'Biggest data grab' in NHS history - links to opt out.

darkgen said:
That last sentence is quite sinister!
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It's a standard part of data protection and almost every privacy policy will include similar text. There are organisations who have the authority to request access to your personal data.

On this forum, for example, it's worded as:
The user should be aware Ocuk Limited will comply with lawful requests by relevant public authorities under the legal jurisdiction of England and Wales.
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Bear said:
You keep repeating this but you are irrelevant, what has you reading medical records got to do with data security and the potential sale of that data, you know the line you actually quoted?
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but nobody has answered the question:
What is so important in your notes that you don't want other people to see?
 
SexyGreyFox said:
but nobody has answered the question:
What is so important in your notes that you don't want other people to see?
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Nobody has answered the question because you reading the notes has nothing to do with data security and the potential sale of the data. The BMA and the Royal Society of GPs refuse to endorse the data collection, why dont you ask them?
 
SexyGreyFox said:
but nobody has answered the question:
What is so important in your notes that you don't want other people to see?
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What if over time this info got into the hands of private health insurance companies and at some point you require private health insurance and the information on your record impacts your quote, then yeah I would be bothered by it. I don't want my personal details getting into the hands of private companies and if you think that's not likely to happen at some point, you're way too trusting. These transfers of data take years to filter down to avoid breaking the law.
 
SexyGreyFox said:
but nobody has answered the question:
What is so important in your notes that you don't want other people to see?
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There may not be much important in your notes, but that doesn't mean there isn't in some peoples records. You also have a skew from seeing secondary care records. There is an awful lot more data in a primary care records, as primary care has used EHRs for decades. Secondary care IT is miles behind primary care for this sort of thing.

From my point of view as a data controller I think this has been done terribly and leaves primary care in a lose lose situation. I can potentially break data laws as it was simply impossible to consent a practice population in the original time frame, or I can be in breach of my GMS contract. I'm very pleased that they have moved the goal posts to consult again, but I hope it's not just lip service to the issues
 
Tone1979 said:
What if over time this info got into the hands of private health insurance companies and at some point you require private health insurance and the information on your record impacts your quote, then yeah I would be bothered by it. I don't want my personal details getting into the hands of private companies and if you think that's not likely to happen at some point, you're way too trusting. These transfers of data take years to filter down to avoid breaking the law.
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Opting out isn't going to stop it.
 
Tone1979 said:
What if over time this info got into the hands of private health insurance companies and at some point you require private health insurance and the information on your record impacts your quote, then yeah I would be bothered by it. I don't want my personal details getting into the hands of private companies and if you think that's not likely to happen at some point, you're way too trusting. These transfers of data take years to filter down to avoid breaking the law.
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I've opted out, but the example you cite is stupid unless you think people should be dishonest about their medical history and give fraudulent information in order to get a better quote for private medical insurance.
 
https://www.bbc.co.uk/news/uk-57564355

Was there any consensus on this? Opt out or not worth the hassle? I can't say I'm particularly bothered about medical records being more accessible within the NHS if it means doctors can see my medical history when needed quickly and easily. Not that keen on it potentially ending up with third parties though but then google probably knows more about my health than my doctor going by past search history :p
 
arknor said:
post yours? whats in it you don't want us to see?
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There's nothing in mine I wouldn't be bothered for you to see.
Hospital:
Diabetes
Ear operation
5x A&E admittances while cycling
Knee problems

GP:
The only thing on there is being admitted to a Mental hospital in 1988 but I've made many posts about it on here and a couple of visits for skin problems on my willy.
Nothing else of concern.

Mine really aren't interesting just like the several patients I've been looking through this morning.
Every now and then there will be an Alert and I expect the patient wouldn't want that info banded around eg Social Service problems
 
Puzzled said:
I can't say I'm particularly bothered about medical records being more accessible within the NHS if it means doctors can see my medical history when needed quickly and easily.
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Even in my job not knowing the real history of patients is a massive problem, imagine being a Clinician in A&E who needs to treat a patient who doesn't come from around here and they have to treat them quickly.
At the moment somebody will have to ring their local hospital and hopefully cut through the red tape to find their comorbidities.
I know I had this discussion before on here with an A&E Clinician who works down south and he said it was a massive problem.
 
heeeed said:
From my point of view as a data controller I think this has been done terribly and leaves primary care in a lose lose situation. I can potentially break data laws as it was simply impossible to consent a practice population in the original time frame, or I can be in breach of my GMS contract. I'm very pleased that they have moved the goal posts to consult again, but I hope it's not just lip service to the issues
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Totally agree. There's a genuine need for sharing of GP patient data within the NHS and research partners, but the manner in which NHS Digital have gone about it again (this is the second attempt, remember care.data?) is appalling and makes the rest of the NHS orgs look bad.
 
BMA warns NHS Digital's own confidentiality guardian could halt English GP data grab unless communication with public improves Data law's transparency requirement currently not being met, according to powerful doctors' union

https://www.theregister.com/2021/06/25/bma_says_nhs_digitals_own/

Backbench Tory campaigner promises judicial review of data grab of English GP patients unless UK government changes tack Trove too tempting for computer criminals while public unaware of their rights

https://www.theregister.com/2021/06/25/david_davis_gpdpr

Davis lambasted plans to store pseudonymised patient data because it is impossible to fully anonymise medical records, a fact well understood by experts in the field.

"The government has failed to explain exactly how it will use the data, failed to say who will use the data, and failed to say how it will safeguard this treasure trove of information," he said.

Meanwhile, holding a central store of medical histories would inevitably attract nefarious actors wanting to illegally break into the system. Davis pointed out that a 2017 ransomware attack brought parts of the NHS to its knees causing trusts to turn away patients and cancel 20,000 operations.
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do people really think Palantir are going to do something dodgy with NHS data...
people think palantirs software is like magic and can't understand it :P


they work with top level clearance data in the USA, over 1.5bn in government contracts, you think they really care about the NHS data?

I would trust pltr more than some random company the tories would bring in ,or some in house software that takes 5 decades and costs 50 trillion pounds, then still doesn't work.
 
arknor said:
do people really think Palantir are going to do something dodgy with NHS data...
people think palantirs software is like magic and can't understand it :p


they work with top level clearance data in the USA, over 1.5bn in government contracts, you think they really care about the NHS data?
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They always do, checkout the huge WhatsApp thread. The forum does have some tin hat users :D
 
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