Tinnitus who suffers from it

I suffer too. Mine is there pretty much all the time...a high pitch wine and a pulsating low fuzzy tone at the same time. I've just learnt to live with it and it doesn't affect me much, only the odd occasion when watching TV at night that it gets a bit annoying.
 
Bassmansam said:
I had some custom made from ACS. Cost me 140 but they are so good, very comfortable and moulded to your ear so you know your getting good protection.
Click to expand...
Yeah, I was looking at those. I'd always be afraid of losing them though!

Bassmansam said:
Uhh so why is there no awareness of tinnitus when you go to a concert or a club? When you smoke a cigarette the consequences are clearly displayed on the packet.

Maybe if there was better awareness people wouldn’t get this crappy condition.
Click to expand...

It seems to be a UK thing. Every European event I've been to strongly advertise and recommend hearing protection and have the industrial size hoppers which sell them for €2 a pair. They're not just the foam ones either. They also sell the better plugs for around €10-€13 a pair at the merchandise stalls.

If I go to a UK event I'm probably 1 of a handful of people I see wearing ear protection, go to a European event and it's completely different, the vast majority of people are wearing them.
 
Chronic sufferer here.
Also suffer from hyperacusis. I've had MRI scans the lot. No reason can be found and I've just had to learn to cope.
The lack of support for such a debilitating condition is disgraceful.

Some days it bothers me more than others.
I've been on the verge of depression at the worst. Been going on for three years and started with an ear infection that my GP said didn't exist at the time. The infection grew and developed into an abscess which burst and that's been it ever since, constant high pitched whistling, hyperacusis and impaired low frequency hearing.

My GP is a see you en tee.
 
Last edited:
Teh_Next said:
Chronic sufferer here.
Also suffer from hyperacusis. I've had MRI scans the lot. No reason can be found and I've just had to learn to cope.
The lack of support for such a debilitating condition is disgraceful.

Some days it bothers me more than others.
I've been on the verge of depression at the worst. Been going on for three years and started with an ear infection that my GP said didn't exist at the time. The infection grew and developed into an abscess which burst and that's been it ever since, constant high pitched whistling, hyperacusis and impaired low frequency hearing.

My GP is a see you en tee.
Click to expand...

Did you not see my post about neuromod? A treatment for tinnitus.
 
Teh_Next said:
Chronic sufferer here.
Also suffer from hyperacusis. I've had MRI scans the lot. No reason can be found and I've just had to learn to cope.
The lack of support for such a debilitating condition is disgraceful.

Some days it bothers me more than others.
I've been on the verge of depression at the worst. Been going on for three years and started with an ear infection that my GP said didn't exist at the time. The infection grew and developed into an abscess which burst and that's been it ever since, constant high pitched whistling, hyperacusis and impaired low frequency hearing.

My GP is a see you en tee.
Click to expand...

Had mine nearly 9 years now :( It just started for no reason. Had MRI scans, hearing tests, the lot. They have no clue what caused it. Initially I tbought it might be menieres disease as my balance was compromised and I had a dizzy spell. But that seemed to go away.

There were some dark days in the early years, but it does get easier, you find coping mechanisms, you learn to tune it out.

Hope things improve for you.
 
I’ve had tinitus for about 12 years. 2 years ago I was diagnosed with Menieres after travelling to France and not being able to walk for a week. The past two years have been horrendous.

The Menieres situation is a real problem. Has an impact on me everyday, some days I can’t do anything, I can only crawl around save for throwing up.

The tinitus is still a problem, so much so that I went recently to an advice group which my local NHS runs and they have given me an appointment to talk about using a hearing aid. Might be useful in counteracting the tinitus, so we will see. I will post more when I’ve had the appointment as maybe it’s something for some of those suffering badly here to look at.
 
rare said:
I’ve had tinitus for about 12 years. 2 years ago I was diagnosed with Menieres after travelling to France and not being able to walk for a week. The past two years have been horrendous.

The Menieres situation is a real problem. Has an impact on me everyday, some days I can’t do anything, I can only crawl around save for throwing up.

The tinitus is still a problem, so much so that I went recently to an advice group which my local NHS runs and they have given me an appointment to talk about using a hearing aid. Might be useful in counteracting the tinitus, so we will see. I will post more when I’ve had the appointment as maybe it’s something for some of those suffering badly here to look at.
Click to expand...

Sorry to hear that :( I know from what I have read about it, menieres is bad news :(

I do worry that one day my ear issues will turn out to be this.

Yet the ENT specialist literally laughed at me and told me to go away when I suggested it. Funny how he couldn't make any sort of diagnosis himself.
 
IvanDobskey said:
Sorry to hear that :( I know from what I have read about it, menieres is bad news :(

I do worry that one day my ear issues will turn out to be this.

Yet the ENT specialist literally laughed at me and told me to go away when I suggested it. Funny how he couldn't make any sort of diagnosis himself.
Click to expand...

It isn’t fun, I’m on medication and try to eat less than 2 grams of salt a day. Sometimes it works, sometimes it doesn’t. The sickness is the worst aspect of it. Last summer I went to Barcelona and had an attack of it in the middle of the city at about midnight. When it’s that bad you can only crawl around. No taxi driver would take me to the hotel as they thought I was drunk. I eventually got back by convincing a driver to take me, but it can be scary.

I’ve had it on the London Underground before as well. It can last anywhere up to 5 hours or so, afterwards the only thing you can do is sleep.

I find a lack of sleep and diet (heavy salt for example) will really impact my tinitus.

Have you had any prolonged dizzy ness or has it generally gone away? Have they done hearing tests on you? Menieres generally will impact the hearing as well.
 
