Soldato
if it's not it diet related why are you seeing a dietician?
Crohns / ulcerative colitis sufferers
- Thread starter ColdAsIce
- Start date
I think you need to be a bit clearer about what you mean?
What in particular don't you understand about why I'd see a dietitian?
I don't think pooley knows anything/much about the disease and is therefore coming across as pub Dr.
99% sure as are the numerous Dr's and specialists I've seen, That Diet doesn't trigger a flair. However when Flairing diet can make the flair worse.
Its like saying sandpaper doesn't cause sunburn.. But rub your sunburnt skin with sandpaper and see what happens.
Inflammation happens when the body tries to fight "Something". Then the body tries to fight the Inflammation. The crux is Nobody knows what sets it off. Its an auto-immune disease. One of the drugs I'm on are also given to Kidney transplant patients as anti rejection drug.
The thing is people can go into remission for years and then boom another flair up. If it was diet related that wouldn't really happen
I have a friend who thinks everything can be fixed by diet. He broke his leg, I offered him some lemon water.
Soldato
sorry it's just the conflicting claims of it's not diet it maybe dairy etc. but the experts don't know what causes the inflammation.
the only constant i see is what you put in your intestines and not some mysterious disease that appears 20 yrs in or are people born this way? i understand why you go to one now as the damage is done..
the only constant i see is what you put in your intestines and not some mysterious disease that appears 20 yrs in or are people born this way? i understand why you go to one now as the damage is done..
Soldato
mattyg the so called experts dont know so im in good company hehe, hence its called a auto immune disease.
im well aware what inflammation is a quick google will tell you that..
as i said above the only constant is what you have put in your intestines all your life..
im well aware what inflammation is a quick google will tell you that..
as i said above the only constant is what you have put in your intestines all your life..
Its not really conflicting claims. Its more nobody knows so research is heading in different directions.
Its not supposed to be hereditary(nobody else in my family has it)
They know what causes the Inflammation (its caused by our immune system reacting to something) They just don't know what is triggering our immune systems.
Thats the way I understand it
Yes good company..Providing you also have the relevant PHD's etc.
Not really a constant as what I put in my mouth goes all the way through my intestines but only a small portion of it is diseased.
I'm not sure there are conflicting claims per say, I think you may have gotten confused re: diet and conflated the statements that it isn't necessarily the cause of the disease (MAP bacteria and genetic susceptibility to that aside) and sometimes having to control your diet when you have the disease - like during a flare or if you have strictures
re: people being born this way - there does seem to be a genetic factor with Crohn's, yes
My disease came on very late on. I was about 35 when I started having issues. I was always a 3x a day pooper. Then it rapidly went to 4 to 8 to 15 to 30. I believe most people are diagnosed at a much younger age. Although I have a friend that is only a couple of years younger than me has recently been diagnosed with Crohns. Shes been operated on and is on the mend.
Soldato
yup reading back sure i saw you mention dairy, was on my phone and at work haha
anyhoo, when i said are they born with it i meant the inflammation from day 1 as a newborn?
i call it inflammation which what it is and not disease as it just like saying discomfort ie opposite of comfort/ease
Not necessarily, it can develop in people at different times usually between age 15-30 (though there are instances of paediatric Crohn's disease) , I'm not sure why you think it isn't a disease though? Yes it involves inflammation but not all inflammation of the gut is Crohn's disease.
Soldato
what is disease to you dowie?
it's inflammation of body tissue call it crohn's, ibs or whatever don't matter really..
is that is what you are suffering from?
IBS is rather different to Crohn's, you don't seem to be very informed on this. It might not matter to you but it matters to the healthcare professionals who deal with this stuff and the people who suffer from it. I've got Crohn's, I'd be much happier to have IBS! If you want to ask questions then go ahead but if you're going to post uninformed opinions about it not being a disease then you're not really adding anything constructive to the thread.
Soldato
it is disease dowie as in inflammation but you claim it as A disease which i presume with a different connotation hence why i asked the question.
has your dietitian suggest you try not eating cooked food, stop eating animal products and grains or eat a whole foods plant based diet? or even do a juice fast/feast?
infact i just bought myself a juicer and going to do a feast myself
I really don't understand what point you're trying to make here, you're not really explaining yourself very well - Crohn's disease is a disease. I'm not really sure what is objectionable about that?
Nope, some of that would more likely aggravate it, not eating animal products is rather irrelevant and ditto to not eating cooked food - what is that supposed to achieve?
Soldato
I really don't understand what point you're trying to make here, you're not really explaining yourself very well - Crohn's disease is a disease. I'm not really sure what is objectionable about that?
i'll will leave it at that as we have been down this road before
Nope, some of that would more likely aggravate it, not eating animal products is rather irrelevant and ditto to not eating cooked food - what is that supposed to achieve?
well if i was suffering and have not been given a remedy by the so called experts i would try other methods
i no longer suffer from digestive issues and take no more drugs for it
saying things are irrelevant out of hand with no first hand knowledge is foolhardy
if you are 100% sure your inflammation is nothing to do with what you put inside your body then okey dokey
You seem to have ignored the post you've already commented on previously re: the low residue diet recommended by an actual dietitian.
What first hand knowledge are you referring to here - do you have Crohn's? Are you a gastro consultant or a dietitian?
I think random suggestions such as don't eat animal products or cooked food aren't helpful here, you haven't explained what that is even trying to achieve? A few posts back you weren't even aware of a what a low residue diet was and then later you didn't seem to understand that Crohn's disease is a disease and seemed to conflated it with IBS. Like I said before I'm happy to discuss things but some of what you're doing here isn't particularly constructive to the point where I'm not sure if you're trolling now?
Soldato
they are not random they are diet related yet you say they are not helpful how do you know?
first hand as in have you tried them?
the end game of trying those suggestions it to prevent the inflammation
maybe you cannot eat certain foodstuffs like an alcoholic cant drink alcohol
i know if i go off the rails and eat too much bad foodstuffs like fries crisps etc the acid reflux returns
crohn's is inflammation of the bowels yet you say its A disease it's just a label at the end of the day
they are only suggestions try them or don't that's your choice
and no i'm not trolling 'again'
I think pooley thinks the inflammation is due to something we eat. The inflammation is due to the disease. We can make the inflammation worse by eating the wrong foods AFTER the inflammation has started. But the inflammation is started by an out of control immune system.
Crohns and UC are both currently incurable chronic diseases. The only way to to rid ourselves of the disease is to have the diseased part surgically removed. This is much easier is UC sufferers than crohns. As Crohns can affect the whole digestive system.
Don't confuse what we have with IBS Irritable Bowel syndrome.
We have IBD Inflammatory Bowel Disease
Don't confuse what we have with IBS Irritable Bowel syndrome.
We have IBD Inflammatory Bowel Disease