Vertigo

I have Ménière’s disease.

I feel your pain.

I get random attacks of it, some lasting days. Awful sickness. Can only crawl.

Just got to stay positive!
 
I find that all very weird. Crystals in the ear or something odd like that. It’s amazing that just manipulating your head in a certain way can cure it.

Personally, I don’t think there’s anything worse than balance disorders. Can be life ruining.



I have has it done 3 times, twice at the GP's and they ****** it up, now under the balance clinic and done the first time by a woman who knows her stuff seems to have worked. I now have to do Gaze stability exercises 3 times a day to help with the imbalance.
 
i was in my teens when i i got it. Was so
Wierd started off with a sensation that i could only describe to the doc as “turning to look at something and it taking a few seconds for my eyes to catch up”

Then moved into full on dizzyness and being unable to stand up.

Hope you get over it soon
 
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I have Ménière’s disease.

I feel your pain.

I get random attacks of it, some lasting days. Awful sickness. Can only crawl.

Just got to stay positive!
I should stop reading the internet.

I do have a bit of tintinitus..but have had for years and it doesn't bother me. Comes and goes and is very mild.
 
I get it very midly very occassionally, maybe 2-3 times a year in bouts of 3-4 days, usually comes on at night so I'll wake up with the room spinning etc. I think mine's purely linked to the crystals in my ear, and I can normally related a bout to having one on a rollercoaster or similar a few days before. The Epley manouvre works wonders, if not horrible during the procedure.
 
I've only had it once (I think due to food poisoning) where it is so bad the room actually seems to be heaving and spinning - I occasionally get a few hours of dizziness which isn't pleasant maybe 4-5 times in the last 10 years, which generally just means finding a position lying down where it isn't too bad and waiting it out, but this was something else - compounded by (and possibly a factor) that I'd not been sleeping well and then had a long work shift and was desperate to get to sleep but the only semi comfortable position was sitting on my bed but every time I nodded off I'd move into a position it would come back even worse - that was very unpleasant.

Never want to experience that again.

He isn’t asking for medical advice, just asking for people to share experiences. That’s allowed.

It is a fine line - certain topics get straight up nuked as it quickly descends into discussing the medical side of managing the condition.
 
Well it's been 12 hours. I'm in bed. Wondering how long I'm going to be here. Thankfully I can still do stuff as long as I don't move my head too much.

I'll keep you posted of my exciting experience.
 
I've had it a couple of times where I'm walking into things and feeling nauseous anytime I stand up. Had it on holiday once and had to just lie in bed for a few days. Hope you feel better soon it's not nice!
 
I've had it a couple of times where I'm walking into things and feeling nauseous anytime I stand up. Had it on holiday once and had to just lie in bed for a few days. Hope you feel better soon it's not nice!
That I can live with. Well I can live with anything I guess, you just get on.
 
I had it on and off for around 2 years, seemed to hit me hard for a day, I found that by going to bed again as soon as possible after it recurring, laying face down and sleeping, waking up for the next day it had cleared. Doctors got me to try Serc-16 and something else that I can't remember, and from memory, neither worked. I haven't had it at all now in a few years and haven't taken medication for it since neither.
I can remember the first time it came on, I was on the motorway driving to one of our offices in the evening, when I got there and went inside I felt like I was being overcome with fumes. Driving home afterwards was an experience but luckily it wasn't near as bad as the waves I got each time after, I wouldn't walk to the car never mind drive it.
 
I have Ménière’s disease.

I feel your pain.

I get random attacks of it, some lasting days. Awful sickness. Can only crawl.

Just got to stay positive!

I was initially diagnosed with that in 2004, since re-diagnosed with MAV as the episodes were lasting up to 3 days
Luckily the tablets seem to work and stave off most of them. Blank walls are my friends!
 
Had this for the last two weeks with some days being really nasty (just looking down at my desk and the world would spin), doc seemed to think it is viral and should pass (still awaiting blood results to confirm). However have felt much better the last two days with zero dizziness so hoping that's the end of if.

Doc also gave me Betahistine (aka Serc) however I didn't feel like that made a difference.
 
