Thanks for your concern guys, sorry I haven’t updated this thread in a while. Don’t worry about what Chinchilla says. I took it as a joke and nothing else. We joke like a lot at home too. Very black humour my lot has. I use it as an excuse anyway for things like getting the last roast potato or piece of KFC. I think they’re starting to get wise to it now.
At the beginning of 2021, I ended up back in hospital for a few days as I was suffering badly from ascites and pulmonary oedema. My belly was swollen with water so I couldn’t eat properly but was still putting weight on with the water. At one point I had just under 5Kg of fluid in my abdominal cavity. Not pleasant at all. At night the water filled my lungs and I was waking up gasping like I was drowning (which I effectively was). I ended up trying to sleep sitting up every night. In hospital, I was loaded again with lots of furosemide to get it all out. I was sent home on a higher dose of meds and it’s all been very well controlled since. The first night of being able to lie flat in my own bed and breath easily was bliss. One of those things you take for granted.
The doctors are very happy with my progress. My blood tests are showing that my body is coping well and adjusting to the situation. Only minor drawback is that I am now prediabetic.
I have difficulty moving about a lot and constantly feel weak and off balance when standing or sitting up, but the docs think this is something that can be helped. They’ve told me that my long inactivity has led to a loss of core strength. Which is what people need to feel normal and balanced, and I have lost a lot of muscle mass in my legs and lower back. My aim for the new year is to try and get that back. I am being supplied an NHS physio to help me. I’ll set myself little targets at a time and see how far I can get.
I still haven’t signed a DNR form, I just can’t bring myself too, and since it became clear I was lasting longer than they expected, they have now stopped asking.
I’m just going along as best as I can. Eating a lot better now and actually putting on a bit of timber, which is a good sign. Still enjoying my beers and watching football and arguing with people on here. And of course, I have my 3080 which OCUK very kindly made sure I got last year.
I know I will take a turn for the worse one day soon enough, but until then, I’ll keep positive and do what I can to prolong whatever time I have left. Thanks all and happy Christmas!
At the beginning of 2021, I ended up back in hospital for a few days as I was suffering badly from ascites and pulmonary oedema. My belly was swollen with water so I couldn’t eat properly but was still putting weight on with the water. At one point I had just under 5Kg of fluid in my abdominal cavity. Not pleasant at all. At night the water filled my lungs and I was waking up gasping like I was drowning (which I effectively was). I ended up trying to sleep sitting up every night. In hospital, I was loaded again with lots of furosemide to get it all out. I was sent home on a higher dose of meds and it’s all been very well controlled since. The first night of being able to lie flat in my own bed and breath easily was bliss. One of those things you take for granted.
The doctors are very happy with my progress. My blood tests are showing that my body is coping well and adjusting to the situation. Only minor drawback is that I am now prediabetic.
I have difficulty moving about a lot and constantly feel weak and off balance when standing or sitting up, but the docs think this is something that can be helped. They’ve told me that my long inactivity has led to a loss of core strength. Which is what people need to feel normal and balanced, and I have lost a lot of muscle mass in my legs and lower back. My aim for the new year is to try and get that back. I am being supplied an NHS physio to help me. I’ll set myself little targets at a time and see how far I can get.
I still haven’t signed a DNR form, I just can’t bring myself too, and since it became clear I was lasting longer than they expected, they have now stopped asking.
I’m just going along as best as I can. Eating a lot better now and actually putting on a bit of timber, which is a good sign. Still enjoying my beers and watching football and arguing with people on here. And of course, I have my 3080 which OCUK very kindly made sure I got last year.
I know I will take a turn for the worse one day soon enough, but until then, I’ll keep positive and do what I can to prolong whatever time I have left. Thanks all and happy Christmas!
