Vertigo
- Thread starter Skynet5
- Start date
Old thread but thought I would share as I’m really beyond frustrated.
Three years ago I was at Le Mans 24 hour, it was the third time I had been and as always I forgot to take ear protection. I’ve suffered with tinnitus for years up to this point. Watched the night racing and found it particularly uncomfortable more than usual.
The next day at the camp site I got up to go get a drink and the whole world felt like it was collapsing around me. I had nausea that was so serve I genuinely became worried that I had been poisoned or was seriously ill. The world began to move around me and the people I was with obviously instantly recognised something was not right.
I threw up and eventually slept it off. When I woke up I felt awful but managed to see out the rest of the trip.
When I came back I had a number of similar episodes that lasted up to 6 hours, so figured I should get some medical advice by this point. Was diagnosed with Ménière’s disease, which is an inner ear problem that ultimately damages your hearing and brings on episodes of vertigo.
Over the last three years I’ve had to try and deal with these episodes, sometimes once a month, sometimes two to three times a day. I’ve tried not to let them stop me, although I’ve been in some difficult situations before. Alone in the middle of London crawling around. In Barcelona on holiday crawling through the street.
It’s happened at work during meetings, during the middle of dinner in restaurants, or simply walking through Tesco’s.
I’m on betahistine which at first did seem to help, but much less so now. It is a constant concern for me - it now limits what I do, where I go. I have to think - what will happen if I’m unwell. The problem is, when I’m unwell it can and has lasted for 24 hours+.
Two weeks ago it started happening more intensely, and I had a steroid injection in the ear which is supposed to calm things down. It hasn’t unfortunately, if anything it’s made it worse. I’ve had daily five hour (or so) attacks ever since. The feeling is extremely scary and it’s not surprising that a lot of people with this condition also suffer from anxiety. There is a constant fear. The vertigo is so serve that you feel as if you are dying. I’ve had it for so long before, days on end that I didn’t know what to do anymore.
So far I have been able to work from home a lot over the past year, but the worry about the job is frustrating.
Its amazing how much we take the smallest of things for granted. Going for a walk without the fear you might be ill. Going to a cinema, listening to music. Most people with a condition like this you would never know because there are no outward signs (unless they are unwell at the time), but you carry it with you all time. Even when you don’t have vertigo, the tinnitus and loss of hearing is debilitating. You also get incredibly tired, I assume because the body is trying to work double hard to keep you steady.
There isn’t a cure for Ménière’s but I am hopeful it may well eventually burn itself out, otherwise it may well burn me out.
Three years ago I was at Le Mans 24 hour, it was the third time I had been and as always I forgot to take ear protection. I’ve suffered with tinnitus for years up to this point. Watched the night racing and found it particularly uncomfortable more than usual.
The next day at the camp site I got up to go get a drink and the whole world felt like it was collapsing around me. I had nausea that was so serve I genuinely became worried that I had been poisoned or was seriously ill. The world began to move around me and the people I was with obviously instantly recognised something was not right.
I threw up and eventually slept it off. When I woke up I felt awful but managed to see out the rest of the trip.
When I came back I had a number of similar episodes that lasted up to 6 hours, so figured I should get some medical advice by this point. Was diagnosed with Ménière’s disease, which is an inner ear problem that ultimately damages your hearing and brings on episodes of vertigo.
Over the last three years I’ve had to try and deal with these episodes, sometimes once a month, sometimes two to three times a day. I’ve tried not to let them stop me, although I’ve been in some difficult situations before. Alone in the middle of London crawling around. In Barcelona on holiday crawling through the street.
It’s happened at work during meetings, during the middle of dinner in restaurants, or simply walking through Tesco’s.
I’m on betahistine which at first did seem to help, but much less so now. It is a constant concern for me - it now limits what I do, where I go. I have to think - what will happen if I’m unwell. The problem is, when I’m unwell it can and has lasted for 24 hours+.
Two weeks ago it started happening more intensely, and I had a steroid injection in the ear which is supposed to calm things down. It hasn’t unfortunately, if anything it’s made it worse. I’ve had daily five hour (or so) attacks ever since. The feeling is extremely scary and it’s not surprising that a lot of people with this condition also suffer from anxiety. There is a constant fear. The vertigo is so serve that you feel as if you are dying. I’ve had it for so long before, days on end that I didn’t know what to do anymore.
So far I have been able to work from home a lot over the past year, but the worry about the job is frustrating.
Its amazing how much we take the smallest of things for granted. Going for a walk without the fear you might be ill. Going to a cinema, listening to music. Most people with a condition like this you would never know because there are no outward signs (unless they are unwell at the time), but you carry it with you all time. Even when you don’t have vertigo, the tinnitus and loss of hearing is debilitating. You also get incredibly tired, I assume because the body is trying to work double hard to keep you steady.
There isn’t a cure for Ménière’s but I am hopeful it may well eventually burn itself out, otherwise it may well burn me out.
Hang in there rare, things will get better.
I take a coctail of drugs to handle mine, which after the initial couple of years settled down to have an episode only once a month - which is manageable as, for me, it happens when I relaxhttps://forums.overclockers.co.uk/members/rare.3469/
I take a coctail of drugs to handle mine, which after the initial couple of years settled down to have an episode only once a month - which is manageable as, for me, it happens when I relaxhttps://forums.overclockers.co.uk/members/rare.3469/
Soldato
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About 11 years ago I got tinnitus in my left ear for apparent reason whatsoever. Had a period of dizzy moments and being woke in the night with a fullness in my ear. Been to specialist and also had an MRI scan, but nobody can tell me what the issue is. Now I haven't had a dizzy spell for years, but I'm left with shocking tinnitus and my balance isn't what it was. Still no clue what the problem is.
Inner ear problems are certainly no joke
Inner ear problems are certainly no joke
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Slight necro but I've recently been 'diagnosed' with vestibular migraine, which is basically vertigo related migraine.
MRI and 24 hour ECG next week to rule out anything serious but it's absolutely crippling, feel dizzy all the time and the odd really heavy dizzy feeling where I'm close to collapsing. Horrendous to be honest.
Doctor did give me some medication that's for epilepsy which has done absolutely nothing.
MRI and 24 hour ECG next week to rule out anything serious but it's absolutely crippling, feel dizzy all the time and the odd really heavy dizzy feeling where I'm close to collapsing. Horrendous to be honest.
Doctor did give me some medication that's for epilepsy which has done absolutely nothing.
I thought I was sorted out but I now have another appointment at the balance clinic in January. I have started having episodes or that's what I call them and they are so random but happen at least once a week. I could look up, it happens I could just turn and it happens. my eyes go fuzzy for a few seconds then my balance goes and then after about an hour the headache and starting to feel really sick starts. I have been to the docs who has given me medication for the sickness etc but I try not to take it if I can unless I really need it. Been going on for 18 months now and it is doing my head in. All I do when it happens is lie down which helps. Luckily I only work weekends and it has only happened once on shift.
I call mine attacks, they come out of nowhere, they even wake me up sometimes
I know that i'll feel like **** the day after it happens as well, I had one last night, now I feel completely exhausted.