Suffered once up some steps painting kitchen - You know how it goes - can't be bothered to move steps so you turn your head round and stretch as far as you can for last run with roller. - Felt it come on and dropped roller in tray and dropped to the floor and lay there for a while - I had suffered before that so knew what it was - Fortunately not had it for quite a number of year.

Neighbour next door disappeared a few weeks ago and so did her car - we thought she had bumped it but turns out she also had Vertigo - quite bad from what she said - kept her house bound and Doc said take some sea sickness pills but they make you feel sick-
As said above it is not very nice and last thing you need is a bout when driving. I always stand up in stages - never stand quickly and turn your head at same time.

Hope it goes away and you don't suffer again.
 
So I start my week off with a trip to A&E. I have a case of acute Vertigo. If I move, I seem to fall over (and maybe vomit). Sent home with medicine and told to stay motionless for as much as possible for the next few days.
Vertigo is not fun.

Anyone else experience Vertigo before? I thought it was just a little bit stronger than dizziness.

I'm likening it to coming off the waltzers, but 10x as bad.

Literally could not stand up for 4 hrs. Now I can lie still and the room isn't spinning, and can walk with help, but if i don't move very slowly I feel sick and start to fall.



As a test when you think you are better, watch this. I don't suffer but it still makes me queasy watching it, if you get through it with no ill effects consider yourself mended... :)

Get well soon, it sounds very unpleasant!

 
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The more I read the worse I feel calling 999. Especially when they were busy. But I just really had no idea it was vertigo and it wasn't "that" urgent. I was really freaked out...panicking probably didn't help. Never experienced anything like it. The intensity was unreal.

This morning I'm moving, I still feel sick and dizzy if I move my head at any speed but slow. But definitely better than last night.

I'm hoping I'll be more mobile later in the week so I can so some light decorating.
 
Don't feel bad about calling 999, its there for a reason and you aren't to know how serious it was.

If you are on holiday leave you should be able to get it back if you let your employer know you are off sick.
 
That must have been absolutely terrifying.. :/ it’s bad enough when you wake up with a massive hangover and the ceiling is semi-spinning.
 
I woke up with it once and had to phone an ambulance for the only time in my life, I didn't have a clue what was going on but had constant spinning and vomiting having gone to sleep feeling fine.

Luckily they diagnosed it as vertigo sent a emergency Dr round and gave me the same pills you have and I slept it off initially. I work from home self employed so could even work as well.

Still could walk and cycle carefully but it was bad if I leaned one way for a couple of months, I could almost make it come back if I lay on one side. Had to sleep on my back or only one side for months.

After a while I booked in an epley manoeuvre which is a simple head rotation exercise the GP can do, within days I was basically back to normal and have been ever since, that was three years back.

I found that anything ginger really helped with calming any nausea - ginger beer, candied ginger, etc. Ginger beer has a ton of sugar so I diluted it, but ginger in general was great for me, almost medicinal in how well it worked.

It's rough getting by at first, it's been described it as being as scary a non fatal illness there is, but it will get better.

I'm totally recovered to a very active lifestyle, it's definitely beatable. Alan Shepard the first American in space had the related but much more serious menieres disease and he went on to walk on the moon in his late 40's.

Anyone who has ever suffered an inner ear disorder will know just how badass that is.

So you can definitely beat it.
 
As a test when you think you are better, watch this. I don't suffer but it still makes me queasy watching it, if you get through it with no ill effects consider yourself mended... :)

Get well soon, it sounds very unpleasant!


As kids we used to break into the Victoria Ground and climb the floodlights, but that video is on another level. I'm just baffled as to how those chaps manage to get dressed in the morning, what with ball bags the size of a space hopper and all.
 
Yes, I posted the wrong video initially and edited it. No harness? The man is either a super hero on mega money or he has no idea about welders on a day after a session on the ale... I can honestly, hand on heart, say that if they gave me 100K cash, no tax, I would not attempt such a climb even after a years training. I am either too imaginative about rust, metal fatigue and welders, or I am an abject coward :) And these guys consider it just a day's work! My hat is off to all that can do that and laugh about it!
 
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