Crohns / ulcerative colitis sufferers

mattyg yes i do think it plays a major role, how can it not?
if you believe that the inflammation is caused by some mysterious 'disease' and not what foodstuffs you have put inside your body for 20 30 40 yrs then fine
i am aware that ibs and ibd are different in symptoms
 
mattyg said:
I think pooley thinks the inflammation is due to something we eat. The inflammation is due to the disease. We can make the inflammation worse by eating the wrong foods AFTER the inflammation has started. But the inflammation is started by an out of control immune system.
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Yup indeed, that seems to be the case, problem is he doesn't seem to know much about the disease nor is he really aware of the dietary advice generally given for it. I mean a raw plant based diet he seems to be suggesting could actually be very counter productive for anyone with strictures in their small intestines. He's not really given any reasoning for avoiding animal products either. This sort of stuff isn't helpful and is why we need dieticians.
 
pooley said:
mattyg yes i do think it plays a major role, how can it not?
if you believe that the inflammation is caused by some mysterious 'disease' and not what foodstuffs you have put inside your body for 20 30 40 yrs then fine
i am aware that ibs and ibd are different in symptoms
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Then you don't understand at all.

IBS is caused by diet
IBD Isn't.

Its not a mysterious disease is called Ulcerative colitis and or Crohns Disease.

If you think diet is a factor then please tell me why the first 15 foot of intesines is fine and the last few inches are fine but about 6-8 inches and ONLY that part along the line is affected by what I eat
 
mattyg said:
Then you don't understand at all.

IBS is caused by diet
IBD Isn't.

Its not a mysterious disease is called Ulcerative colitis and or Crohns Disease.
If you think diet is a factor then please tell me why the first 15 foot of intesines is fine and the last few inches are fine but about 6-8 inches and ONLY that part along the line is affected by what I eat
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it's mysterious as in they don't know what causes 'it' 'itis just means inflammation
only your body knows why

dowie said:
Yup indeed, that seems to be the case, problem is he doesn't seem to know much about the disease nor is he really aware of the dietary advice generally given for it. I mean a raw plant based diet he seems to be suggesting could actually be very counter productive for anyone with strictures in their small intestines. He's not really given any reasoning for avoiding animal products either. This sort of stuff isn't helpful and is why we need dieticians.
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only suggestions the raw plant food one might not be ideal as your bowels are damaged then fine as for the animal products we have long intestines that are not suited to them, meat stays in there for days
 
Someone who's had a touch of heartburn trying to diagnose and cure UC and Crohns sufferers. Well I've read it all now.

I have a couple, or rather had a couple of friends who, when I was flaring would say daft things like 'you shouldn't have eaten 'x' the other day or drank 'y'. No matter how many times I told them things like, I'd been on umpteen diets and none had made any difference or that when I'm not flaring I can eat and drink pretty much what I want they still felt the need to spout their armchair doctor nonsense. I no longer bother with them as they are clearly idiots who can't understand when they are being told something in plain English. I'm afraid pooley you're starting to sound a lot like those idiots.
You haven't got the faintest idea what you're talking about. As mentioned above, if specific diets worked then we'd all be on them. But every single person with UC or Crohns has different triggers and even the specialists don't know what those are.
I've spoken with fellow sufferers who've went on various diets and thought 'result, I feel champion and haven't had any symptoms in ages' then suddenly 'bang' out of the blue, without deviating from their miracle diet they get a flare up.
Even happened to me about 10 years ago, went on a health kick, felt great for about 2 months then spent a week in hospital with blood pouring out my back end. Had I not rang the doctor on call when I did I likely wouldn't be here now such was the severity of the glare up.
So do me and the rest of us on here a favour and let the diet thing go.
 
Thekwango said:
Someone who's had a touch of heartburn trying to diagnose and cure UC and Crohns sufferers. Well I've read it all now.

I have a couple, or rather had a couple of friends who, when I was flaring would say daft things like 'you shouldn't have eaten 'x' the other day or drank 'y'. No matter how many times I told them things like, I'd been on umpteen diets and none had made any difference or that when I'm not flaring I can eat and drink pretty much what I want they still felt the need to spout their armchair doctor nonsense. I no longer bother with them as they are clearly idiots who can't understand when they are being told something in plain English. I'm afraid pooley you're starting to sound a lot like those idiots.
You haven't got the faintest idea what you're talking about. As mentioned above, if specific diets worked then we'd all be on them. But every single person with UC or Crohns has different triggers and even the specialists don't know what those are.
I've spoken with fellow sufferers who've went on various diets and thought 'result, I feel champion and haven't had any symptoms in ages' then suddenly 'bang' out of the blue, without deviating from their miracle diet they get a flare up.
Even happened to me about 10 years ago, went on a health kick, felt great for about 2 months then spent a week in hospital with blood pouring out my back end. Had I not rang the doctor on call when I did I likely wouldn't be here now such was the severity of the glare up.
So do me and the rest of us on here a favour and let the diet thing go.
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touch of heartburn hehe, ok peeps i will respect your wishes and let it go :)
 
mattyg said:
I don't think pooley knows anything/much about the disease and is therefore coming across as pub Dr.

99% sure as are the numerous Dr's and specialists I've seen, That Diet doesn't trigger a flair. However when Flairing diet can make the flair worse.

Its like saying sandpaper doesn't cause sunburn.. But rub your sunburnt skin with sandpaper and see what happens.

Inflammation happens when the body tries to fight "Something". Then the body tries to fight the Inflammation. The crux is Nobody knows what sets it off. Its an auto-immune disease. One of the drugs I'm on are also given to Kidney transplant patients as anti rejection drug.


