'Biggest data grab' in NHS history - links to opt out.

I just printed out the opt out form, signed it and handed it in to reception at my doctors surgery no need to book, as well as doing the online version


I did the same apart from posted it to Docs surgery and phoned the practice nurse to confirm it was all sorted a few days later, and as you said the other National online one.
 
Right I think I have done what needs to be done; opt out online and opt out on a form which I then need to send to my GP.
 
Pretty sad when you look at the other Medical database breaches around the world how vulnerable unwell people have been traumatised with blackmail...
I think at some point in the future we won't even own our own DNA, governments will be flogging it to the highest bidder behind closed doors
 
I just printed out the opt out form, signed it and handed it in to reception at my doctors surgery no need to book, as well as doing the online version
Same. I have very little on my medical record (I've never had so much as a cold) but who knows that may change and I don't plan on being in the UK for the rest of my life. So it's one thing less to worry about when I cut my ties.
 
I'm amazed how many of you are that bothered that someone may see your medical records, are you really that special?
I read them for a living and it's very rare anything stands out.
My records are 5x A&E admissions coming off my bike, ear operations and a dodgy knee, everything else has been destroyed because it was that long ago.
My GP records go on for longer but there's nothing on them I wouldn't tell anybody.
 
I'm amazed how many of you are that bothered that someone may see your medical records, are you really that special?
I read them for a living and it's very rare anything stands out.
My records are 5x A&E admissions coming off my bike, ear operations and a dodgy knee, everything else has been destroyed because it was that long ago.
My GP records go on for longer but there's nothing on them I wouldn't tell anybody.
They will be used by private companies to increase costs to you. e.g. Taking out travel insurance? Well you once had a broken leg so you must be doing risky activities. Let's increase the premium. 5x A&E admissions? Wow you really are a bit accident prone so we will have to increase your premium for that employment protection cover. Hey, we just noticed your father had cancer. Hmmm, let's increase your life insurance premium in case it's hereditary. Oh wait, you have a history of work burnout and depression, well that will put up the cost of your life insurance even more.
 
They will be used by private companies to increase costs to you. e.g. Taking out travel insurance? Well you once had a broken leg so you must be doing risky activities. Let's increase the premium. 5x A&E admissions? Wow you really are a bit accident prone so we will have to increase your premium for that employment protection cover. Hey, we just noticed your father had cancer. Hmmm, let's increase your life insurance premium in case it's hereditary. Oh wait, you have a history of work burnout and depression, well that will put up the cost of your life insurance even more.

Given any identifiable data is only provided in coded form how would insurance companies be able to do that?
 
I have only skimmed the thread and not looked at the opt out options yet, but does anyone know how it works for kids?
 
They will be used by private companies to increase costs to you. e.g. Taking out travel insurance? Well you once had a broken leg so you must be doing risky activities. Let's increase the premium. 5x A&E admissions? Wow you really are a bit accident prone so we will have to increase your premium for that employment protection cover. Hey, we just noticed your father had cancer. Hmmm, let's increase your life insurance premium in case it's hereditary. Oh wait, you have a history of work burnout and depression, well that will put up the cost of your life insurance even more.

Don't forget your tin foil hat as well.
 
Given any identifiable data is only provided in coded form how would insurance companies be able to do that?
Can you guarantee that a small change of policy in the future won't allow them to identify it? Like most things it starts in small incremental steps.

Don't forget your tin foil hat as well.
Do you genuinely believe that a private company wouldn't use the data for their own benefit if they can? If the case for it is so strong then why not make it an opt-in instead? If the case is strong enough people would happily volunteer their information.
 
Don't forget your tin foil hat as well.

Is it tin foil hat time? There have been a lot of ethical discussions about the use of genetical screening data being used by insurance companies to base your risk on.

From what I can see, it looks like only Florida has signed a genetic privacy bill in the US to stop this exact thing happening.

https://www.forbes.com/advisor/life-insurance/genetic-testing/

Regulations Related to Using Genetic Information

The Genetic Information Nondiscrimination Act (GINA) of 2008 prohibits health insurance companies from using genetic information to make coverage or rate decisions. However, GINA protections do not extend to life insurance, disability insurance or long-term care insurance. So there is no federal law that limits the use of genetic information by life insurance companies.

Legislation has been proposed in several states, but Florida is the only state that has enacted a genetic privacy law that prohibits life insurance companies from canceling, limiting or denying coverage and from setting different premium rates based on genetic information. In California, Gov. Gavin Newson vetoed a genetic privacy bill in September 2020.

I remember the same ethical discussions going on when I was studying genetics in the late 90's
 
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