Tinnitus who suffers from it

I spoke to my ENT about a MRI instead of the CT due to the risks with radiation, but they suggested a CT would be the better option for ruling out anything serious as I had mentioned a pulsing sound.
 
There is no cure for it at the moment unfortunately. Had it for 30 plus years and 1000 x worse now than when i first had it...

Same here, had it for near 30 years and its really bad now and very sadly is made even worse from PSU`s, GPU`s and electronics in general.
 
I spoke to my ENT about a MRI instead of the CT due to the risks with radiation, but they suggested a CT would be the better option for ruling out anything serious as I had mentioned a pulsing sound.

Bizarre.
Thought Mri was better.

Only reason I thought CT is offered is because it's cheaper/easier? But I may be wrong.
 
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I can't remember if I updated.

As I health anxiety I got a private mri for my tinnitus.
I don't really mind mine too much. It's often there. And mega bad under stress. It's definitely moved around. And settled as a high pitch whine. Similar to electrical sounds you sometimes get.

It started more on one side. It also pulsed (that was grim) for a bit.

But yeah hugely linked to my anxiety/mood/amount of sleep.

Although it's here now. I only thought if it as I read the thread title

Mines on one side, NHS sent me for an mri nearly 10 years ago, nothing untoward there though. I do have some hearing loss in the affected ear though which i think is from that ear being closer to the drummer when i played in a band.
 
Mines on one side, NHS sent me for an mri nearly 10 years ago, nothing untoward there though. I do have some hearing loss in the affected ear though which i think is from that ear being closer to the drummer when i played in a band.

I'm on the NHS wait list for an appointment. But didn't want to wait for the mri as it would probably be years away. So just did it private.
 
Is it an instant thing or gradual? I wonder what happens to make it worse.

When I sit near some electronics or even several meters away I can literally hear the high pitched tinnitus sound increase, Im not sure why but I seem to be hyper sensitive to certain sound frequencies they make or something like that.
Or it aggravates it somehow, it so so annoying.

Old fashioned hard drives also cause it.

But its at night in total silence that i can most clearly hear the tinnitus is worse after using my consoles or PC.

Or sometimes I wake up at like 5 in the morning or whatever and the tinnitus is so bad that I just cant get back to sleep, its loud as hell.

A Dr actually referred me to a specialist nearly a year or so ago and I have not had any phone call or letters for an appointment so I must be on a waiting list I guess.
 
Had it most of my life, or at least as long as I can remember, but it got slightly worse after getting Covid.
I've been told that as a child I had a problem with my left ear. I don't know if that has anything to do with it as it's my left ear thats worse.
I would absolutely love to be able to enjoy peace and quiet :(
I sometimes use the tinnitus videos from youtube to try to get to sleep, but then if I get uncomfortable and want to sleep on my left side, my ear is buried in the pillow and all I can hear is the high pitched "eeeeeeeeeeeeeeeeeeeeeeeeeeeeee".
This is the one i've been using recently:

Has anyone tried any kind of sleep earbuds?
 
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But yeah hugely linked to my anxiety/mood/amount of sleep.

Although it's here now. I only thought if it as I read the thread title
I'm similar. If I'm tired or when I wake up, it can be worse. Stress levels can worsen it too, as can moods.

If I have a bad day, I just try to ignore the tinnitus. You sort of treat it like somebody else or a friend. So when it's loud you say to it, right you're having a bad day are you? Fine I'll just ignore you. That probably sounds daft written out, but it can genuinely help me ignore it.

What bothers me is that I might play a game, which is also a method of ignoring the tinnitus. But if the game is stressful it can make the tinnitus worse, so I find I need to be careful about the games I play. If I want to moderate, then play stressful games when I'm in a good mood and easier gamers when I'm not.
 
Thought i'd (depressingly) join the thread.
Suspected I had Meniere's for a year or so, ENT with audiology today suggests I was likely right.

Attacks seem to be infrequent but very worried about impact this will have on my life & job.
Tinnitus has become very loud, but at the moment managing it with some basic changes (avoid loud places, white noise in the background etc).

Bizarre.
Thought Mri was better.

Only reason I thought CT is offered is because it's cheaper/easier? But I may be wrong.
CT Head = £78.91, MRI Head £126.05, so you're right on the cheaper part, but wrong on why it's offered. CT & MRI have overlapping indications but very different pros/cons/risks/benefits, they look for different thing
 
Few months back I had a cold and whilst having a conversation with a customer, I felt an odd sensation in my ears and noticed they had started ringing and it's not stopped since. I'm lying here in bed as middle child has been sick about an hour ago and it's very noticeable. I do notice it during the day but not so much with noise of being at work or out and about driving in the van with the radio on.
Mine seems to be a higher pitch whiney noise that's constant. Makes me think of when you used to turn on older TVs and you could kind of *hear* the power going through them and it would make a similar noise.

I haven't been to the GP about it yet but I'm guessing I probably should?
 
Few months back I had a cold and whilst having a conversation with a customer, I felt an odd sensation in my ears and noticed they had started ringing and it's not stopped since. I'm lying here in bed as middle child has been sick about an hour ago and it's very noticeable. I do notice it during the day but not so much with noise of being at work or out and about driving in the van with the radio on.
Mine seems to be a higher pitch whiney noise that's constant. Makes me think of when you used to turn on older TVs and you could kind of *hear* the power going through them and it would make a similar noise.