I got told by the ENT doctor that I didn't have Meniere's despite having the symptoms.
I think the reason he ruled it out is because I haven't had severe vertigo lasting more than 5 hours within a 48hr period.
What I get is an imbalance, I stumble and feel unstable on my feet, though I manage to control it. Everything else I seem to have, fullness of the ears, extreme attacks tinnitus, imbalance, hearing loss
 
rare said:
It isn’t fun, I’m on medication and try to eat less than 2 grams of salt a day. Sometimes it works, sometimes it doesn’t. The sickness is the worst aspect of it. Last summer I went to Barcelona and had an attack of it in the middle of the city at about midnight. When it’s that bad you can only crawl around. No taxi driver would take me to the hotel as they thought I was drunk. I eventually got back by convincing a driver to take me, but it can be scary.

I’ve had it on the London Underground before as well. It can last anywhere up to 5 hours or so, afterwards the only thing you can do is sleep.

I find a lack of sleep and diet (heavy salt for example) will really impact my tinitus.

Have you had any prolonged dizzy ness or has it generally gone away? Have they done hearing tests on you? Menieres generally will impact the hearing as well.
Click to expand...

That sounds really quite horrendous :(

I have had dizzy spells, but not prolonged and not for a long while now.

I have had a couple of hearing tests and was told my hearing is perfect. But not had one for a while now.

When my problems first started, I used to get woken in the middle of the night with screaming tinnitus and a weird cold feeling in my ear. Would take a while to settle down enough to go back to sleep.

Not had that happen in years now though. It's just been the tinnitus which varies in severity.
 
Teh_Next said:
I got told by the ENT doctor that I didn't have Meniere's despite having the symptoms.
I think the reason he ruled it out is because I haven't had severe vertigo lasting more than 5 hours within a 48hr period.
What I get is an imbalance, I stumble and feel unstable on my feet, though I manage to control it. Everything else I seem to have, fullness of the ears, extreme attacks tinnitus, imbalance, hearing loss
Click to expand...

Definitely sounds like you have some kind of inner ear issue there :(

Not necessarily menieres though.

The inner ear is a bit of an unknown quantity, they don't like to make any sort of diagnosis unless it is really obvious.
 
Liquidfox said:
Yeah, I was looking at those. I'd always be afraid of losing them though!



It seems to be a UK thing. Every European event I've been to strongly advertise and recommend hearing protection and have the industrial size hoppers which sell them for €2 a pair. They're not just the foam ones either. They also sell the better plugs for around €10-€13 a pair at the merchandise stalls.

If I go to a UK event I'm probably 1 of a handful of people I see wearing ear protection, go to a European event and it's completely different, the vast majority of people are wearing them.
Click to expand...

I saw Nightwish in Paris in November, the first thing i saw upon entering the arena were several people walking around selling ear plugs, and people were buying them which was great. Needs to happen in the UK.

I find it funny that staff that work in large venues are provided and encouraged to wear ear plugs, but the customers? Errr nah screw them and their hearing!

Anyways, not long to wait now until people will be trying out this Neuromod device. The video is long but it answers some key questions about how the device works.
 
Really starting to grind my g̶ears. I have always had overtly waxy ears, with one of them blocking several times a year for a short period but always getting unblocked either by itself or with some minimal intervention.

This time, it won't budge. I hate wasting the time of a doctor so trying out all the home remedies before I go; hydrogen peroxide, another type of a earwax drop that loosens, some weird football shaped pump and a three headed syringe. Bar one minor success, this block is so compact/solid - it won't go away. Have got tinnitus in the effected ear as well. Doctor can't see me until May 8th :p:( so going to comb through this thread for any unknown solutions.
 
I dont have Tinitus but I am about 80% deaf in one ear thanks to an over zealous mother and her cleaning regime which resulted in my eardrum being burst. I do love her, but wow her cleaning habits are OTT!

As a result I think I suffer from the symptoms, although not that severe, of vertigo quite a lot. My balance gets off kilter and I also have asthma/hayfever and when you chuck them all together its pretty much impossible to tell what is going on.

I do get a really weird ringing in my ear which sounds like tinnitus, pardon the pun, but I dont think actually is. It throbs and is really high pitched but I think it's my eardrum, but who knows. Doctors sure dont. The consensus is that I can hear fine with one ear so why worry!

I did try to explain the Star Wars opening credits in THX, wasted it was!
 
doodah said:
Really starting to grind my g̶ears. I have always had overtly waxy ears, with one of them blocking several times a year for a short period but always getting unblocked either by itself or with some minimal intervention.

This time, it won't budge. I hate wasting the time of a doctor so trying out all the home remedies before I go; hydrogen peroxide, another type of a earwax drop that loosens, some weird football shaped pump and a three headed syringe. Bar one minor success, this block is so compact/solid - it won't go away. Have got tinnitus in the effected ear as well. Doctor can't see me until May 8th :p:( so going to comb through this thread for any unknown solutions.
Click to expand...
are you sure it's blocked on the outside and it's not the inner part that's causing the probs? I've used almond oil and then warm water in the 3 jet thing which i'm assuming is the one you're talking about and it's always worked fine. I was at the docs at the beginning of the year w/ a tinnitus type thing and it was apparently an internal eustachion tube issue. unless you can actually see some compacted wax in there (dunno what would be compacting it though) i'd suggest you try and leave it alone in case you damage something by chasing erroneous symptoms.

of course, could be it's not wax, and is actually a big spider.
 
You must log in or register to reply here.
Back
Top Bottom