18 month old daughters MRI results - a lot worse than we thought

Skywalker said:
But the score is 1 - 0 to Bethany :D
Click to expand...

Here's hoping she wins by a mile and keeps a clean sheet :)

Strangely enough I was thinking about digging this thread up earlier to see if there was an update.

Everythings crossed for your family. :)
 
I hope you things really work out for you. Reading that broke my heart, and made me well up. Makes me more determined to see my nephew, because if anything happened I couldn't forgive myself.

For what its worth, I put positive thoughts and vibes your way for your family.
 
My son (now 5) was born with Cerebral Palsy and I tell you I felt exactly the same way you do when he was diagnosed.. it's heartbreaking and the thought of your kid not being able to lead a "normal life" is terrible. But he is now 5 and the only difference in him is that he walks on his tiptoes (tight hamstrings) and occasionally trips over - what I'm trying to say is don't give up, it may turn out better than the initial outlook.

Sam (my son) is an absolute gem, everyone who knows him loves him to bits and he is honestly the class favourite in his school - not because he is "different" (he's 99% not) but he has such a good character and heart. Kids come through all this remarkably well and tolerate it all, so fingers crossed for you buddy and both mine and Sam's thoughts will be with you :)
 
I know what you must be going through. We lost a child last summer (miscarriage after years of trying) and the thing you always want to know is why? I'm sure its a question you have asked yourself a thousand times. Sometimes there are no answers (which from a science background makes it very hard to take) but there is no point dwelling on it as you only become miserable. You need to make her life as wonderful as it can be. And I know you will.

We now have Rhys, 20 weeks old. He is our reason for living. He is so wonderful. The very thought of anything happening to him has me sitting here with tears streaming down my face... shaking uncontrollably. I dont think non-parents understand the strength of feeling you have for your child.

Be sure to keep us up to date on developments.
You are in my thoughts.
 
Skywalker - We have a 4yr old daughter and have gone through a similar experience to since she was about 14 months old. Our daughter was diagnosed with a genetic condition at 14months after progressing normally from birth until about 8mths when she started to lose her skills. She now has Epilepsy, Breathing problems, has a feeding tube into her stomach, cannot walk or talk and has limited life expectancy.

But, she is still our beautiful little girl, she can communicate with her eyes and when she smiles she lights up the room. Epilepsy is managable these days via a whole range of drugs that do not leave you with a 'monged out' child and the Special School she attends is brilliant at helping her.

Having a child with special needs does mean your life will be different but I have gained so much understanding of children with special needs that I feel I am a better person for it.

Life tends to throw you some curveballs, but the human spirit is a resiliant thing.

Chin up mate, if this forum has shown me one thing is that there are some great people who will rally round when you need it most.
 
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