it's a liquid they squish up the tail pipe - no intense jet - just whatever's in it 'reacts' in some way and in a short space of time wants to get back out!! idea being it 'softens' anything up there and takes it with it on the way back out. you then spend the next while (what feels like a lifetime) having to camp on the loo (similar to the sensation you have with moviprep - but there's less actual 'stuff' coming back out!)
Crohns / ulcerative colitis sufferers
- Thread starter ColdAsIce
- Start date
Thats weird I've had 2 enemas and 1 moviprep and I think I'd rather have the enema. I've only ever managed to hold them in for 3-4 mins tops and theyve still worked. I didn't like the moviprep just struggled to chug it all down. Didn't do the last part at all.
Associate
- Joined
- 6 Jul 2015
- Posts
- 127
I had my flexible Sigmoidoscopy on Tuesday. Didnt have sedation in the end.. but MY GOD when they inflate the colon.. never have I felt such pain! Otherwise I was fine. Anyways.. my rectum is all inflammed, severe proctitis. I have doctors next Wednesday to get treatment and I also need a referral to my local IBD clinic. They took 5 biopsies so results in a few weeks.
Biopsies come back clear. Due to me not having the issues regularly (at the moment it's three or four times a year) and my existing environmental allergies (hayfever, cats, eczema), I'm being referred to an Immunologist to determine if there is something specific in my diet. Should be interesting as everything I've read shows they are linked.
Came off medication (Pentasa Mesalalzine, one 500mg tablet daily) five days ago for the first time in 17 years (which was when I started).
Probably a stupid idea but my main, annual appointment has been pushed back from August to December this year for no apparent reason. This was when I was going to discuss coming off meds. So far I've been fine, not sure how long it'll last.
To recap, I came off gluten in November last year and all my symptoms dissapeared.
Probably a stupid idea but my main, annual appointment has been pushed back from August to December this year for no apparent reason. This was when I was going to discuss coming off meds. So far I've been fine, not sure how long it'll last.
To recap, I came off gluten in November last year and all my symptoms dissapeared.
Hi,
The government are amending the national blue badge scheme to take account of hidden disabilities. Crohn’s & Colitis UK are campaigning to make sure that Crohn’s & Colitis are properly catered for.
There is a form on this webpage which will generate the tweet for you if you'd like to join the campaign...
https://action.crohnsandcolitis.org.uk/page/28163/tweet/1?ea.tracking.id=twitter&en_chan=tw
The government are amending the national blue badge scheme to take account of hidden disabilities. Crohn’s & Colitis UK are campaigning to make sure that Crohn’s & Colitis are properly catered for.
There is a form on this webpage which will generate the tweet for you if you'd like to join the campaign...
https://action.crohnsandcolitis.org.uk/page/28163/tweet/1?ea.tracking.id=twitter&en_chan=tw
Soldato
- Joined
- 2 May 2011
- Posts
- 12,191
- Location
- Woking
Regarding the above, I don't think - for me at least - that Crohn's is sufficiently debilitating to be deserving of a blue badge when there are plenty of people who have issues with mobility who are much more deserving. So, I can't say that I support it.
In my own news, I have to have an operation on Tuesday. I've got another fistula that couldn't be prevented, so they're going to have a look while I'm under and decide whether to use a seton, or whether to drain the impending abscess. I hate this crap. I'm not scared of many things, but this really worries me...it's just the recovery which is terrible.
In my own news, I have to have an operation on Tuesday. I've got another fistula that couldn't be prevented, so they're going to have a look while I'm under and decide whether to use a seton, or whether to drain the impending abscess. I hate this crap. I'm not scared of many things, but this really worries me...it's just the recovery which is terrible.
Yeah, IBD is a spectrum of a condition. I don't need one either, but I support the need for a blue badge for some people who suffer with the disease.
