Tinnitus who suffers from it

I don't know if I've had it my whole life or what, but for as long as I can remember silence had a sound. I never started questioning that until more recently. Unfortunately, being aware it's tinnitus has made me more aware of the sound.
 
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Unfortunately, being aware it's tinnitus has made me more aware of the sound.
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Isn't it just bleeding lovely?

I'd like to experience one of them complete sense deprivation rooms but the tinnitus would drive me mental.
 
I have pretty bad TMJ on both sides, so if my MRI magically finds nothing (expected), I'm going to get my dentist to cook up one of them night brace things to realign the jaw and fix the TMJ. If I'm lucky it'll change how much pressure the jaw joint puts on that area (my tinnitus gets much louder when I open my jaw wide, and to the left side, but not the right) so I'm hoping it'll dampen it way down or maybe eliminate it.
 
How do people deal with this if they work in a quiet office? I usually play pink noise from my phone speaker at my desk. Sometimes i can handle it without masking, depends on mood i guess.
 
Tephnos said:
I have pretty bad TMJ on both sides, so if my MRI magically finds nothing (expected), I'm going to get my dentist to cook up one of them night brace things to realign the jaw and fix the TMJ. If I'm lucky it'll change how much pressure the jaw joint puts on that area (my tinnitus gets much louder when I open my jaw wide, and to the left side, but not the right) so I'm hoping it'll dampen it way down or maybe eliminate it.
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In my case it was jaw related. I am just over two weeks post op of double jaw surgery (for an overbite). When I woke from the operation, after the initial reaction of feeling groggy, sore and sick, I noticed almost immediately that my tinnitus had gone. I still have a pressure (under water) feeling/sound, but the ''eeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeee'' ringing is gone. I spoke with my surgeon today and said he's never had that before (in fact he warned me before the op it could make the tinnitus worse) but in my case, it appears to of sorted it..............


I would highly recommend, going to a dentist and having a splint/mouth guard made up (think it cost £30 last time I did it). Not been able to use mine for years because of the braces (just not practical) but when I did have it, I noticed a dramatic reduction in my tinnitus after a few months of use. At worse it stopped me grinding my teeth.
 
Not sure if I have been here before but I started to suffer from Tinnitus about 5 years. Well, that is not entirely accurate. I suffer from something called Meniers Disease which came on me suddenly. The immediate effect was a temporary complete loss of hearing in my right ear. This was followed by a permanent loss of hearing of 30% primarily in the lower range on that side. The tinnitus is a pleasant additional after effect from the nerve damage caused. At this point I am lucky as it hasn't progressed any further and I have not, touch wood, suffered from vertigo as yet.

I use a white noise generator on my phone which is very good but I cannot sleep with headphones in. End up falling asleep on the couch in front of the TV.
 
I seem to be getting better. They say there is no cure, but that's not entirely true. Its you making it louder. Keep your mind busy and active in other thoughts. Take up new hobbies and you will find you'll spend less time sitting there stressing about the ringing/whooshing in your ears and all of a sudden it'll disappear, but only because you've not thought about it. Yes it'll come back when you start thinking about it again. The key here is accepting and moving on. Yep i know its more difficult that just reading this and thinking ok that was easy.. Cos its something that takes over your everyday background thoughts. Bit like being in love right. Remember that first time ? You sat there thinking about that girl you just split up with all day long, but you moved on eventually, and now you couldn't give a damn. Pretty much the same thing. For everyday living, i just have some background music on, keep my mind busy, and really the only time i find it REALLY bothersome is wearing earplugs when on my motorcycles... I was at the point when i said to myself do i really want to ride, cos it would trigger it really bad, and i'd spend hrs moping around afterwards thinking about it. But even that, i'm getting better. All that being said, writing this post, and now my ears are ringing again... Thanks Thread !!!!! Grrrrrrrrr :)
 
GeneralD said:
In my case it was jaw related. I am just over two weeks post op of double jaw surgery (for an overbite). When I woke from the operation, after the initial reaction of feeling groggy, sore and sick, I noticed almost immediately that my tinnitus had gone. I still have a pressure (under water) feeling/sound, but the ''eeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeee'' ringing is gone. I spoke with my surgeon today and said he's never had that before (in fact he warned me before the op it could make the tinnitus worse) but in my case, it appears to of sorted it..............


