I have an appointment with this covid doctor at the end of the month. Until now every appointment as been via the phone. My ability to get to appointments as been reducing throughout the year. Now I'm bedridden 24/7.
The plan was to have an appointment after the ct scan came back. It did, and using the trust app I can see the notes that it didn't show any significant issues. So I was expecting the appointment notification. It arrives. I was shocked to see the appointment is for 9:30am in person in the hospital.
In order for me to get there, if I was able to, I'd have to call for ambulance transportation which can arrive at 7:30am. I'd have to get up at probably at 6am because I have to get downstairs wearing a breathing machine and using supplemental oxygen. If I managed to get in the appointment room I'd be sitting with my machine on and interaction would be limited.
But trying to get in contact with this doctor so far as proven impossible. I was trying to get the appointment changed back to a telephone one, thinking there might have been a mistake somewhere along the line. But I ring the switch board at the hospital. They give me her secretary number. But the secretary is never in and hasn't called back. The trust app only lets me cancel the appointment. It doesn't let me communicate with either her or her team.
She had also arranged for a heart holter for me and said my gp will be able to do it by sending someone to the house. I get the trust app notification to come to the hospital for 9am, for an appointment lasting 15 minutes. I asked if someone could pick it up for me. But no they insisted I had to come I'm. So that would have been another 6am wake up, oxygen, machine, and ambulance transportation all for 15 minutes. So I had to cancel that appointment. Luckily I called the gp out to take readings when I situp. He said he'll arrange a gp heart holter and the nurse can come out. I think that is what the covid doctor was originally meaning.
But it feels like this covid doctor doesn't seem to take an interest in me, to the point she's not even aware of how things have progressed. She didn't come across as interested when I was trying to tell her my symptoms during the first calls.
I did write her a letter a couple of weeks ago in the hope that she would respond in some way. But so far nothing. Maybe the secretary is still off.
If I hear nothing from her as I approach the appointment I'm going to end up having to cancel appointments. This covid doctors situation seems very half arsed. No one doctor seems to coordinate treatment or are assigned a patient. Also even though she's in respiratory medicine she's in a different section to the lung function doctors I usually see in the same hospital, so one section can't contact the other section.