Migraines , who suffers from them here?

Maybe once or twice a year i get what i think "have been told" is a migraine and its insane. (non professional diagnosis)

I lose a part of my vision, an area so to speak, but the rest is normal. My hearing can go a bit weird too. It almost feels like i cant comprehend anything.

I literally have to close my eyes and try and find somewhere dark to hide for an hour until it passes

I usually get it during summer months.

cool story
 
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Efour said:
Maybe once or twice a year i get what i think "have been told" is a migraine and its insane. (non professional diagnosis)

I lose a part of my vision, an area so to speak, but the rest is normal. My hearing can go a bit weird too. It almost feels like i cant comprehend anything.

I literally have to close my eyes and try and find somewhere dark to hide for an hour until it passes

I usually get it during summer months.

cool story
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Sounds like a migraine, what you're experiencing is usually referred to as an aura. It's the same kind of migraine I experience and usually leaves me with a hangover feeling for a few days afterwards.
 
Efour said:
Maybe once or twice a year i get what i think "have been told" is a migraine and its insane. (non professional diagnosis)

I lose a part of my vision, an area so to speak, but the rest is normal. My hearing can go a bit weird too. It almost feels like i cant comprehend anything.

I literally have to close my eyes and try and find somewhere dark to hide for an hour until it passes

I usually get it during summer months.

cool story
Click to expand...
Yeah, sounds like an aura. I used to get these quite regularly, sometimes 2 or 3 times a week, but they’d generally only last 25 minutes, and it was very rare that I actually had an accompanying headache

Interesting you say they increase in the summer months. I discovered the cause of mine was what I call silhouetting - ie. looking at an object that was dark because the light source was behind it. For example having a meeting with someone and their back was to a window and it was sunny. Also my tv was in a bay window that got the light in the afternoon, so immediately behind the tv was dark because the half shutters were closed. Once I sussed this out, and started keeping the blinds behind my desk in work closed (not quite the same as silhouetting), I was able to throw my migraine diary in the bin, and have hardly had any since…that was 3 years ago. The only time I sometimes get them now is driving around dusk
 
My migraines are much more controlled since a change in meds. It got to the point where I was on the max dose of Topiramate and still having to take Sumatriptan a couple of times a week to hopefully stop a full blown attack. I spoke to one G.P. about it and was basically told to live with it.

There was a period last year when Topiramate was near impossible to get, so I spoke to the surgery Pharmacist. He suggested trying Amitriptyline instead. I am on a single 10mg dose and I am only getting a couple of migraines a month at most but much less severe effects. I rarely get a visual aura now.

Apart from avoiding potential triggers, one of the big helps for me was learning that neck pain or tension was a symptom, not a trigger. If I take paracetamol and Ibuprofen, as well as using some tiger balm, I can usually avoid having to Sumatriptan as well.
 
Tried the triptans at the beginning but always felt sick and dizzy off them. Zomig was the most bearable, so to combat the sickness metoclopramide was prescribed. Was pretty unbearable when was undiagnosed, even had a brain scan to rule out other nasties. Prob the stress of not knowing and worrying/ anxiety of guessing other conditions or issues it could have been. That was back in 2010!

Tried all sorts, physio, osteopath etc

Used to take paramax for a migraine, but now not available in the UK since Brexit

I take amitriptyline also. 10mg before bed, this seems to broadly work. was recommended by a Neurologist after going private due to long waits.

My migraines are not that frequent now, esp with other changes to working life, setting, stopped drinking etc. thankfully.
 
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Just had to increase the Amitriptiline to 50mg because of them. The migraines are currently being triggered by anything that involves a light source. Scary as XXXX. I have the usual zig zag aura and somethimes a big round black patch I can't see through. Once had the zig zags in my right eye and the black patch in my left at the same time. Once they hit me, I just have to wait them out.
 
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I used to rarely get a migraine. They're always an aura type migraine at the start when I do get them. Sometimes I get a cloudy head post the aura bit, others I don't.

This year has been particularly rubbish for my family though. Wife (42) diagnosed with bowel cancer. After 1st op prognosis was good alas she's just had a 2nd op to remove ovaries and tubes as they 'think' it may have spread. We're waiting for the biopsy result. In July I was diagnosed with AIN caused by a high risk strain (ocongenic) of HPV. Resources for men for this suck and where as women get surveillance for years if they get CIN if I am clear in December (6month check) it's been mentioned I'll be removed from the NHS books. The specialist is aware it can recur in 1 year, 2 years time etc alas I was told there just isn't the resource to do yearly checks. What's weird is if I was a man having sex with men I would get regular checks they just don't seem to take into account the high risk HPV to put me into the 'at risk' group. So I've a cancer cloud looming over me too now, feels like I'm just waiting. Get yourself an HPV vaccine is my advice if you haven't had one! On top of that lot we've two young children, 4yo and 6yo, so you can tell where my thoughts go a lot. It's tough.