Soldato
- Joined
- 2 May 2011
- Posts
- 12,191
- Location
- Woking
That's fair enough. After I'd posted, I thought that it's probably not that clear cut at all and therefore are people with Crohn's, IBD etc that suffer far more and maybe would need them.
You'd just hope that people wouldn't take the **** with it, but you know some would. My UC has never been severe enough for something like this but I can imagine it might be of some help to some really serious sufferers.
Toilets obviously no issue in my view. But parking you shouldn't really qualify as it's inhibiting those with real mobility issues, which unless you are a really bad sufferer on a mega flare, I doubt is really needed.
I've got concerns that my Crohn's disease is flaring up. I had really bad diarrhea early last week, which I initially thought was food poisoning from a Mexican I had for lunch at the weekend before. Since then that's stopped, but my bowel movements have been far from normal. I'm finding that I need to go to the toilet more than normal. So far I'm not experiencing bowel pain and my poop isn't rabbit pellets like it was back when my crohn's was really bad, but its definitely smaller than normal pieces. And it has a more acidic/mucus like quality when wiping.
I've got a nurse's appointment for Friday for a separate issue, so I'm going to address it then. I've been incredibly lucky to have been in remission for the last 12 years. I'm just hoping if this is the Crohn's rearing its ugly head, they can give me some sort of medication to control it. I dread the idea of another major bowel operation or having to go back to wearing a stoma pouch
I've got a nurse's appointment for Friday for a separate issue, so I'm going to address it then. I've been incredibly lucky to have been in remission for the last 12 years. I'm just hoping if this is the Crohn's rearing its ugly head, they can give me some sort of medication to control it. I dread the idea of another major bowel operation or having to go back to wearing a stoma pouch
- Joined
- 13 Apr 2010
- Posts
- 18,457
- Location
- Sunny Sussex
I've got concerns that my Crohn's disease is flaring up. I had really bad diarrhea early last week, which I initially thought was food poisoning from a Mexican I had for lunch at the weekend before. Since then that's stopped, but my bowel movements have been far from normal. I'm finding that I need to go to the toilet more than normal. So far I'm not experiencing bowel pain and my poop isn't rabbit pellets like it was back when my crohn's was really bad, but its definitely smaller than normal pieces. And it has a more acidic/mucus like quality when wiping.
I've got a nurse's appointment for Friday for a separate issue, so I'm going to address it then. I've been incredibly lucky to have been in remission for the last 12 years. I'm just hoping if this is the Crohn's rearing its ugly head, they can give me some sort of medication to control it. I dread the idea of another major bowel operation or having to go back to wearing a stoma pouch
In 12 years quite a bit has changed especially with the biological drugs. Hopefully it's just the Mexican
This is such a great read on the BBC News website -
https://www.bbc.co.uk/news/disability-45045223
I don't think I have Crohn's (always assumed I had IBS and that's never been medically diagnosed) but everything in that article rings a chord with me (except the kitchen bin bit).
https://www.bbc.co.uk/news/disability-45045223
I don't think I have Crohn's (always assumed I had IBS and that's never been medically diagnosed) but everything in that article rings a chord with me (except the kitchen bin bit).
Update on mine:
Colonoscopy was clear. Blood work was clear. Specialist sent me to an immunologist who immediately suggested a sulphate allergy. It fit with everything I had seen were the triggers.
Just in case anyone else has similar - look it up and see if that might fit your symptoms.
Colonoscopy was clear. Blood work was clear. Specialist sent me to an immunologist who immediately suggested a sulphate allergy. It fit with everything I had seen were the triggers.
Just in case anyone else has similar - look it up and see if that might fit your symptoms.
Been having a bad time last few days with bleeding and constant urges to go cramps etc. Just had blood tests back with raised inflammation and wonky platelet results. Need to go for a sigmoidoscopy tomorrow to work out what’s going on.
The joys of this disease.......
Blehhhhh
The joys of this disease.......
Blehhhhh