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Tinnitus who suffers from it

Discussion in 'General Discussion' started by Ixon, 8 May 2011.

  1. PC777

    Hitman

    Joined: 23 Dec 2018

    Posts: 913


    Don't feel bad for calling an ambulance, I did when I had it, or at least the NHS helpline got one for me, or at least a medic on a bike as they were all booked up. Can have similar symptoms to a stroke so they don't mess around. Got me some medication and slept off the worst of it just staying at home.

    Labyrinthitis is no joke, Doctors who have had it describe it as one of the most extreme non life threatening things you can get in terms of symptoms. I couldn't walk or barely even move for vomiting, couldn't sleep on my left side for months afterwards for being dizzy. Luckily made a full recovery after a few months with no tinnitus after effects.
     
  2. JUMPURS

    Capodecina

    Joined: 27 Sep 2004

    Posts: 11,052

    Location: The Ledge Beyond The Edge

    Over the past year I’ve noticed I have tinnitus and struggling to hear people talking and find myself having to concentrate. Done one of those apps and it says moderate hearing loss so will book in for a test after lockdown.

    what I am finding weird though is I’m finding loud noise really annoying, like I have two toddlers and when they get loud it’s like really really bloody annoying it’s hard to describe cos it’s not like a pain in my ears it just seems off. Is that something other people have experienced? You’d think with possibly losing some hearing the loud noises would bother me less.
     
  3. darael

    Mobster

    Joined: 10 Jul 2010

    Posts: 4,865

    Has anybody tried CBD oil? I've read that it can help, but I'd be interested to see what others say. As somebody who has never used cannabis before, this is an unknown.
     
  4. koolpc

    Capodecina

    Joined: 2 Dec 2004

    Posts: 12,408

    Location: Under The Desk, Wales

    In the ear?
     
  5. darael

    Mobster

    Joined: 10 Jul 2010

    Posts: 4,865

    Honestly don't know, that's why I'm hoping somebody with experience might reply. We should also be careful not to turn this into a medial advice thread, so only asking for experience not methods.
     
  6. Dougsnake

    Mobster

    Joined: 18 Oct 2002

    Posts: 3,054

    Location: west yorkshire

    Yes but taken orally via tongue drops does help sleep but doesn't fix the/my tinnitus
     
  7. Vimes

    Mobster

    Joined: 15 Oct 2005

    Posts: 4,859

    Location: Earth, for now

    Both myself and my brother have tried CBD oil. I tried from two different sources. I had read user reviews, if they have value, and neither were cheap.
    My brother spent a lot more than me on where he bought his from.
    Both of us shared the opinion that OTC legally sold CBD oil is akin to snake oil.
    I did not take it with tinnitus in mind but for that of help with chronic pain.
    Neither the pain nor the tinnitus improved tiddly squat.

    Very much a waste of money.
     
  8. thedoc46

    Soldato

    Joined: 18 Jan 2003

    Posts: 5,977

    Location: Expat in the USA

    I think the best fix for tinnitus is simply acceptance. Once you accept it, you will hardly notice it. Now i know that this is far far easier said than done. But i had / have very bad tinnitus. To the point that i was very very distraught. I even flew over from the US to Ireland to spend thousands and buy Leniere, which didn't help. And yes it still annoys me when i think about it. And yes its always there. But keeping my mind busy, staying off anything like tinnitustalk and i can go for hours on end without even realizing it. Look at it this way. Do you think about the traffic you hear outside? or if you're on holiday somewhere, the constant sound of cicadas ? No because your mind doesn't perceive it as a threat, and without realizing it you just start ignoring it as background noise. Now you can't tell me the noise of cicadas isn't as intrusive as tinnitus ? The same can be said about tinnitus. Its an annoying noise, that we just want gone, and cos you can't get rid of it, it sends you down a dark path. But once you accept that hey this is here to stay, and just get on with it, before you know it you'll stop realizing its there and minutes turns into hours, and eventually hours turns into days. Some days it so loud that there's F.ALL you can do, other than force yourself to keep busy.. That's the days you make sure you're keeping yourself occupied. Hands on.. Like do the gardening, or clean the house / car. We've all got chores to do in our life. That's my medicine.. Keep my mind off it. and it'll retreat into the background.
     
  9. koolpc

    Capodecina

    Joined: 2 Dec 2004

    Posts: 12,408

    Location: Under The Desk, Wales

    In total agreement.

    My tinnitus is extremely loud. If i thought about it a lot it would drive me crazy!
     
  10. rare

    Sgarrista

    Joined: 1 Nov 2002

    Posts: 7,858

    Location: Sussex

    This is what my Ménière’s is like everyday for the past four years. It’s ruining my life. People don’t understand how bad vertigo can be until they’ve experienced it. It’s torture.
     
  11. koolpc

    Capodecina

    Joined: 2 Dec 2004

    Posts: 12,408

    Location: Under The Desk, Wales

    I have had slight vertigo and that was bad enough.......
     
  12. Bassmansam

    Mobster

    Joined: 22 Nov 2007

    Posts: 3,236

    @thedoc46 i know what you mean, on bad days my t is well audible over the tv but i can still have long periods of time where i don’t think about it. I used to read tinnitus talk its so depressing and it really dragged me down and made me focus on the t. I think i read it daily for a year so until i finally realised that the misery specialists on there must have more than t going on. I only go there for the research section now.
     
  13. AiiR

    Mobster

    Joined: 19 Feb 2009

    Posts: 3,276

    Absolutely, nothing worked for me until a doctor basically told me to live with it. I accepted it and now I hardly notice it. There are days where its VERY loud, but those are fewer than the days I never think about it.
     
  14. zom247

    Mobster

    Joined: 29 Sep 2004

    Posts: 2,861

    Location: Wilt of the Shire

    I've been suffering from Ménière’s for about 24 years now and it's been horrendous, apart from a couple of months respite after ops/steroid injections. You're right, no one knows what you are going through unless they experience it themselves. There's not a day goes by when I'm not feeling the effects of it and tinnitus is one of them. Not sure how I do it but I just crack on and try to keep myself occupied. Tinnitus is worse for me at bedtime when it's all quiet, at least during the day you can surround yourself with noise :)
     
  15. PC777

    Hitman

    Joined: 23 Dec 2018

    Posts: 913


    Hey buddy I'm really sorry you're going through that disease, it was my biggest fear that I also had Ménière’s, but luckily for me I did make a full recovery. However, even doing things like a barrel roll in 1st person view in a flight sim can scare into thinking it could come back. Even if most don't understand, I do at least understand what you're going through.

    Ménière’s/vertigo is so bad physically that it becomes mentally stressful as well, so I really feel for what you're going through, all I can offer is that I did make a full recovery from being extremely debilitated by my vertigo, and many high profile people have had successful operations to fix Ménière’s.

    Alan Shepard in particular, the 1st American in space had bad Ménière’s later on, yet still somehow managed to walk on the moon at 46 years of age after years of Ménière’s. Only someone who has had the disease or vertigo can know just how badass he was to do that. An incredibly risky and brave thing to do, almost foolhardy that NASA let him do it, but the point is he fully recovered to achieve the greatest heights even as a man getting on in years.

    Also Dana White UFC President fully recovered from his Ménière’s, now flies all over the World, seem to have made a full recovery.

    I really hope there's a treatment option for you too and that you can make a full recovery as well. You can always post in this topic for support. Best of luck to you.