I haven't been to the GP about it yet but I'm guessing I probably should?
Bilateral tinnitus is rarely a significant medical issue, however can be routinely referred to a tinnitus clinic if persistent, changing, causing distress, or unknown aetiology.
More urgent if it's pulsatile, unilateral, or associated with hearing loss or sense of fullness.
 
I have it in one ear, had tests, consultant stopped short of blaming it on stress. If I wear over the ear headphones to listen to music or TV I don’t notice it. I’ve had it for so long, I’m fortunate that I’ve learned to ignore it 95% of the time.

It possibly does get worse when I am stressed about something, mine sounds like a high pitch electrical hum
 
Rehashing what I have written before, my bilateral tinnitus is either troublesome to the point of great annoyance or just there and I get on with things. I really can't remember a time when it was totally silent, that used to happen in the past, it was delightful to hear "nothing".
Distraction and not trying to give it focus, hard to do at times, gets easier with practise, tends to offer relief, or, at least, distraction.
Audio books in bed at night, with headset on, takes my mind of it when particularly troublesome.
 
I don't think it's medically advised to wear earphones or headphones. But if you need a distraction from the tinnitus and you don't want to bother others, sometimes they're the only answer. The hard part is actually trying not to drown the tinnitus out from whatever you're listening to - keep the volume just below your tinnitus. This helps to ignore the tinnitus long term, rather than drown it out and risk more damage that might make it worse.

@Dreadi
First off, go and see and doctor and let them know you're suffering from what you think is tinnitus. Odds are it is, as it sounds similar to my own tinnitus. The sooner you try to accept the tinnitus and get on with your life as normal as possible, the better. The more you fixate on it, the worse it can become as your anxiety levels increase. Relaxation can help, such as slow breathing techniques or even Yoga classes.

What irks me a little, is that there seems to be two tiers of tinnitus suffers - those who wear hearing aids and those who don't. I almost feel like doctors don't treat you seriously unless you need to wear hearing aids. This isn't the fault of those that suffer from tinnitus, as at the end of the day they have tinnitus just like me and others. It's just that I feel like people who wear hearing aids are treat more seriously than those don't.
 
I don't think it's medically advised to wear earphones or headphones. But if you need a distraction from the tinnitus and you don't want to bother others, sometimes they're the only answer. The hard part is actually trying not to drown the tinnitus out from whatever you're listening to - keep the volume just below your tinnitus. This helps to ignore the tinnitus long term, rather than drown it out and risk more damage that might make it worse.

@Dreadi
First off, go and see and doctor and let them know you're suffering from what you think is tinnitus. Odds are it is, as it sounds similar to my own tinnitus. The sooner you try to accept the tinnitus and get on with your life as normal as possible, the better. The more you fixate on it, the worse it can become as your anxiety levels increase. Relaxation can help, such as slow breathing techniques or even Yoga classes.

What irks me a little, is that there seems to be two tiers of tinnitus suffers - those who wear hearing aids and those who don't. I almost feel like doctors don't treat you seriously unless you need to wear hearing aids. This isn't the fault of those that suffer from tinnitus, as at the end of the day they have tinnitus just like me and others. It's just that I feel like people who wear hearing aids are treat more seriously than those don't.


Yeah, I remember talking to the specialist who did the MRI / CT and other audiometry testing etc. He was fine in my case use and the way I used them. You are absolutely right to think to add that concern tho, thanks for doing so.
For me the volume is low, and I use over the ear to reduce the pressure effect, but it is distracting when it is particularly troublesome.

I do get your point on the approach. Thankfully we have private health care, it matters at times. The specialist I saw had a clinical interest in such matters, having read his and many others resumes of people to see.
 
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Is there any sign they’re going to be able to cure this in the near future? I’ve not seen any studies or news articles on it for a while now.

Mine isn’t horrific but it would be nice to have true silence again.
 
anyone else st the stage where their tinnitus can be blaring out over the tv and they don't feel any distress? The first year or 2 was horrible when it was that loud but i suppose i'm just used to it now. I love the days where its low as it feels like im at true peace in life but equally i can deal with the louder days without much issue nowadays. If you had told me that 5-6 years ago I would never have believed it.
 
Is there any sign they’re going to be able to cure this in the near future? I’ve not seen any studies or news articles on it for a while now.

Mine isn’t horrific but it would be nice to have true silence again.
While it's not a solution, I've posted about the Tinnitus Biobank earlier in this thread. To be honest I've not heard much more about this, but it could help us all in the long run if it works out. Since subscribing to their emails, I honestly don't think they have much to offer me at present.

I forgot to mention this in my previous post, but one way I find dealing with tinnitus is to make it your friend - literally. So if you wake up in the morning and your tinnitus is loud, you sort of say to yourself that you're going to ignore the tinnitus today because it's angry. I know it sounds weird, but it's something that can help me cope on bad days.
 
What irks me a little, is that there seems to be two tiers of tinnitus suffers - those who wear hearing aids and those who don't. I almost feel like doctors don't treat you seriously unless you need to wear hearing aids. This isn't the fault of those that suffer from tinnitus, as at the end of the day they have tinnitus just like me and others. It's just that I feel like people who wear hearing aids are treat more seriously than those don't.
I have never experienced this, in fact the opposite. I have worked in ENT.
 
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