Ice Bucket Challenge

It's got tiresome and it's gone to an organisation that isn't ready for the money. The research for the issue is at an early stage. As some have said, at early stages it takes "luck" / "coincidence" as the first step to make a break through. For that reason, it's going to be hard to pin-point funding at certain strands of research. Furthermore, ALS is already "over funded" - if such a term can be used - compared to other serious issues like Mental Health and things like Dementia which affects 800k people in this country alone (and in turn is relevant to more people than ALS). However, I'm glad ALS have a lot of money now and hopefully they will be able to put it to good use.

The idea of people giving to Charity more out of peer pressure and being a "sheep" is dangerous. Charity should be something very personal and dear to people, they need to understand where the money is going. I know a lot of people who are against Embryonic Stem cell research, yet that's one of the things ALSA will be granting to labs across the US. Whilst i think stem cell research is a good thing, i find it worrying how many people have either completely missed the point, or don't even know how ALSA and perhaps others (MND associations) work.
 
I'm getting seriously pee'd of with those who think an Ice Bucket Challenge is getting a bucket of water, throwing some ice in and then immediately throwing it over their head.
WTF :D
 
http://www.charitynavigator.org/index.cfm?bay=search.summary&orgid=3296#.U_-ssfmwLfl

Take a look, research isn't the only useful thing charities do with their money. 72.4% on programs and services doesn't sound so bad.

Actually, accountancy is a funny thing, you can put quite a lot under "program expenses".

If you look at their actual tax returns, not a 3rd party summary:
Total administration costs were just under $2 million. “Other salaries and wages” (Part IX line 7) were $3.6 million, with another half million dollars in “pension plans” and “employee benefits.” Expenses for non-employee labor were about $4 million, and “travel expenses” exceeded $1.3 million.

So total costs for labor to run the association was around $12.5 million, from revenues received totaling $24 million.

The largest amount of what is remaining is: “Grants and other assistance to governments and organizations in the United States” (Part IX line 1) – $6.2 million. This amount is itemized on Schedule 1. Almost all of these recipients are medical schools, with strong ties to the pharmaceutical industry.
 
It's got tiresome and it's gone to an organisation that isn't ready for the money. The research for the issue is at an early stage. As some have said, at early stages it takes "luck" / "coincidence" as the first step to make a break through. For that reason, it's going to be hard to pin-point funding at certain strands of research. Furthermore, ALS is already "over funded" - if such a term can be used - compared to other serious issues like Mental Health and things like Dementia which affects 800k people in this country alone (and in turn is relevant to more people than ALS). However, I'm glad ALS have a lot of money now and hopefully they will be able to put it to good use.

The idea of people giving to Charity more out of peer pressure and being a "sheep" is dangerous. Charity should be something very personal and dear to people, they need to understand where the money is going. I know a lot of people who are against Embryonic Stem cell research, yet that's one of the things ALSA will be granting to labs across the US. Whilst i think stem cell research is a good thing, i find it worrying how many people have either completely missed the point, or don't even know how ALSA and perhaps others (MND associations) work.

Good post and pretty much my thoughts. I have a percentage of my wage deducted from my salary every month. It goes to a number of charities. It is a small but regular amount, I don't feel the need to broadcast over Facebook about this in order to attain likes or social validation. I'm of the opinion that everyone who earns should have a small percentage of their wage deducted to charity. This way there wouldn't be this sheep like BS, it would be a common and expected task. If you look I'm sure many celebs do it to heighten their standing on the world stage, just as the public are doing it to get attention on FB. You shouldn't be rewarded for donating, it should simply be expected of you and that's it.
 
Good post and pretty much my thoughts. I have a percentage of my wage deducted from my salary every month. It goes to a number of charities. It is a small but regular amount, I don't feel the need to broadcast over Facebook about this in order to attain likes or social validation. I'm of the opinion that everyone who earns should have a small percentage of their wage deducted to charity. This way there wouldn't be this sheep like BS, it would be a common and expected task. If you look I'm sure many celebs do it to heighten their standing on the world stage, just as the public are doing it to get attention on FB. You shouldn't be rewarded for donating, it should simply be expected of you and that's it.

That's not donating, it's taxation.
 
Indeed. The more you earn, the more is 'donated' via tax.

It's like Bill Gates being the biggest philanthropist ever. He wouldn't have been able to donate 0.00001% of what he has if at the age of 16 he'd decided to become a fund raiser or volunteer.
 
That's not donating, it's taxation.

Negative, I have a voluntary amount of my salary taken every month. This behaviour should be expected, not be done on very infrequent occasions with the expectation that I'm going to held up as a hero by all my Facebook followers.
 
Negative, I have a voluntary amount of my salary taken every month. This behaviour should be expected, not be done on very infrequent occasions with the expectation that I'm going to held up as a hero by all my Facebook followers.

I'm of the opinion that everyone who earns should have a small percentage of their wage deducted to charity.

That sounds more like taxation than donations.
 
That sounds more like taxation than donations.

If it's taxation then it isn't optional. I do believe that if you're in a fortunate enough position to earn a living and have such commodities as the internet then it should be expected that you regularly willingly donate money to charity though.
 
This is the main reason I don't give my money to any charities any more.

I know Charity:Water don't work this way. All public donations go straight to the cause. They fundraise for their running costs separately, and publish all of the data about where money comes from, where it goes etc. on their website. I doubt they are the only charity operating in this manner given they have been operational for 8 years now. It has proven to be a successful model.
 
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I didn't say there were. Just highlighting that water in the UK is also a finite resource.

Eh?

How can something be finite if it is constantly being replenished? Something finite has a predictable or measurable ending. You cant put a date/time on when the UK's water reserves will become completely depleted because they are constantly being replenished. It's a cycle.

Hosepipe bans come in force when reserves become low. It's not about putting a date on when water will run out, its about putting a date on when it will fill up again.
 
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So just found out only 27% of the money raised goes towards research into a cure.

So wheres the rest of the money going? Whos pockets are being lined here?

Here are the salaries for the leadership of the group

Jane H. Gilbert – President and CEO – $339,475.00
Daniel M. Reznikov – Chief Financial Officer – $201,260.00
Steve Gibson – Chief Public Policy Officer – $182,862.00
Kimberly Maginnis - Chief of Care Services Officer – $160,646.00
Lance Slaughter - Chief Chapter Relations and Development Officer – $152,692.00

Michelle Keegan – Chief Development Officer – $178,744.00
John Applegate – Association Finance Officer – $118.726.00
David Moses – Director of Planned Giving – $112,509.00
Carrie Munk – Chief Communications and Marketing Officer – $142,875.00
Patrick Wildman – Director of Public Policy – $112,358.00
Kathi Kromer – Director of State Advocacy – $110,661.00

Jesus christ....

I am sure this has already been said but the figure of 27% has been made up.

http://www.snopes.com/politics/business/als.asp
 
That's absurd.

Perhaps, to you. Wasting water is absurd to me. Perhaps you don't consider regular donating to be important to you.

Eh?

How can something be finite if it is constantly being replenished? Something finite has a predictable or measurable ending. You cant put a date/time on when the UK's water reserves will become completely depleted because they are constantly being replenished. It's a cycle.

Hosepipe bans come in force when reserves become low. It's not about putting a date on when water will run out, its about putting a date on when it will fill up again.

Amusing you felt the need to explain that. Cheers ;) Nothing to do with my point that wasting water is absurd though.
 
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