Due to the above I've been quite stressed and had extreme levels of anxiety and lost a lot of sleep this year and it seems these can set off migraines. Think I'd had total of 3 in my life up until this year but I've had at least another 3 this year. Post the 1st one I had a headache for some time, talking over a week however that may have been a stress headache or a migraine headache, I do not know.
 
Had one yesterday with an aura, usually get about 2 or 3 a year. Sometimes I get the ones where you muddle your words up, as soon as I feel one coming on I take 2 painkillers and 2 Ibuprofen.
 
Gixer said:
I used to rarely get a migraine. They're always an aura type migraine at the start when I do get them. Sometimes I get a cloudy head post the aura bit, others I don't.

This year has been particularly rubbish for my family though. Wife (42) diagnosed with bowel cancer. After 1st op prognosis was good alas she's just had a 2nd op to remove ovaries and tubes as they 'think' it may have spread. We're waiting for the biopsy result. In July I was diagnosed with AIN caused by a high risk strain (ocongenic) of HPV. Resources for men for this suck and where as women get surveillance for years if they get CIN if I am clear in December (6month check) it's been mentioned I'll be removed from the NHS books. The specialist is aware it can recur in 1 year, 2 years time etc alas I was told there just isn't the resource to do yearly checks. What's weird is if I was a man having sex with men I would get regular checks they just don't seem to take into account the high risk HPV to put me into the 'at risk' group. So I've a cancer cloud looming over me too now, feels like I'm just waiting. Get yourself an HPV vaccine is my advice if you haven't had one! On top of that lot we've two young children, 4yo and 6yo, so you can tell where my thoughts go a lot. It's tough.

Due to the above I've been quite stressed and had extreme levels of anxiety and lost a lot of sleep this year and it seems these can set off migraines. Think I'd had total of 3 in my life up until this year but I've had at least another 3 this year. Post the 1st one I had a headache for some time, talking over a week however that may have been a stress headache or a migraine headache, I do not know.
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it is my experience that general stress and life challenges such as you describe will cause migraines. My first encounter of health issues many years back and migraines were at a time in life where everything on top of each other brought this out.

It sounds like you have all of that plus looking after two kids and all the stress of that plus super challenging health issues and ongoing's.

Take care of yourself and your team. Hope you can share the load or receive help from friends and family. Hope also your work and employer can give you some space and time with flexibility etc. would also recommend meditation and basic exercise if you can work it in somehow.
 
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Deluxe1 said:
Had one yesterday with an aura, usually get about 2 or 3 a year. Sometimes I get the ones where you muddle your words up, as soon as I feel one coming on I take 2 painkillers and 2 Ibuprofen.
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One of my former colleagues used to get ones where it would scramble sensations so for example touching something warm she might feel a sensation like she needed to vomit (best I can describe it), all she could do was lie in a dark room for a couple of hours until it was over.

Stuff like Ibuprofen only works for me if I catch on to the feeling of one coming on very early where it is almost imperceptible, once the symptoms of it coming on are distinct nothing will touch it.
 
Apparently my speech slurs on occasion, I also have frequent episodes of brain fog. I had a migraine come on while in A&E a couple of years ago. I think it was triggered by the cheese mayo sandwich they gave me and the lighting. I started to struggle with words and couldn't remember where I was born l when asked.

As I was there for suspected heart issues they were worried I may have had a stroke too. I didn't have any Sumatriptan with me and they couldn't get any that time of night.

I was just keen to get home, so my wife could get some rest and not have to go all night looking after our son, so I convinced them it was just a migraine to avoid waiting for an MRI. I had to wait it out in a darkened cubicle until they were convinced enough to let me go.
 
Some in my family used to suffer from them. One still does (my sister).

What I didn't know is that a common cause for them is the release of stress. Relaxing. It's kinda difficult because people often don't know they are under stress so when they relax they aren't sure about the link to stress, because they didn't feel stressed in the first place.
 
SpellowHouse said:
Some in my family used to suffer from them. One still does (my sister).

What I didn't know is that a common cause for them is the release of stress. Relaxing. It's kinda difficult because people often don't know they are under stress so when they relax they aren't sure about the link to stress, because they didn't feel stressed in the first place.
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Commonly, though I don't get them often, how it happens for me - if I have a day at work where I'm hyper-focussed or under a lot of pressure I'll drive home and as soon as I've ditched my work stuff and starting to relax *bam*, also sometimes with video games playing intensive multiplayer stuff like when I used to play Eve Online flying logi in PVP or The Division legendary/heroic difficulty - once I start to relax again the migraine comes on. I generally don't feel stressed until it comes to relaxing and realise what it has taken out of me.

Not migraine related but linked to that - I never realised how much operating manual gears in a car stresses me - I don't feel stressed - but swapping over to driving an automatic and I realise how much it actually is.
 
I used to get bad headaches but not sure if it was migrane. It was lay on bed with curtains closed with very hot flannel on my fore head.

Then one day I hit 55 and took early retirement and poof. No more headaches. I didn't realise I hated work so much.
I really do wish all you people the best for the future - it's no fun is it'.

Driving a auto is so relaxing.

PS - I used to buy Veganin painkillers - I thought they had gone off the market but are still available - expensive though.
 
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