The thing is people can go into remission for years and then boom another flair up. If it was diet related that wouldn't really happen

I have a friend who thinks everything can be fixed by diet. He broke his leg, I offered him some lemon water.:D
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The random capilisaiton of words in the post is disgusting.
 
chipperhead said:
Is it PSC by any chance?
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Yes, though i've been told unless they open me up and have a route around they cannot 100% confirm. Do you have it too? It scares the f out of me, I know if my liver goes south it'll be my family that they want a donor from, but I don't want to put them through that, but they again I couldn't stop them if it saved my life, I know I couldnt live if I could have helped a family member so its all a rock and a hard place, no words for the thought of surviving a transplant and my donor not :'(
 
LeMson said:
Yes, though i've been told unless they open me up and have a route around they cannot 100% confirm. Do you have it too? It scares the f out of me, I know if my liver goes south it'll be my family that they want a donor from, but I don't want to put them through that, but they again I couldn't stop them if it saved my life, I know I couldnt live if I could have helped a family member so its all a rock and a hard place, no words for the thought of surviving a transplant and my donor not :'(
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I got diagnosed with UC in 1998, had a total colectomy and JPouch in 1999. I then got investigated for PSC in approx 2008 and confirmed soon after although I have had abnormal LFT's for many years before this.
Things deteriorated rapidly last year and at the end of October I had a Liver transplant. I feel great now though, in fact the best I've felt for years.

PSC is a very complicated disease and most people take a very different path so don't assume you'll eventually need a transplant, often this isn't the case.
My consultant gave me some great advice when diagnosed, he said try and forget about it and just go live your life, if and when it becomes a problem we'll sort it for you.
If your PSC gets worse they can confirm through MRI scans etc a definite diagnosis. Also it probably won't be a member of your family they want a donor from although that can sometimes be an option, they normally use a graft (transplant organ) from someone recently deceased.
I was eligible to receive from a live donor and my brother volunteered, however I turned him down as I didn't want to put him through the risk.
 
chipperhead said:
I got diagnosed with UC in 1998, had a total colectomy and JPouch in 1999. I then got investigated for PSC in approx 2008 and confirmed soon after although I have had abnormal LFT's for many years before this.
Things deteriorated rapidly last year and at the end of October I had a Liver transplant. I feel great now though, in fact the best I've felt for years.

PSC is a very complicated disease and most people take a very different path so don't assume you'll eventually need a transplant, often this isn't the case.
My consultant gave me some great advice when diagnosed, he said try and forget about it and just go live your life, if and when it becomes a problem we'll sort it for you.
If your PSC gets worse they can confirm through MRI scans etc a definite diagnosis. Also it probably won't be a member of your family they want a donor from although that can sometimes be an option, they normally use a graft (transplant organ) from someone recently deceased.
I was eligible to receive from a live donor and my brother volunteered, however I turned him down as I didn't want to put him through the risk.
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This is comforting to read, thank you. I am trying to live life, work exp starts september for a year, then a year of uni the following sept then it should be time to buy a Porsche Boxster and get a flat and a Kelly Brook lookalike :)
 
pooley said:
so what's causing the inflammation something must be?
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The Million dollar question. Answer this and we might get a cure...... Ibd is a disease caused by our immune systems attacking the gut rather than protecting it. Mine is heavily affected by my mind set and stress. Food has no effect at all unless I'm flaring then everything pretty much has an effect. IBD is a horrid illness to live with and unless you have it you will never really understand how it takes over your life.....
 
rubberduck said:
Sorry guys but it seems pooley is right.

https://www.google.co.uk/amp/m.scmp.com/news/asia/article/1150380/western-food-blamed-rise-crohns-disease-japan?amp=1
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That suggests western food is the cause of the disease. That has nowt to do with food causing the actual flare ups.

But reading through that article it is almost contradictory, western food causes Crohns but Germany and Italy expect to see a fall in cases of IBD??
It may quite possibly be that there is something in food that causes one to develop the disease. However, once developed removing that food/substance does not make the disease go away.
 
rubberduck said:
Sorry guys but it seems pooley is right.

https://www.google.co.uk/amp/m.scmp.com/news/asia/article/1150380/western-food-blamed-rise-crohns-disease-japan?amp=1
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give it up rubberduck peeps don't want to hear it..
eat steak, bacon, pizza all that good stuff for years and expect your body to be totally fine with it!
try it for yourself and see how your body reacts, do the opposite to everyone.
do a juice fast/feast for 2/3 months to give your insides a break and help clean them then go on a raw vegan diet.
you never know you might improve...at least you can say you tried it.
 
rubberduck said:
Sorry guys but it seems pooley is right.

https://www.google.co.uk/amp/m.scmp.com/news/asia/article/1150380/western-food-blamed-rise-crohns-disease-japan?amp=1
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correlation does not imply causation

how do you know it is western food per say and not simply an increased chance of exposure to MAP as a result of an increased consumption of dairy?


pooley said:
give it up rubberduck peeps don't want to hear it..
eat steak, bacon, pizza all that good stuff for years and expect your body to be totally fine with it!
try it for yourself and see how your body reacts, do the opposite to everyone.
do a juice fast/feast for 2/3 months to give your insides a break and help clean them then go on a raw vegan diet.
you never know you might improve...at least you can say you tried it.
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no, what we don't want to hear is dubious 'diet' advice from someone who is a bit clueless about this condition, especially when that diet advice is potentially rather counterproductive - a typical raw vegan diet is mostly going to be the total opposite of what lots of Crohn's patients should have which is a low residue diet

this is why people go to dieticians and shouldn't take anecdotal health advice from naive people on the internet
 
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