Associate
- Joined
- 10 Oct 2007
- Posts
- 1,165
- Location
- in the arse of england.
Hmmm, where to start.
Six weeks ago, I started having bad night swets every few days, I thought nothing of it to be honest and just thought I had a cold or some sort. two weeks later I started to get really itchy man bits with it!!
And so i thought "crap that's not good"
and phoned the G.U. clinic for an appointment. a week later i got the tests done for everything and got my results a week after that, the doc told me I was all clear. To which I asked her, "are you sure? i mean really sure?"
The next week, in the shower I noted my glands were up in my groin, not huge but very solid and the left one was visibly noticeable as a bump. By this time the night swets are near every night, So, off down the docs I go, she examins me and warns me from the syptoms Ive discribed and from the evidence she can feel, I may have Lymphoma.
I figured I may get cancer one day from something but never thought it would happen in my 20`s. At present I am in limbo, I have had a chest exray and bloods taken and have another ten days to wait for results. Ive been reading everything I can and trying to keep my mind busy otherwise i may go nutts.
What little I know is if I have hodgekins lymphoma then I have an 80% chance of survival. If its non hodgekins its 60%. If its high grade lymphoma of either type and I beat it, it should be gone. If its low grade then eventually it will come back and require more treatment, but eventually it will kill me. From what ive been reading, ten to twenty years.
Its been that sort of a year really, friend dies, crashed car, next car nicked before insured, jobs gone, relationship goes pop, benefits cut to half due to self employment, now possibly cancer.
Still, it could be worse. lol
Will update the O.P. when I have more. If anyone has any relevant information or story's from their own experiences I would love to read them if you don't mind sharing. Many thanks to you all.
UPDATE:
Just had a call from the hospital, I have a haematology appointment in the 10th of November at 11 a.m. However, I just phoned the G.P`s secretary to ask about the results of my blood and chest ex-ray and they came back with no further action (which i think is clear) So now im confused as hell...
results that tell me nothing, still have lumps, still have night swets (although my body gave me abit of a break last and decided to only partially drown me.) cant speak directly to my G.P. as she is on holiday. so I just dont know what the hell to do or think now,
UPDATE: 04/11/09
OK, so I managed to speak to a yesterday afternoon who went through my bloody results, the chest ex-ray is indeed fine, however the blood unfortunately is not. its come back with several "indicators" according to the G.P. the no further action it was marked with simply means what i feared, nothing more for the G.P. to do, its all the hospital now from here on out.
UPDATE: 04/12/09
my appologies for not comming on sooner but truth be told ive been uterly knackered for the most part and have spent most of my days resting/sleeping on the couch with the cat, hot chocolate and Dave, no not a man called dave, the channel. My house mates on here and just mumbled that he saw this thread was live so I thought i had better come on to let you all know im not actually dead. not yet anyway. rest assured if i do die i will come back and let you know...
I havent updated this as I dont know much more than before really, the specialist looked at the lump and is not sure so sent me for CT scans, I only had them done two days ago so am just waiting for the results. He has told me that if they show nothing, the next steps to check my bone marrow, then failing that we start looking for/treating for something viral but he said with a viral agent they may never know what it is beyond looking for the obvious (hiv and such) and will have to try to find a treatment for what ever it is, (presumably anti biotics, anti retrovirals ect) I know im not HIV+ / hepatitus or any such because they tested for that, so am just sat on my bum waiting for the 23rd december when I will have more news. hopefully good. Virus I can deal with.
My thanks to my housemate whos on here for mumbling to me that this thread was live, and indeed to all of you lot, you don't know me yet your interest is touching, (but not in a gay, nitting on a train sort of way... wtf is that about... ? :/)
On a side note, having a CT scan is possibly the weirdest thing I have ever had done... you have warm iodine pumped into you as your being scanned, its very uncomfortable and extraordinarily unsettling, plus you feel like your weeing all the way through!!
ah well, ces`t la vie.
Six weeks ago, I started having bad night swets every few days, I thought nothing of it to be honest and just thought I had a cold or some sort. two weeks later I started to get really itchy man bits with it!!
And so i thought "crap that's not good"
and phoned the G.U. clinic for an appointment. a week later i got the tests done for everything and got my results a week after that, the doc told me I was all clear. To which I asked her, "are you sure? i mean really sure?" The next week, in the shower I noted my glands were up in my groin, not huge but very solid and the left one was visibly noticeable as a bump. By this time the night swets are near every night, So, off down the docs I go, she examins me and warns me from the syptoms Ive discribed and from the evidence she can feel, I may have Lymphoma.
I figured I may get cancer one day from something but never thought it would happen in my 20`s. At present I am in limbo, I have had a chest exray and bloods taken and have another ten days to wait for results. Ive been reading everything I can and trying to keep my mind busy otherwise i may go nutts.
What little I know is if I have hodgekins lymphoma then I have an 80% chance of survival. If its non hodgekins its 60%. If its high grade lymphoma of either type and I beat it, it should be gone. If its low grade then eventually it will come back and require more treatment, but eventually it will kill me. From what ive been reading, ten to twenty years.
Its been that sort of a year really, friend dies, crashed car, next car nicked before insured, jobs gone, relationship goes pop, benefits cut to half due to self employment, now possibly cancer.
Still, it could be worse. lol
Will update the O.P. when I have more. If anyone has any relevant information or story's from their own experiences I would love to read them if you don't mind sharing. Many thanks to you all.
UPDATE:
Just had a call from the hospital, I have a haematology appointment in the 10th of November at 11 a.m. However, I just phoned the G.P`s secretary to ask about the results of my blood and chest ex-ray and they came back with no further action (which i think is clear) So now im confused as hell...
results that tell me nothing, still have lumps, still have night swets (although my body gave me abit of a break last and decided to only partially drown me.) cant speak directly to my G.P. as she is on holiday. so I just dont know what the hell to do or think now,
UPDATE: 04/11/09
OK, so I managed to speak to a yesterday afternoon who went through my bloody results, the chest ex-ray is indeed fine, however the blood unfortunately is not. its come back with several "indicators" according to the G.P. the no further action it was marked with simply means what i feared, nothing more for the G.P. to do, its all the hospital now from here on out.
UPDATE: 04/12/09
my appologies for not comming on sooner but truth be told ive been uterly knackered for the most part and have spent most of my days resting/sleeping on the couch with the cat, hot chocolate and Dave, no not a man called dave, the channel. My house mates on here and just mumbled that he saw this thread was live so I thought i had better come on to let you all know im not actually dead. not yet anyway. rest assured if i do die i will come back and let you know...
I havent updated this as I dont know much more than before really, the specialist looked at the lump and is not sure so sent me for CT scans, I only had them done two days ago so am just waiting for the results. He has told me that if they show nothing, the next steps to check my bone marrow, then failing that we start looking for/treating for something viral but he said with a viral agent they may never know what it is beyond looking for the obvious (hiv and such) and will have to try to find a treatment for what ever it is, (presumably anti biotics, anti retrovirals ect) I know im not HIV+ / hepatitus or any such because they tested for that, so am just sat on my bum waiting for the 23rd december when I will have more news. hopefully good. Virus I can deal with.
My thanks to my housemate whos on here for mumbling to me that this thread was live, and indeed to all of you lot, you don't know me yet your interest is touching, (but not in a gay, nitting on a train sort of way... wtf is that about... ? :/)
On a side note, having a CT scan is possibly the weirdest thing I have ever had done... you have warm iodine pumped into you as your being scanned, its very uncomfortable and extraordinarily unsettling, plus you feel like your weeing all the way through!!
ah well, ces`t la vie.
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