I would highly recommend, going to a dentist and having a splint/mouth guard made up (think it cost £30 last time I did it). Not been able to use mine for years because of the braces (just not practical) but when I did have it, I noticed a dramatic reduction in my tinnitus after a few months of use. At worse it stopped me grinding my teeth.
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Thanks for that. I'm seeing the maxillofacial doc within the next couple of months, and hopefully, we can work something out similar to what you've had done.
 
I have a constant static-like sound, sounds like it might be coming from a tense muscle. Nothing I've tried (or people I've seen) seems to get rid of it :/
 
Bassmansam said:
Hopefully this device will provide some relief.

https://www.reddit.com/r/tinnitusre..._device_for_tinnitus/?st=JOOMEFS6&sh=3d7a908e

Exciting stuff! I would rate my t as mild-moderate but would love to be rid of it. To not have to use pink noise apps at home/ quiet environments would be amazing.
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Yes, i think this is different from the Susan Shore device/trials, that are currently underway. She's an Otolaryngology professor in Michigan university who's been studying T for the last 15-20yrs. Go to ata.org and look at the podcasts there on Susan Shore's work... Once they complete the latest clinical trial (sometime in 2019) they'll be looking for commercialization. FDA approval on devices is around 6months, according to the FDA themselves. So really within 2 yrs, expect to see something !! yay.

Also there's currently FX-322 which aims to restore the hair cells. They've basically unlocked the dna code, where mammals are unable to regrow the hairs in the cochlear.

Basically within the next few yrs, going deaf should hopefully be a thing of the past and with that, tinnitus should actually have a FDA approved treatment or two !!

This is all great news for those who suffer from this.
 
thedoc46 said:
Yes, i think this is different from the Susan Shore device/trials, that are currently underway. She's an Otolaryngology professor in Michigan university who's been studying T for the last 15-20yrs.

Also there's currently FX-322 which aims to restore the hair cells. They've basically unlocked the dna code, where mammals are unable to regrow the hairs in the cochlear.

Basically within the next few yrs, going deaf should hopefully be a thing of the past and with that, tinnitus should actually have a FDA approved treatment or two !!

This is all great news for those who suffer from this.
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Yeah i read a tinnitus forum where they have mentioned the other two treatments/cures. But this might provide some relief in the meantime as those devices are a year or two off i think.

Try not to visit that forum too often as its got a lot of crazy/extreme people there who live like hermits.
 
Bassmansam said:
Yeah i read a tinnitus forum where they have mentioned the other two treatments/cures. But this might provide some relief in the meantime as those devices are a year or two off i think.

Try not to visit that forum too often as its got a lot of crazy/extreme people there who live like hermits.
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yeah lol tell me about it.. I saw a reply to this thread, and i was umm should i even go there. cos i know it'll trigger my T. But all this is good news, so glad you shared. I think this is the Minnesota device they've been talking about.. Like you, i try to avoid the T Forums, as it really only makes matters worse. To some much worse !!! Stay off the T forums, get on with life, do your best to live a normal life, and before you know it, you'll not be thinking about it, and ONLY then will it go away. But actually having a cure rather than using just mind over matter which i know many find very hard at first will help millions upon millions, who get this.
 
Had it for years. Both ears. Gotten worse too. Can hear above most noises. In the night it is VERY loud. Hissing, humming, beating noises.

Had ears cleaned etc but still here! Have learnt to live with it but it is getting more annoying.
 
koolpc said:
Had it for years. Both ears. Gotten worse too. Can hear above most noises. In the night it is VERY loud. Hissing, humming, beating noises.

Had ears cleaned etc but still here! Have learnt to live with it but it is getting more annoying.
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Hang in there brother ! The cavalry is on its way ! and on that note, i'm out of this thread. Otherwise i'll just trigger the ........(can't swear, on OcUK but use your most colourful of imaginations as to what words i'd would use to describe it !!) I said to myself the next time i go searching or talking about the beep word, is late 2019 when something will hopefully be just down the road !
 
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