Crohns / ulcerative colitis sufferers

Thekwango · 21 Jun 2018 at 11:23

dl8860 said:
Thanks for all the replies guys. Had a word just now with one of the directors who I get on well with and he's said definitely book it as a sick day, regardless of what is or isn't in my contract and he'll override anything that needs overriding. Indeed is it often the case HR just toe the line and actually given a reasonable explanation something can be accommodated. Happy days!

good outcome. typical hr drone being a drone!

dowie said:
I don't think you should worry about your sick leave record being bad when you have a chronic condition - if you have an operation or a colonoscopy then that is a reasonable reason to take time off... your employer should only be worried about what you actually produce/your overall work output etc...

sadly not all employers have such a sensible view point.

dl8860 · 21 Jun 2018 at 11:58

On sedation for a FS or not, I didn't have it for the only FS I had (2012), and remember wishing after that I had. For my two colonoscopies since I have both had sedation, and felt very happy that I did. I don't remember feeling any of the negative effects of sedation mentioned, as long as you have someone to help you get home then you just feel a bit spaced out and sleepy. Not a problem for me!

Thekwango · 21 Jun 2018 at 12:06

dl8860 said:
On sedation for a FS or not, I didn't have it for the only FS I had (2012), and remember wishing after that I had. For my two colonoscopies since I have both had sedation, and felt very happy that I did. I don't remember feeling any of the negative effects of sedation mentioned, as long as you have someone to help you get home then you just feel a bit spaced out and sleepy. Not a problem for me!

lol, yea it's that spaced out sleepy thing i do not like. i also tend to feel 'hungover' the next day which, again, i detest. don't get me wrong, if i didn't have those 'side effects' i'd be getting drugged up everytime

but i'd rather put up with a few minutes discomfort to avoid several hours feeling rough.

jacksgotbones · 21 Jun 2018 at 13:49

dl8860 said:
Have you had a cannula before? They aren't bad at all as long as they are fitted properly. In my experience the sedation is certainly worth it. Hope it goes well.

A very very long time ago I had a cannula. Tempted to get some EMLA cream. Thanks

Thekwango said:
i know different folks have different thresholds but i would'nt bother with the sedation for a FS - they're in and out in a few mins. there is a little discomfort but i'd rather that than the hours of feeling 'urgh' and groggy after sedation

i'd defo opt for a bit of sedation for a full on colonoscopy but not for the FS - but then i hate the whole crappy feeling after sedation. i'd rather put up with a bit of discomfort for a couple of minutes than the recovery from sedation.

Ive heard people say a FS is still painful so thought sod it and get the sedation

Thekwango · 21 Jun 2018 at 14:19

jacksgotbones said:
Ive heard people say a FS is still painful so thought sod it and get the sedation

i'd say uncomfortable rather than painful but obviously pain perception varies from person to person.

jacksgotbones · 21 Jun 2018 at 18:41

Thekwango said:
i'd say uncomfortable rather than painful but obviously pain perception varies from person to person.

Ill find out for sure on the 2nd and report back

Thekwango · 21 Jun 2018 at 19:39

jacksgotbones said:
Ill find out for sure on the 2nd and report back

Very true! Drugs or no drugs, good luck and I hope it all goes well - or as well as it can go when you’ve got someone stuffing a tube up your khyber pass!!

WantoN · 21 Jun 2018 at 23:45

I am quite unusual in that I have to be fully sedated when I have a flexisig or colonoscopy; it is utter agony.

I would always go for sedation if someone is sticking something up your bum, but honestly most people I’ve spoken to said it was totally fine without.

LeMson · 22 Jun 2018 at 00:41

The sedation is the best bit, I love it :E

dowie · 22 Jun 2018 at 00:55

jacksgotbones said:
A very very long time ago I had a cannula. Tempted to get some EMLA cream. Thanks

just look away when they put it in, takes a few seconds and that's it, it is in and you don't really need to pay much attention to it

WantoN · 22 Jun 2018 at 03:41

jacksgotbones said:
A very very long time ago I had a cannula. Tempted to get some EMLA cream. Thanks

Just so you know, a lot of these things are about exposure too.

I’m sure plenty here have had (literally) hundreds of blood tests, dozens of canulas and a fair few tubes up the marmite factory. You get used to most things if they don’t hurt much : at all.

Also, I’d take a flexi over a liver biopsy any day.

Not exactly what you wanted to hear I know!

jacksgotbones · 22 Jun 2018 at 11:18

Thekwango said:
Very true! Drugs or no drugs, good luck and I hope it all goes well - or as well as it can go when you’ve got someone stuffing a tube up your khyber pass!!

