because its quality life is bad, and also theres no point in keeping the baby alive?
Yep, thats what the doctors want. Though I don't think the second part of that sentence was necessary. Of course there's point in keeping it alive, its their son.

Neon said:
the end of the day i see where were all coming from but it is a life, and it is someones child
Neon said:
but the parents should understand its the best thing for there child.
Which way are you going? :confused:
 
Freefaller said:
My uncle said to me, if ever you find your child is going to be like this, *mimic a neck wringing action*, "say yes to the doctor".... They've had to live with this burden and it's more painful than it would have been to have let her pass away.

I have to say it's an awful position to be in, but I agree that there is little point in salvaging a life that will not be fulfilled or saved. It's tough decision, but I agree that the plug should be pulled in this case.
Very much what I wanted to put across - although I think I put it across in a harsher way. :o

Basically if nothing can come of the child's life, then end it's life. It's a waste of everybody's time, money and resources which could be better used elsewhere.

So who needs the reality check, Gilly? Me for not wasting people's time and putting people through the agony of having to watch a vegetable grow up?
 
Neon said:
so basically they want the child to pass away because its quality life is bad, and also theres no point in keeping the baby alive?

the end of the day i see where were all coming from but it is a life, and it is someones child, but the parents should understand its the best thing for there child.

What's the point in keeping something alive that will probably end up dying prematurely anyway, and is effectively brain dead? It's just prolonging the agony of the parents, and maybe not letting a salvageable life being saved by the use of the equipment keeping that poor being alive. The doctors are saying there's basically nothing they can do. I concur it's not an easy decision to make, but objectively you have to reason that it is more sensible to let it pass on rather than prolong the process...
 
You appear to be more rational now. Not quite rational, but at least more than when you started the thread. You were emotional regarding the subject but you'd gone the wrong way with the emotion. You were angered by someone wanting to keep their child alive.

No matter the plight of the child natural instinct is to keep the child alive at all costs.

Thats why you needed the reality check.
 
basmic said:
Very much what I wanted to put across - although I think I put it across in a harsher way. :o

Basically if nothing can come of the child's life, then end it's life. It's a waste of everybody's time, money and resources which could be better used elsewhere.

So who needs the reality check, Gilly? Me for not wasting people's time and putting people through the agony of having to watch a vegetable grow up?

I think the 'reality check' was in reference to your anger that such things go on. It's saddening, and FF has iterated what I wanted to say very nicely. It certainly shouldn't be making your blood boil over apparant waste of resources.
 
Gilly said:
You appear to be more rational now. Not quite rational, but at least more than when you started the thread. You were emotional regarding the subject but you'd gone the wrong way with the emotion. You were angered by someone wanting to keep their child alive.

No matter the plight of the child natural instinct is to keep the child alive at all costs.

Thats why you needed the reality check.
I'm more rational, because Freefaller has pretty much said what I tried to say.

At the time of writing the thread, I was fuming - I could have said worse, but the punishment from the Moderators on here for doing so isn't worth it.
 
BrenOS said:
It certainly shouldn't be making your blood boil over apparant waste of resources.
Probably not, but I'm not a great a believer in waste.

Which reminds me, I'm going to try and part myself with some old stuff in the loft later. :o
 
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