not necessarily, see previous post on the matter above
Crohns / ulcerative colitis sufferers
- Thread starter ColdAsIce
- Start date
not necessarily, see previous post on the matter above
Soldato
going off mattyg who claims it's not diet related and no one knows why..
so is it what you eat then dairy?
so is it what you eat then dairy?
there is potentially a link to dairy if the MAP hypothesis turns out to be correct in so much as that is where the bacteria perhaps came from, I don't think there would necessarily be any advice not to consume dairy once you've already got it - I mean it would be a bit late then. Perhaps there is an argument that people with a higher genetic chance of developing it could avoid dairy but then again if this turns out to be the link then we've also potentially got a vaccine coming that ought to solve this.
the other ideas seems to also revolve around some imbalance of bacteria in the gut leading to your immune system attacking it
But then can also be..Exactly that.
There are many people who have good diets (sports people for example) who have UC/Crohns. If I'm flairing then a "bad" diet is better for me. Mcdonalds etc as its easy on the gut. If I start eating anything with a shell (beans, Sweetcorn) then I'm bad for a few days. Salads are a big no no.
And By bad I mean 20-30 times a day on the toilet. Farting blood or passing bloody stools etc.
It affects different people in different ways. so finding a cure all wont be easy.
I know mate. Don't worry I understood.
Soldato
I've got uncontrolled IBS apparently and it makes my life a bit miserable. Pooing blood before an interview didn't exactly get me off to the best start yesterday! I've got mebeverine tablets from my doctor but to be fair they barely take the edge off of it. I had a colonoscopy and 10 biopsies which thankfully where negative for any form of colitis. They sadly can't work out the bleeding and I have to wait for another referral to have an endoscopy.
Soldato
have you or mattyg actually tried changing what you put in your intestines or have just carried on regardless?
I've dramatically changed my diet to a sugar free, mainly gluten free chicken and veg type diet with very little alcohol or junk. My colitis hasn't gone away however any flare is quickly sorted and very less painful than it used to be. Whether that's from just being in general better health than I was I don't know.
I'm fit and healthy with colitis whereas I was unfit and unhealthy with colitis. I prefer the first, the later was a miserable existence.
Yes. If you knew about this disease you'll understand that we'll try anything. I've just spent the last 4 months giving myself nightly enemas that haven't made I blind bit of difference. A change to my diet to fix this would be easy.
This disease effects 1 in 100 people and millions are being spent on research Nobody knows what causes it and there currently isn't a cure. My diet in the past has been very strict and very poor. Neither seems to make a difference to me.
Soldato
after having stomach acid in your throat daily and chewing antacids like sweets, glugging gaviscon and popping ppi's i get where you are coming from..
have you tried not eating any animal products and grains, stopped drinking coffee or tried eating just whole plant foods, stopped eating cooked food or even done a juice fast/feast?
have you tried not eating any animal products and grains, stopped drinking coffee or tried eating just whole plant foods, stopped eating cooked food or even done a juice fast/feast?
Stomach acid is little if nothing to do with UC more a bad diet. That's why it's heavily advertised at Christmas
Soldato
my point was that i know how discomforting something is on daily basis, i suffered for a long time with it.
have you tried any of the latter of my post macca?
have you tried any of the latter of my post macca?
Coffee yes puts my colon into overdrive so I limit that unless it's something quality, definitely avoid instant, vile muck.
Lentils go through me like a train
Soldato
lol i can see why, i used to be a coffee addict but like you i limit it myself now.Coffee yes puts my colon into overdrive so I limit that unless it's something quality, definitely avoid instant, vile muck.
Lentils go through me like a train
if you have not done some of the things i suggested why not give them a go, if i was in your shoes i would.. what have you got to lose?
Soldato
I've had colitis since I was 17 and I've tried every diet going. I can categorically say that it isn't food related. I often find myself worse if I try and eat what you would consider a healthier diet (gluten free, meat free, alcohol free).
Luckily I don't suffer as bad as many but it certainly isn't down to what I eat.
Luckily I don't suffer as bad as many but it certainly isn't down to what I eat.
I used to drink a fair amount at the weekends. Then my business took off so stopped going out and stopped drinking. Within 12 months or so Colitis struck. Now I can't drink. I can feel the effects of Alcohol after 2 mouth fulls (koperberg or lager in fact I can feel lager before I get to the neck of a normal bottle). If I drink more I get a 2 day hangover.
My last flair was brought on by my IBD nurse suggesting I lower my Asacol doseage down to the maintenance dose. With hindsight within 3 days things were turning and after a week I was passing mucous and blood. That was before Xmas. I've got 2 weeks left on the steroids ( i have to taper down to 1mg) that I had to fight to be prescribed.
I changed to a low residue diet following the advice of a dietitian, it helped a lot (well it isn't going to cure the disease but stopped me from eating things that could aggravate it further), it was shortly after I'd had an MRI scan showing strictures. I had previously tried to eat 'healthily' prior to being properly diagnosed and rather ironically some of this standard 'healthy' eating was probably aggravating things. I had noticed that a particular high fibre cereal had left me in pain later in the day and avoided that, but the only diagnosis I'd got at the time was 'possible' Crohn's in my large intestine as a result of some minor inflammation seen on a biopsy but not actual inflammation seen on the scope/camera.
I had noticed that sushi didn't aggravate it much so basically ended up getting sushi every day for lunch, within a few months though I'd had my MRI and they found the Crohn's was more severe than previously thought and was in my small intestine - that was when I had the dietitian appointment.
I'd definitely recommend anyone seeking diet advice to go see a dietitian not a 'nutritionist' - anyone can call themselves a nutritionist, they're not a regulated profession and they're unlikely to be familiar with medical conditions like Crohn's - if they dish out the standard healthy eating advice then depending on your condition it could simply make things worse. On the other hand some dieticians work directly with your gastro consultants and specifically deal with IBD patients. The advice seem might counter intuitive almost - I remember, before the MRI/proper diagnosis, eating a nice juicy steak and big helping of salad, fries etc..on a skiing holiday - ended up missing the next day as I was in agony. I was kicking myself for eating that steak - in retrospect it was actually much more likely to have been all those raw salad leaves that left me clogged up.
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Soldato
what does a 'low residue' consist of? sounds bizarre to me.
and a nice juicy steak with no fibre and 3+ days bowel transit time is more than likely to leave you 'clogged up' than a few salad leaves which would be out of your system for the next day if not lodged behind the meat.
and a nice juicy steak with no fibre and 3+ days bowel transit time is more than likely to leave you 'clogged up' than a few salad leaves which would be out of your system for the next day if not lodged behind the meat.
This is why you need dieticians as some of the the advice is counter intuitive to normal 'healthy' eating advice - the whole point is to avoid fibre. (not suggesting that steak itself is the best food to eat, I don't have it often - but a large portion of salad would be very bad).