I cannot wait to realise all the air after either

dowie said:
just look away when they put it in, takes a few seconds and that's it, it is in and you don't really need to pay much attention to it

Yeah may have too

was brave enough to have 3 blood tests 2 wee ago after avoiding them my whole life!

WantoN said:
Just so you know, a lot of these things are about exposure too.

I’m sure plenty here have had (literally) hundreds of blood tests, dozens of canulas and a fair few tubes up the marmite factory. You get used to most things if they don’t hurt much : at all.

Also, I’d take a flexi over a liver biopsy any day.

Not exactly what you wanted to hear I know!

I pray for no more bloods and it doesnt come back as UC or crohns.. or cancer!

WantoN · 22 Jun 2018 at 12:14

jacksgotbones said:
I pray for no more bloods and it doesnt come back as UC or crohns.. or cancer!

I really, really hope you don’t too mate, there’s plenty of possibilities so let’s hope it’s something minor and fleeting.

If not, at least this thread is full of people willing to help and share.

As for bloods I used to have a real problem with needles, I had to have all of them done lying down and I’d often go even then. I genuinely couldn’t give a toss now, I watch the canulas go in, and I’ve had them in my forearms, hands, feet and I’ve even had a deep arterial one in the wrist, and whilst I’ll admit that was quite painful, I’d have puked before and I didn’t even grumble. So trust me, it gets better!

If you do have it you’ll probably be pooing into a tray and scraping it into a vial more than anything

jacksgotbones · 22 Jun 2018 at 12:25

WantoN said:
I really, really hope you don’t too mate, there’s plenty of possibilities so let’s hope it’s something minor and fleeting.

If not, at least this thread is full of people willing to help and share.

As for bloods I used to have a real problem with needles, I had to have all of them done lying down and I’d often go even then. I genuinely couldn’t give a toss now, I watch the canulas go in, and I’ve had them in my forearms, hands, feet and I’ve even had a deep arterial one in the wrist, and whilst I’ll admit that was quite painful, I’d have puked before and I didn’t even grumble. So trust me, it gets better!

If you do have it you’ll probably be pooing into a tray and scraping it into a vial more than anything

thanks

dl8860 · 2 Jul 2018 at 22:53

Can't stand this bleeding moviprep. So hard to keep down. Only 400ml left to go. Colonoscopy at 1.30pm tomorrow. Just looking forward to eating a massive steak afterwards!

MOOGLEYS · 2 Jul 2018 at 22:56

I have never finished it all I just drank it until I’m passing liquid only and never had an issue. The stuff is horrid....

dl8860 · 2 Jul 2018 at 23:15

Alright, there goes the last 200ml down the drain! Been nothing but clear liquid for a few hours now. Think I had citramax and senna last time and it was much better..

Holdon Tight · 2 Jul 2018 at 23:54

For the last two and a half years I’ve been in virtually constant flare with colitis. Six hospital stays and various combinations of infusion meds and oral meds, it seems I’m finally in remission (can we say that?).
Infliximab every four weeks (hopefully reducing regulatory)
Azathrioprine
Mesalazine
Plus hyper tension meds.
Good luck to all, fingers crossed.

Thekwango · 3 Jul 2018 at 00:12

Holdon Tight said:
For the last two and a half years I’ve been in virtually constant flare with colitis. Six hospital stays and various combinations of infusion meds and oral meds, it seems I’m finally in remission (can we say that?).
Infliximab every four weeks (hopefully reducing regulatory)
Azathrioprine
Mesalazine
Plus hyper tension meds.
Good luck to all, fingers crossed.

sorry to hear that.....2½ years is a long time to be in such pain and discomfort. glad the meds are getting on top of it though.....long may it continue.

personally i'm currently tapering down off of steroids ...sooner I'm off them the better, I've blew up like a goddamn beach ball!

mattyg · 3 Jul 2018 at 01:51

Seems I've missed the updates to the thread.

I wouldn't have sedation for a FS... Although my colitis is within the last foot or two...My first FS I was in discomfort like trapped wind possibly from them blowing me up. However I was also at the time in a bad flare so that didn't help. I also think they had to go further up as it was my first in order to see where the disease was

The 2 since I've not had any sedation and as long as you relax (yeah I know..lol) then it was ok. My Gastro nurse was there so had a friendly face and I was having a laugh and a joke with the team. They were a little amazed I wanted to watch the screen But I could ask questions and they were laughing about which one of them would describe it as moderate and who would say severe.

Hope everyone who isn't 90% gets there soon..