Stem Cell (petition)

Privateer · 31 Jan 2009 at 12:26

I've got to raise 18 K to go to china.
I'm trying to get the British Doctors to copy the Chinese, as yet they ignore me, I need people to post here and in a few months I'll be on the news with my petition
thanks everybody.

www.stemcellschina.com

http://www.google.co.uk/search?hl=en&q...earch&meta=

Glaucus · 31 Jan 2009 at 12:37

Want to tell us what it's about, as that link isn't loading.. A quick copy and paste would be good.

Burnsy2023 · 31 Jan 2009 at 12:46

AcidHell2 said:
Want to tell us what it's about, as that link isn't loading.. A quick copy and paste would be good.

Agreed.

V4NT0M · 31 Jan 2009 at 12:52

The first link doesn't load and the second link has been truncated and therefore does not work.

Privateer · 31 Jan 2009 at 12:53

typical my only way forward is to make people aware of my Ataxia, and a cure in China and the link is broken.

Morba · 31 Jan 2009 at 12:58

no, the only way forward is to give people an idea about what they are actually giving money for

Sweetloaf · 31 Jan 2009 at 13:04

Privateer said:
typical my only way forward is to make people aware of my Ataxia.

No, you just chose to do that. If you want help, just like everything else in this world, you need to explain properly what it's for. You come across as having a bad attitude towards the people you have just asked for help.

Try again.

Glaucus · 31 Jan 2009 at 13:05

Something along these lines

[url]http://en.wikipedia.org/wiki/Ataxia[/url] said:
Ataxia (from Greek α- [used as a negative prefix] + -τάξις [order], meaning "lack of order") is a neurological sign and symptom consisting of gross lack of coordination of muscle movements. Ataxia is a non-specific clinical manifestation implying dysfunction of parts of the nervous system that coordinate movement, such as the cerebellum. Several possible causes exist for these patterns of neurological dysfunction. The term "dystaxia" is rarely used as a synonym.

[url]http://vimeo.com/2333247[/url] said:
Brian traveled to China over the summer of 2008 to receive a second round of adult stem cell therapy for the treatment of symptoms associated with Ataxia. A muscle wasting neurological disorder, Brian's SCA1 saw marked improvement a second time around.

Adult stem cells are not a cure - but may offer quality-of-life improvements to patients with few or no alternatives. Hospitals in China now treat a wide range of spinal cord injuries, neurodegenerative conditions and are rapidly tackling cardiovascular conditions as well.

While we have hope that adult stem cell therapies will be available in many other countries in the near future, many conditions are currently treated through providers in China. Follow patients and read experiences at StemCellsChina.com.

More info at http://www.stemcellschina.com/ When it's up

And then a paragraph of what the 18k will be fore..

Privateer · 31 Jan 2009 at 13:12

AcidHell2 said:
Something along these lines

More info at http://www.stemcellschina.com/ When it's up

And then a paragraph of what the 18k will be fore..

i know Brian very well his treatment worked, why dont the British copy the Chinese.
the Chinese links are down today.

Pilky01 · 31 Jan 2009 at 13:15

Privateer said:
i know Brian hes been to China twice why dont the British copy the Chinese.

So the petition is to make stem cell treatment available on the NHS?

And the 18k is for you to go to China and have the treatment.

Glaucus · 31 Jan 2009 at 13:16

Privateer said:
i know Brian hes been to China twice why dont the British copy the Chinese.

I have no idea as I know nothing about the subject, I doubt any of us know anything about it apart from you. That's why you need to explain to us what it is and what's going on. I just googled and that came up.

calumwm · 31 Jan 2009 at 13:18

need more publicity. my nans got it, pretty bad

Privateer · 31 Jan 2009 at 13:33

calumwm said:
need more publicity. my nans got it, pretty bad

its the worlds nastiest disease I have Ataxia SC1, I'm screwed but 6 Umbilical cord Stem Cell injections could fix me, Brian McNeal from Scotland has been twice hes OK, i'm willing to pay for any treatment, but i have to go to China, I'm trying to be treated over here, i need the strength of a petition to do it.
also my sister has it./

Glaucus · 31 Jan 2009 at 13:35

Is there a uk charity for this? Do you know why the uk doesn't do it?

First things first if there is no charity is to register a charity and right to mps, nhs etc and find out why the uk doesn't do it.

Pilky01 · 31 Jan 2009 at 13:36

So are you trying to get the treatment over here or in China?

Try writing to your MP/charities etc

Delvis · 31 Jan 2009 at 13:41

Pilky01 said:
So are you trying to get the treatment over here or in China?

Try writing to your MP/charities etc

I've got to raise 18 K to go to china.

Privateer · 31 Jan 2009 at 13:47

Pilky01 said:
So are you trying to get the treatment over here or in China?

Try writing to your MP/charities etc

i've asked here for help as yet no replys.
http://www.ataxia.org.uk/

SillyHeatsink · 31 Jan 2009 at 14:15

This thread strikes me as unnecessarily confusing. I skimmed through, then read the whole thing, twice. Suggest delete thread, and start again with an explanation of why you want money, some sort of credentials, and ways to donate (PayPal?)?

Privateer · 31 Jan 2009 at 14:25

SillyHeatsink said:
This thread strikes me as unnecessarily confusing. I skimmed through, then read the whole thing, twice. Suggest delete thread, and start again with an explanation of why you want money, some sort of credentials, and ways to donate (PayPal?)?

I need 18K to go to China but that's not what I'm after, our doctors refuse to treat me, i think a petition would be hard to refuse and id rather give my money to the UK.

Glaucus · 31 Jan 2009 at 14:26

Privateer said:
I need 18K to go to China but that's not what I'm after, our doctors refuse to treat me, i think a petition would be hard to refuse and id rather give my money to the UK.

It depends why they don't treat. Is it because of uk laws on stem cells? lack of research? hasn't passed the strict medical trials? remember china hasn't got these laws in placed so is much easier to get "experimental" treatment.